It's been well over a year with the inflammation issues but they have not found anything at all. I have been given SEVERAL rounds of steroids 2 injections, a prednisolone pack, and several single dose fluconazole.* Have your blood tests for inflammation done again in a month or two. You want to find out whether it's acute or chronic. More here: https://my.clevelandclinic.org/health/s ... flammation
Unfortunately, the sleep clinic won't give me anymore. His suggestion is to get the machine even tho it makes me extremely sick, he said he doesn't know what to do but refuses further testing.* Be very persistent about getting those sleep studies. The details matter, and we can give you better advice once we are able to look at them.
So far Aero Flow hasn't contacted me yet about getting the ASV machine.* In your shoes, I'd hold off on getting an ASV machine until you and your sleep doctor can arrive at a better understanding of your condition.
I contacted my primary doctor and she doesn't think they can offer an at-home pulse ox sleeping test. It's just not something her office does and she doesn't think that they even have an overnight pulse ox machine.* Ozij was suggesting that you ask your regular doctor for a blood oxygen monitor to use for a few days and nights. (PCP stand for "primary care physician.")
I live in North Texas, and I have never taken any narcotics in my life.* Do you live at a high altitude? Are you taking any narcotic-type medications? (Either of those might contribute to central apnea.)
You are right that some central apnea is "treatment emergent." It shows up when you use a PAP machine. So it's important to see whether you had CAs in a test without a machine.
* Some central apnea is idiopathic, meaning there's no discoverable reason for it. So if you do have it -- which isn't clear -- that wouldn't necessarily mean you have some worrisome health condition.
I'm really sorry your doctors don't listen to you better. One thing you might try is to prepare a written list of observations and questions ahead of time and go over it with them. Another is to bring a family member or friend with you to your appointments so they can listen in and, if the doctor is blowing you off, help to get the discussion back on track.
I have unfortunately brought lists and they haven't even been looked at. My husband has been extremely busy, he doesn't have time to come to the doctor's appointments, but he's about to get medical power of attorney if this continues happening, He is getting quite fed up and thinks they are all lying.