Straw Poll: CPAP or Positional?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Apneak
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Re: Straw Poll: CPAP or Positional?

Post by Apneak » Wed Oct 07, 2020 4:15 pm

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mper!?
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Re: Straw Poll: CPAP or Positional?

Post by mper!? » Thu Oct 08, 2020 7:17 am

[Other things I've tried:
I've tried bipap, and it's not better for me than the Apap...... .. /i]
[/quote]

[/quote]
I will try and go back to try Bipap again.....well, you know, subjectively counts a lot in this world, even though, in my modest opinion, if I may, I think it woulld be well worth giving a new try with the BiPAP, and go for a new, maybe-some 10 to 15 day, Resmed guided, self titration. Why?
(a) you have the best machine, the aircurve 10 Vauto;
(b) your centrals look false positive events, due back-to-sleep transitions, following arousals/awakenings, very likely during flow-reduced REM stages;
(c) you could improve positional issues while sleeping in your sides;
(d) On APAP you appears facing a fighting-against-the machine, exertioned respiration - E:I < = 1.0, which does not occur on VAUTO
(e) with a new easy self titration, as per Resmed S mode, or just fixed pressures VPAP mode; you would have a better sense of your tailored parameters PS, EPAP min, and max tolerated IPAP....https://www.resmed.com/epn/dam/document ... er_eng.pdf


I then tried a bunch of medications for PLM......even at Stanford, do not think that it is significant, unless it is specifically causing arousals on your psg.....just to share this: for a long while, I used to think I had problem with PLMS, took medication and so on, not at all anymore, as something tha would prevent me from sleeping through them OK.....RLS, yes, since kid, now for some 50 years, attacking me when I awake up (pretty much always driven by respiratory effort of any kind). Therefore, in my case, and yours likely, the true monster to tame is respiratory-driven arousal/awakenings. Ultimate battle is not easy for highly long time sensitized people like me, maybe like you too
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all the best and good luck
Not a Doctor.
"The goal is to turn data into information, and information into insight (Carly Fiorina)".

Apneak
Posts: 66
Joined: Sun Nov 03, 2019 6:57 pm

Re: Straw Poll: CPAP or Positional?

Post by Apneak » Thu Oct 08, 2020 12:04 pm

I don't know guys, maybe PAP just isn't for me. I've been at it for like 3 years now. Looking at the most recent data from APAP on Oscar, there is nothing on there that indicates an "ineffective" therapy. Sure, there are some lengths of time where the inspiration top is less than perfectly round, but generally, they're nice and round. And on the Bipap, pretty much 100% nice and round. I even wear a whoopstrap that shows me anywhere from 85-125 minutes of Deep Sleep and 55-75 minutes Rem sleep.

I wonder if PAP just activates some weird stress response in me when sleeping, like maybe the sensation of air being forced down my airway...because the therapy is more or less optimized. Has anyone just not found success with PAP even at optimized pressures? I'm beginning to think that's my fate here. I'll try just plain side sleeping, and I'm also start myo-functional exercises daily, which apparently has consistently shown a 50% reduction in AHI, over a 8 weeks or so. That combined with side sleeping, may be the best I can do...

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chunkyfrog
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Re: Straw Poll: CPAP or Positional?

Post by chunkyfrog » Thu Oct 08, 2020 1:18 pm

FYI: Cpap is not "for" any person--it is "for" OSA, obstructive sleep apnea,
Which kills by inches, if not PROPERLY treated.
But if you believe the scam artist promoting the exercise hoopla--go for it.
But don't say we didn't warn you.

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Apneak
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Re: Straw Poll: CPAP or Positional?

Post by Apneak » Thu Oct 08, 2020 1:42 pm

Myofunctional therapy isn't a scam. It's clinically shown to reduce AHI by about 50% in adults. That's obviously not enough for most people with OSA, even for me. But on my side I had very little obstruction, is why it's a good supplemental move.

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khauser
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Re: Straw Poll: CPAP or Positional?

Post by khauser » Thu Oct 08, 2020 2:01 pm

If you are looking for support towards the goal of using any other therapy than CPAP, you're not in the right forum at all. Everyone here has had different issues with CPAP, and we stay here to try and help everyone else to the best of our abilities.

CPAP therapy remains the gold standard for treatment of OSA. There are other therapies around with varying levels of success, but none that are known to work as well as CPAP.

But I will say that if your head is already out of the game, you're not going to make good progress with CPAP. The human brain excels at justifying it's positions on things, creating all sorts of research bias and creates its own supporting evidence out of that. When we want to make it work we can think towards positive changes, which impacts how we research, find proper evidence and move forward. When we already know we don't like something (and more importantly) don't WANT to like something, it's very hard to make that thing work.

In the nicest way I can think of I have laid out for you your choices ... desire this to work or give up. We'll work with you all that we can if its the first, but when you decide you want to go elsewhere, just do it. People that have made it work for them don't know how to help you with other techniques, and frankly we don't believe in them.

I wish you the best of luck whichever way you choose!

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Sleep loss is a terrible thing. People get grumpy, short-tempered, etc. That happens here even among the generally friendly. Try not to take it personally.

Apneak
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Re: Straw Poll: CPAP or Positional?

Post by Apneak » Thu Oct 08, 2020 2:11 pm

Thanks, but I wouldn't have stuck with this for 3+ years, trying 3 different machines, 5 different masks, 3 different chinstraps, 2 lab titrations, and countless pressures settings, and religiously check my data everyday, if I didn't desire it to work. And as far as I can see in the data, it is working. And it's more or less comfortable...But I just wonder if it's causing some strange problem in stimulating some kind of anxiety or stimulation while I sleep, which I realize sounds kind of far-fetched, but not sure what other guess to make at present. Will give the positional a shot again. See how it stacks up.