Central Sleep Apnea + Autism

The link you have posted for your son Vauto data publicly....is that the same SD card contents as I got this past weekend?
I just imported it into OSCAR but I don't see any new data beyond Sat morning.
I thought maybe it contained the past couple of nights....No????

Pugsy wrote: ↑

Tue Sep 01, 2020 6:18 pm

Miss Emerita wrote: ↑

Tue Sep 01, 2020 2:21 pm

My comment about FLs wasn't about flagged FLs but about my zoomed-in scrolling through the flow rate graphs, where there are a lot of FLs that aren't flagged.

So you are looking at the Vauto files...is that correct? The link he posted publicly???

I just got home....my hair is beautiful...and I went over to my mom's to take her a couple of items I wanted her to have to make things a bit easier for her. I have to go feed the horses and do some chores outside and then I will come in and import the latest VAuto details since it's been since Sat that I have reviewed his VAuto data.

Yes, I have only seen the VAuto files. OT: Isn’t it nice to get hair dealt with in these pandemic times? I got an outdoor haircut last week, first since March, and it cheered me up a bunch. Also, how the heck did I miss HORSES? Dogs, check, garden, check, truck, check — and now horses!

Miss Emerita wrote: ↑

Tue Sep 01, 2020 7:01 pm

Yes, I have only seen the VAuto files. OT: Isn’t it nice to get hair dealt with in these pandemic times? I got an outdoor haircut last week, first since March, and it cheered me up a bunch. Also, how the heck did I miss HORSES? Dogs, check, garden, check, truck, check — and now horses!

I had to get my roots done. Pandemic or not the roots were going away.
And while I can do it myself....not nearly as well and it kills my shoulders and I can't get the back covered well since I can't see it and I have no one to help me out with it.
I have been so stressed out lately what with my mom and all this covid crap and new aches and pains to go along with my old ones.
I decided I was going to treat myself.

Until recently my hairdresser was doing a few clients in her home but she's gone back to a shop now...so she was doing me in her house...but now I have to go to the shop but I don't mind. I am careful and we think she has already had covid anyway back in late March.
Her husband did (he got tested) and she was sick at the same time. Plus I think I had it the first week of March myself...along with hubby.
We both got real sick with all the usual covid symptoms within an hour of each other 3 days after attending a banquet awards dinner and sitting next to the company president's wife who all she talked about was how sick she had been. Hubby was right next to her and I was next. This was before we knew much about Covid and no testing available at that time. We just stayed home. No life threatening symptoms.

Anyway, even though I think we had it...can't prove it and can't get any antibody testing done around where I live...I treat myself like I didn't and am still at risk so I take extra care and I don't go out unless I have to. Besides my being 68 with BP issues and more pounds on than I would like....I have to worry about taking it to my 88 year old mom who is already failing.

But damn my hair looks good today and yes...it does cheer us up when we get it done. I needed that.

So I have been doing some reading about autism and sleep.

https://www.spectrumnews.org/news/sleep ... explained/

https://www.autismspeaks.org/sleep

Just a couple of hits when I did a search. I don't have time to read all the hits.

https://www.google.com/search?client=fi ... ep+quality

and this when I did a search for "autism and sleep apnea"

https://jcsm.aasm.org/doi/10.5664/jcsm.8006

https://pubmed.ncbi.nlm.nih.gov/16638513/

https://www.autismparentingmagazine.com ... rs-autism/

and there was more and I can't read them all right now but apparently crappy sleep is common even if sleep apnea isn't in the mix.

Do take the time to read all this and I know it's long.

https://www.uptodate.com/contents/evalu ... n-children

It doesn't factor in autism. I was looking for the criteria alone in children. Looks like they say under 18 qualifies as pediatric and the criteria is indeed more stringent which I already knew about for 6 to 8 yr olds.
Home sleep studies not recommended and they explain why...but remember they are talking about children without autism complicating things.

Here's a section of good sleep with an arousal obviously shown...and a UC2 flag which means a 50% reduction in flow and no other flagging criteria present.
If you look real close at the breaths they are slightly smaller than the rest of the asleep breaths. No flow limitations flagged either.
I don't know the clinical significance of this or even if there is any. It could just be part of the arousal breathing sort of tapering off and his going back into sound sleep. All the UC1 and UC2 flags shown have some sort of obvious arousal breathing right next to them.
In the long really obvious segments of awake breathing...lots of UC1 and UC2 flags. You can see them in the Events graph on the bottom.
It is obviously very brief.

It's late and I am cross eyed. Going to get ready for bed and try to get some sleep assuming I can turn my mind off. And stay asleep which is the hard part for me. See you in the AM.

Hi Pugsy, Hi Miss Emerita

Tough day here....

We just got back from the hospital. We had a pneumothorax( collapsed lung ) scare.

She is okay but the doctor wants us to discontinue the BPAPS with my wife and son.

He is going to look into the long apnea events. We wont' see him until September 12th though so I am not sure what to do next. We are going back to regular CPAPs but my wife and son also have high AHI and long events on these too.

Hi again Pugsy

We might not go with the new nasal mask afterall. We wanted to do this to go to higher pressures but that doesn't look possible.

I'm glad the scare is over. What a day. Wish the doctor's appointment were coming up sooner.

Thanks Miss Emerita, it has been a tough day

Well....give me a bit of time and let me look really closely at the AutoSet data.
I haven't done that yet. The manual counting of stuff.
Again the bulk of the AHI you see reported is going to be awake/arousal related but there maybe some asleep flagged stuff in there.
I know there were a few flow limitations but I don't know how clinically significant they are. You are using the mode that is designed to really look for FLs so it always makes the FL graph look a bit more active. I have actually used that mode myself so I am familiar with what it does. More on that later.

For the wife. We can't really follow her data on the F & P machine without the software but we already pretty much know what to expect. She's going to have some good nights and some bad nights and some so so nights. A lot will be related to either sleep position or how much REM she might be getting and overall sleep quality because there are times when the flagged events are obviously arousal related.. It is what it is at this point since she can't tolerate more pressure. Even though not ideal reports I would assume still better than no cpap at all.

Get some rest. You have had a stressful day. I just got home from a doctor appt myself and it's been a long day. So I am going to put my feel up and rest my eyeballs for a bit.

You might think about getting one of those overnight recording pulse oximeters that I talked about. Somewhere between $50 and 100 US from Amazon if you can find one...depending on the model. They have been scarce since Covid. Get one that is compatible with OSCAR (and there is a list in OSCAR that tells you which models will work) that way you can import into OSCAR (even without cpap data) and see what happens with the O2 levels. Just remember the limits I already told you about with loss of contact artifacts.