Very high events!

Miss Emerita · Post by **Miss Emerita** » Fri Oct 01, 2021 11:27 am

I have read many descriptions of incompetent apnea treatment, but this is the worst I can remember. It amounts to malpractice, in my book. I'm so glad you're on the trail of an ASV. You really, really need this.

palerider · Post by **palerider** » Fri Oct 01, 2021 12:54 pm

Ashton wrote: ↑
Fri Oct 01, 2021 7:19 am
well the DR and clinic seemed to think that ASV isn't the way to go because right off the bat i asked how we can reduce centrals and he said there is nothing that can be done for you.. i was shocked!

They're not the way to go right off the bat when insurance is paying, and since the ASV is the high end of expensive, they make you waste a lot of time trying everything else.

Miss Emerita · Post by **Miss Emerita** » Fri Oct 01, 2021 3:57 pm

palerider wrote: ↑
Fri Oct 01, 2021 12:54 pm
They're not the way to go right off the bat when insurance is paying, and since the ASV is the high end of expensive, they make you waste a lot of time trying everything else.

Making people go through hoops for an ASV is bad enough; what appalls me is that this doctor seems completely unaware of ASV as an option.

Ashton · Post by **Ashton** » Sat Oct 02, 2021 1:13 am

Will going higher pressure help? How do I tell how many of my events are central vs obstructive ?

So sick of waking up feeling terrible

GrumpyHere · Post by **GrumpyHere** » Sat Oct 02, 2021 4:58 am

Raising the pressure won't make much of a difference, even if it zeroed out your obstructives.

Because your centrals vs obstructives at are at:
57.58/h vs 4.94/h.
54.05 vs 1.49
64.26 vs 3.32
73.32 vs 1.21

CA events (clear airway - purple marks) on the OSCAR are the central apnea events.

You need an ASV machine full stop unless you're able to get off those pain patches.

Can you ask your doctor about other pain management methods:
nerve blocks, CBT, TENS, etc.

Pugsy · Post by **Pugsy** » Sat Oct 02, 2021 9:40 am

Raising the pressure will do absolutely NOTHING at all for the central apnea issues.
Raising the pressure only helps with the obstructive stuff.
Raising the pressure might even trigger more centrals.

With central apneas you aren't even trying to take a breath.

The ASV machine will sense that you aren't trying to breathe and essentially give you a big burst of pressure to act like a ventilator and force you to breathe.
Your current machine simply can't do what you need to have done to force you to breathe.
There is no setting tweak that we can do that will fix your problem and let you use the AutoSet for the OSA as long as you are having this number of centrals.

palerider · Post by **palerider** » Sat Oct 02, 2021 5:56 pm

Miss Emerita wrote: ↑
Fri Oct 01, 2021 3:57 pm

palerider wrote: ↑
Fri Oct 01, 2021 12:54 pm
They're not the way to go right off the bat when insurance is paying, and since the ASV is the high end of expensive, they make you waste a lot of time trying everything else.
Making people go through hoops for an ASV is bad enough; what appalls me is that this doctor seems completely unaware of ASV as an option.

Indeed.

Ashton · Post by **Ashton** » Sat Oct 02, 2021 9:28 pm

Wow I didn’t realize my obstructive was so low compared to my central! No one even told me that!

Glad I have you guys to help me much appreciated

I wonder if I do a trial of a week without the opiates my centrals will reduce? My wife does say I’ve always stopped breathing occasionally in my sleep so who knows if it’s the
Drugs or not. I mean I will fork out the money for an asv if I have to though

Pugsy · Post by **Pugsy** » Sat Oct 02, 2021 10:09 pm

If you want to stop the patch I strongly urge you to have a chat with your doctor first.

Also look up the half life for whatever pain med you are taking and figure out how long it will take to be completely out of your system.

Also realize that while these sort of meds can cause or worsen central apneas they aren't the only reason people have too many centrals. Some people have central sleep apnea and no one knows what the underlying cause is. It wouldn't be impossible for you to have central sleep apnea and the pain meds just make it worse.

Not to mention that going off these sorts of meds can cause some serious withdrawal issues along with the return of any pain issues that the pain meds are taken for.

It is normal to have an occasional random central...no big deal. The problem comes when we have a large number and they disturb sleep or cause desats.

GrumpyHere · Post by **GrumpyHere** » Sun Oct 03, 2021 1:22 am

Ashton wrote: ↑
Sat Oct 02, 2021 9:28 pm
I mean I will fork out the money for an asv if I have to though

BTW CPAP machines are much cheaper Stateside, even after accounting for shipping and duties.

The S9 VPAP Adapt (the newer 36037 model) has the same operating modes and algorithms as the AirCurve 10 ASV. But it's less expensive because it's an older model in a different form factor.

The mode you're looking for is ASVAuto.

ResMed has a lot of different names for S9 series ASV machine outside of USA.

VPAP Adapt (S9 PaceWave)
AutoSet CS (S9 PaceWave)
AutoSet CS-A (S9 PaceWave)

Welcome guide:

Code: Select all

https://cdn2.hubspot.net/hubfs/3445757/Res-Med B2C 2019/Support Page/pdf/s9-autoset-cs-a_welcome-guide_apac_eng.pdf

If you do decide to buy the AirCurve 10 ASV locally in Australia, it is not marketed as such.

Instead, look for one of the below:
AirCurve 10 CS PaceWave
Aircurve 10 CS-A
Aircurve 10 CS-A PaceWave
Aircurve 10 CS-A TJ

https://www.resmed.com.au/healthcare-pr ... s-pacewave

It doesn't have the VAuto mode specified in the above link according the clinical guide linked below. Even if it did have that mode, it wouldn't help in your use case.

https://www.resmed.com.au/hubfs/downloa ... ow-eng.pdf

Respirator99 · Post by **Respirator99** » Sun Oct 03, 2021 4:07 am

G'day Ashton.

Are you located in Australia? If so ASV machines retail around AU$3,800 and most health funds give a rebate around $500 - $750, depending on your extras cover. (Some more, some less). If you're in Perth by any chance, get in touch - I may be able to assist.

Regards
Paul

Ashton · Post by **Ashton** » Fri Oct 08, 2021 10:40 pm

Hi,

No sorry I’m in nsw mid north coast

I’ll have to just save up I guess.
Thanks everyone for helping me with the diffrent models I need

Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!

Re: Very high events!