still having issues after titration and several masks

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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zonker
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Re: still having issues after titration and several masks

Post by zonker » Sun Jan 31, 2021 8:15 pm

jcpruitt89 wrote:
Sun Jan 31, 2021 8:09 pm
zonker wrote:
Sun Jan 31, 2021 7:01 pm

don't forget pugsy's last question" "what are your specific complaints?"
My apologies. Ever since the OSA my focus has been dog crap.

My specific complaints are that I'm waking up several times a night from the OSA and it takes me an 45-60 minutes to fall back asleep each time. I assume because of a stress response. Even if i do get 8 hours I'm still exhausted. This all has caused me to have excessive fatigue, weakness, sleepiness, headaches, dizziness, muscle loss, gastrointestinal issues, hand tremors and low libido. In additional to that high blood pressure and occasional chest palpitations.
no need for apologies. you are going through a sh*t ton of bad things. it's a wonder that you can even get things typed out.i just wish i had the knowledge to help you out.

all i can say is that not every thing is down to sleep apnea. but i think you realize that already.

pugsy is the most knowledgeable person we have here. i will step aside and let her do what she does best. if i think of anything to contribute, i surely will.

best wishes and good luck to you.
people say i'm self absorbed.
but that's enough about them.
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jcpruitt89
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Re: still having issues after titration and several masks

Post by jcpruitt89 » Sun Jan 31, 2021 8:30 pm

Architect wrote:
Sun Jan 31, 2021 7:01 pm
jcpruitt89 wrote:
Sun Jan 31, 2021 6:17 pm
Architect wrote:
Sun Jan 31, 2021 5:54 pm
Hello friend, certainly can understand your position, sorry this is happening, I was once there. No matter what do not give up hope, from my experience, patience is the key to success.

My main issue was finding the perfect mask, I went through lots of em, once I found a mask that did not leak at all, which was Quattro, my pressures were adjusted to the mask fit, every 2 months by sleep clinic, till my AHI dropped below 1,.

There are many varying issues causing cpap therapy not to work, the key is to discover what is most bothersome to you, for me it was mask fit. I tried it all, even duct tape my mouth shut. Tried large size, med size, etc.....

Wish you well on your journey.....
Thank you!

So you did titrations for each mask until you found the pressures that worked for you? I think that my nasal mask would have worked if it wasn't for the leaking through my mouth because when I taped my mouth my AHI dropped dramatically. But, i can't tape my mouth every night for rest of my life.

It seems that the full masks require more pressure and the efficacy of them is not as good as the nasal masks. Is yours a full face mask?
Hi Friend, yes sleep clinic adjust pressures with each mask, once I used Quattro with no leaks, my pressure was fined tuned to the mask. My issues were improper mask fit/leaks.... Sleep clinic appt was every 2 months, until issues were resolved, now I visit sleep clinic every 6 months.

Mask is all preferences, nasal mask are comfortable, but not gonna lie to you, I love my Quattro, yes it's large, I look like a Jedi pilot, but over the years, I'm used to wearing, no discomfort from mask at all. Last week I tried a new mask Resmed Airtouch F20, worked flawless, now leaking up a storm. Back to Quattro. Quattro is perfect fit for my face. I believe part of cpap success is no leaks. Regardless of mask, from my experiences. Quattro was the only one that didn't leak.
Would you mind elaborating on your specific mask. Since I'm dealing with slightly higher pressures seal is everything. Is it the Resmed mirage quattro?

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Pugsy
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Re: still having issues after titration and several masks

Post by Pugsy » Sun Jan 31, 2021 10:05 pm

https://www.goodrx.com/blog/could-your- ... -insomnia/

https://www.aarp.org/health/drugs-suppl ... omnia.html

I am not so sure that your sleep quality issues are from unresolved OSA issues. Ace inhibitors and beta blockers can cause sleep problems.
See the above 2 links.

I am also not so sure UARS is going on here. Unless the sleep study showed lots of respiratory related arousals happening...it's not likely UARS.
There are 2 kinds of arousals...Respiratory event related and needed for UARS consideration and Spontaneous arousals which simply means we don't know what caused the arousal.

Poor sleep quality can sure mess with how we feel though no matter what the cause of the arousals.

Your flagged events...you need to do some digging to see if they look like arousal related or asleep related.
http://freecpapadvice.com/sleepyhead-free-software
Awake/arousal breathing is very irregular when compared to asleep breathing. These machines can't measure if we are really asleep or not....they only measure air flow and often our awake breathing will cause us to have some "false positive" flagging.
Watch the videos at the link and bear in mind that while it is talking mainly about CAs/central apneas...that it's not limited to centrals...we can have false positives in any event category.
The cpap machine can't do anything about any event that is an awake/arousal related event. Gotta fix the bad sleep first.

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Architect
Posts: 168
Joined: Sun Jan 31, 2021 5:09 pm
Location: Central Tx

Re: still having issues after titration and several masks

Post by Architect » Mon Feb 01, 2021 2:00 am

jcpruitt89 wrote:
Sun Jan 31, 2021 8:30 pm
Architect wrote:
Sun Jan 31, 2021 7:01 pm
jcpruitt89 wrote:
Sun Jan 31, 2021 6:17 pm
Architect wrote:
Sun Jan 31, 2021 5:54 pm
Hello friend, certainly can understand your position, sorry this is happening, I was once there. No matter what do not give up hope, from my experience, patience is the key to success.

My main issue was finding the perfect mask, I went through lots of em, once I found a mask that did not leak at all, which was Quattro, my pressures were adjusted to the mask fit, every 2 months by sleep clinic, till my AHI dropped below 1,.

There are many varying issues causing cpap therapy not to work, the key is to discover what is most bothersome to you, for me it was mask fit. I tried it all, even duct tape my mouth shut. Tried large size, med size, etc.....

Wish you well on your journey.....
Thank you!

So you did titrations for each mask until you found the pressures that worked for you? I think that my nasal mask would have worked if it wasn't for the leaking through my mouth because when I taped my mouth my AHI dropped dramatically. But, i can't tape my mouth every night for rest of my life.

It seems that the full masks require more pressure and the efficacy of them is not as good as the nasal masks. Is yours a full face mask?
Hi Friend, yes sleep clinic adjust pressures with each mask, once I used Quattro with no leaks, my pressure was fined tuned to the mask. My issues were improper mask fit/leaks.... Sleep clinic appt was every 2 months, until issues were resolved, now I visit sleep clinic every 6 months.

Mask is all preferences, nasal mask are comfortable, but not gonna lie to you, I love my Quattro, yes it's large, I look like a Jedi pilot, but over the years, I'm used to wearing, no discomfort from mask at all. Last week I tried a new mask Resmed Airtouch F20, worked flawless, now leaking up a storm. Back to Quattro. Quattro is perfect fit for my face. I believe part of cpap success is no leaks. Regardless of mask, from my experiences. Quattro was the only one that didn't leak.
Would you mind elaborating on your specific mask. Since I'm dealing with slightly higher pressures seal is everything. Is it the Resmed mirage quattro?
Hi friend, yes Resmed mirage quattro. I certainly can relate to how you feel, do your best to ride the storm. I tried tons of mask, a trash bag full...... The issue I always had was nose bridge leaks with other masks, between nose/forhead, mine goes inward. The difference in Quattro for me was the nose bridge support with adjustment. So, if your leaks are mainly around upper nose bridge, Quattro may resolve.

I've used Quattro for 8 years, no issues. Leaks caused me to wake up constantly, leaks blowing in my eyes, cushion farts waking me up, Lol !!!! feeling like my favorite quote, Dawn of the dead.