I'm Back and Looking for More Help

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Iancdub88
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Location: Colorado

Re: I'm Back and Looking for More Help

Post by Iancdub88 » Tue Mar 18, 2025 9:30 am

Hi, robysue1. Nice to hear from you.
robysue1 wrote:
Tue Mar 18, 2025 7:41 am
So perhaps you could try to be better about keeping a simple sleep log for a week or two?
Yes, I will do my best.
And for what it's worth, I agree with Nocibur that your current settings don't seem to make much sense. But having said that: Subjectively do you find the VAUTO with min EPAP Pressure = 15cm, max IPAP = 22, and PS = 7 any easier to get to sleep with than you were finding the APAP when your pressures were down in the 8-10 range?
No, I have noticed no difference in that way. I can sleep on pretty much any pressure. My problem is that when I wake up, I feel that I have slept through the night. I do not recall waking up a bunch of times. Maybe once or twice but it's never too hard to get back to sleep. It just doesn't add up to me why I'm so tired during the day.

Iancdub88
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Location: Colorado

Re: I'm Back and Looking for More Help

Post by Iancdub88 » Tue Mar 18, 2025 10:13 am

Nocibur wrote:
Tue Mar 18, 2025 9:12 am

IMO you need to stop DWing and figure out exactly what you're trying to fix before you try to fix it.
All I want to fix is the daytime sleepiness.

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Tue Mar 18, 2025 1:42 pm

How pissed am I after I just lost a 50-line post.

Rookie.

God's will I guess.
Iancdub88 wrote:
Tue Mar 18, 2025 10:13 am
All I want to fix is the daytime sleepiness.
Yeah we gotta talk about that.
ess.jpg
ess.jpg (9.32 KiB) Viewed 3539 times

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robysue1
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Re: I'm Back and Looking for More Help

Post by robysue1 » Tue Mar 18, 2025 2:45 pm

Nocibur wrote:
Tue Mar 18, 2025 1:42 pm
Iancdub88 wrote:
Tue Mar 18, 2025 10:13 am
All I want to fix is the daytime sleepiness.
Yeah we gotta talk about that.

ess.jpg
Nocibur,

Is that Epworth Sleepiness score something Iancdub88 posted?

Because you are right: If that's Iancdub88's Epworth score, there is the question of what Iancdub88 thinks excessive daytime sleepiness involves.
Joined as robysue on 9/18/10. Forgot my password & the email I used was on a machine that has long since died & gone to computer heaven.

Correct number of posts is 7250 as robysue + what I have as robysue1

Profile pic: Frozen Niagara Falls

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Tue Mar 18, 2025 3:10 pm

robysue1 wrote:
Tue Mar 18, 2025 2:45 pm

Is that Epworth Sleepiness score something Iancdub88 posted?
Yep back in

viewtopic/t188483/Last-Night-Was-First- ... &start=105

And then the (Freudian?) slip:
I do recognize that my fatigue could be other things though. Meds, depression, anxiety, they can all cause fatigue.
viewtopic.php?f=1&t=189331&p=1463781&hi ... e#p1463781

Iancdub88
Posts: 222
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Location: Colorado

Re: I'm Back and Looking for More Help

Post by Iancdub88 » Tue Mar 18, 2025 3:23 pm

Nocibur wrote:
Tue Mar 18, 2025 1:42 pm
How pissed am I after I just lost a 50-line post.

Rookie.

God's will I guess.
Iancdub88 wrote:
Tue Mar 18, 2025 10:13 am
All I want to fix is the daytime sleepiness.
Yeah we gotta talk about that.

ess.jpg
Isn't the ESS supposed to be a survey where they ask me questions? They never did that. They just posted that score with the sleep test. It is worth mentioning that I never felt as tired before CPAP though.

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Tue Mar 18, 2025 3:31 pm

Anyway I was thinking looking at a couple things:

Considering fatigue vs sleepiness and there are 2 (at least) entities;

The validity of the oximetry on Watch-PAT. His Mean was 90% (but we gotta math that up, look at the graph on the Watch-PAT report) and he's only 36. Yet he's in Colorado Springs and that looks even higher than Denver. And the physician noted "Sleep Related Hypoxemia". That's different from OSA desaturations. Is the struggle to breathe at some pressures because of low O2 sat?

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Tue Mar 18, 2025 3:33 pm

Iancdub88 wrote:
Tue Mar 18, 2025 3:23 pm
Isn't the ESS supposed to be a survey where they ask me questions? They never did that. They just posted that score with the sleep test. It is worth mentioning that I never felt as tired before CPAP though.
That's why I want to see the raw data. To see if they screwed the whole thing up.

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Tue Mar 18, 2025 3:35 pm

Iancdub88 wrote:
Tue Mar 18, 2025 3:23 pm
It is worth mentioning that I never felt as tired before CPAP though.
Yeah to go from AHI 60 to 0.0 and feel worse? No sense. Need real PSG.

Iancdub88
Posts: 222
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Location: Colorado

Re: I'm Back and Looking for More Help

Post by Iancdub88 » Tue Mar 18, 2025 4:07 pm

Nocibur wrote:
Tue Mar 18, 2025 3:35 pm
Iancdub88 wrote:
Tue Mar 18, 2025 3:23 pm
It is worth mentioning that I never felt as tired before CPAP though.
Yeah to go from AHI 60 to 0.0 and feel worse? No sense. Need real PSG.
I've been trying to reach my sleep doctor today to get one scheduled. Also waiting to hear back on the data. In the meantime, I'm thinking of trying to figure out some settings that aren't as ridiculous. I'll probably drop the pressure.

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Tue Mar 18, 2025 4:31 pm

Do you have an oximeter?

Iancdub88
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Re: I'm Back and Looking for More Help

Post by Iancdub88 » Tue Mar 18, 2025 5:22 pm

Nocibur wrote:
Tue Mar 18, 2025 4:31 pm
Do you have an oximeter?
I mistakenly said I don't in a now deleted post but I remembered I do have an oximeter. When I check it, it's usually 95% which I'm told is normal for my altitude.

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Wed Mar 19, 2025 1:41 am

Iancdub88 wrote:
Tue Mar 18, 2025 5:22 pm
... I do have an oximeter. When I check it, it's usually 95% which I'm told is normal for my altitude.
OK but you should wear it at night on therapy and load the results into Oscar. The report said "Sleep Related Hypoxemia" so that's what needs to be monitored. It's especially important to do if you're DWing.
Isn't the ESS supposed to be a survey where they ask me questions? They never did that. They just posted that score with the sleep test.
See, the problem is once you catch somebody in a lie, then everything he says becomes suspect.

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Nocibur
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Re: I'm Back and Looking for More Help

Post by Nocibur » Wed Mar 19, 2025 1:49 am

Iancdub88 wrote:
Tue Mar 18, 2025 3:23 pm
Isn't the ESS supposed to be a survey where they ask me questions? They never did that.
OK then go find it and take it again, how you feel now and how you think you were before all this happened.

Iancdub88
Posts: 222
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Location: Colorado

Re: I'm Back and Looking for More Help

Post by Iancdub88 » Wed Mar 19, 2025 6:24 am

Nocibur wrote:
Wed Mar 19, 2025 1:41 am
Iancdub88 wrote:
Tue Mar 18, 2025 5:22 pm
... I do have an oximeter. When I check it, it's usually 95% which I'm told is normal for my altitude.
OK but you should wear it at night on therapy and load the results into Oscar. The report said "Sleep Related Hypoxemia" so that's what needs to be monitored. It's especially important to do if you're DWing.
Isn't the ESS supposed to be a survey where they ask me questions? They never did that. They just posted that score with the sleep test.
See, the problem is once you catch somebody in a lie, then everything he says becomes suspect.
I'm lying now?