One Year of PAP - What I Learned

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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ElusiveSleep
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Joined: Tue Apr 07, 2020 7:36 am

One Year of PAP - What I Learned

Post by ElusiveSleep » Thu Mar 04, 2021 9:43 am

Started PAP in February 2020. After one year, my therapy has finally been optimized. Listed below are the challenges and how they were solved.
  • Mouth breathing leaks during the first six months defeated the therapeutic effects of the machine
*Had frequent large leaks for several months. To rule out mask leak, when I taped my mouth for one night, the leak rate was zero.
*Tried the conventional approach using several chin straps as recommended by sleep doc, Resmed, and DME. Miserably failed and they were damn uncomfortable especially as was summertime.
*Solution: Soft cervical collar (Walgreen's) as suggested on this forum. Large leaks after this dropped like a rock.
  • Sleep doc did nothing to narrow pressures from initial machine setting (4-14 cm H2O)
*Based on info from info this forum, realized it was important to narrow pressures
*Made requests to sleep doc to narrow pressure, which she agreed to do
*However, started to realize APAP was not ideal, but was uncertain what to do
  • Wanted to try fixed pressure, but sleep doc was hesitant to recommend
*A sleep technologist with a YouTube channel convinced me that fixed pressure was the way to go
*He offers fee-based consulting service to review OSCAR data so decided to do
*Suggested up titration at a couple fixed pressures and gave me confidence to change machine settings (and get over my fear of the DME cops will come after you)
*Finally settled on fixed pressure of 9 cm H2O.
*He also suggested trying Coverall type over mouth in place of collar. The tape actually caused both AHI and mask leaks to increase. I think the reason the collar works better for me is that there is some nasal congestion during sleep, and partial mouth breathing balances it.
  • Awakening after ~6 hours of PAP (~5:00 am) was of initial concern
*Just accept it, listen to soothing music and usually fall back to sleep
*Getting out bed at 9:00 am is no big deal since I am retired (although it irks my wife since she is a lark and I'm an owl).
  • PAP therapy changed my life
*I am grateful for all the help I got from this forum and, especially, many thanks for efforts of all those who have contributed to development of OSCAR program

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Miss Emerita
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Re: One Year of PAP - What I Learned

Post by Miss Emerita » Thu Mar 04, 2021 12:12 pm

It's great to hear about your experience! Would you consider copying and pasting this into a post on the Success Story thread above? I think it's an especially good post because it talks about experimentation, problem-solving, and taking charge of your own treatment. Many thanks.
Oscar software is available at https://www.sleepfiles.com/OSCAR/

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chunkyfrog
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Re: One Year of PAP - What I Learned

Post by chunkyfrog » Thu Mar 04, 2021 1:24 pm

PSA: there is no such thing as "cpap cops", at least in the USA.

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Sheriff Buford
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Re: One Year of PAP - What I Learned

Post by Sheriff Buford » Fri Mar 05, 2021 3:56 am

chunkyfrog wrote: ↑
Thu Mar 04, 2021 1:24 pm
PSA: there is no such thing as "cpap cops", at least in the USA.
Wait a minute....

Sheriff

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zonker
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Re: One Year of PAP - What I Learned

Post by zonker » Fri Mar 05, 2021 6:52 pm

Sheriff Buford wrote: ↑
Fri Mar 05, 2021 3:56 am
chunkyfrog wrote: ↑
Thu Mar 04, 2021 1:24 pm
PSA: there is no such thing as "cpap cops", at least in the USA.
Wait a minute....

Sheriff
flash that badge, sheriff!!
:lol: :lol: :lol:
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