Low AHI but still no benefits

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Low AHI but still no benefits

Post by Espada » Tue Jun 09, 2020 7:46 am

I have my APAP machine and been using it for more than 4 months now it came with full face mask i always had AHI higher than 5 lately after posting here and pumping the minimum pressure i was able to achieve numbers lower than 3 but my bed partner told me that i tend to open my mouth while i sleep and i got a chin strap and the AHI sometimes hits 0.2 or something close to 0 but here is the issue i still feel like i was ran by a train all day with a headache and wanna sleep just 1 to 2 hours after waking up when i drink coffee to eliminate that feeling i only get more headaches and no feeling of being awake and energized, i workout 3 times a week with weights aka going to the gym and 2 to 4 times low to moderate intensity cardio sessions

Gender: male
Age: 29
Weight: 88kg
Height: 183cm
I have been diagnosed with mild sleep apnea 5 years ago

User avatar
khauser
Posts: 1308
Joined: Fri Feb 01, 2013 9:31 am
Location: Nashua, NH

Re: Low AHI but still no benefits

Post by khauser » Tue Jun 09, 2020 8:09 am

Hello Espada,
Please read viewtopic/t172378/Sticky--Newbies-PLEAS ... STING.html. We know next to nothing about you right now. Update your profile with equipment and start (if you haven't already been doing it) collecting data.

How well do you sleep? Do you wake up a lot? Maybe even without knowing it.

The fog and headache are typical symptoms of poorly treated sleep apnea, but you also might be a bit dehydrated (definitely can cause headaches). People with sleep apnea are annoyed by waking up a lot and having to urinate ... but the reality is that the urge to use the bathroom is often caused by stress hormones from the sleep apnea, and NOT by drinking too much water before bed. So if you are in the habit of avoiding water before bed, that might also contribute to headaches. Drinking alcohol will make that WAY worse...

We'll be looking for that data....

_________________
MachineMask
Sleep loss is a terrible thing. People get grumpy, short-tempered, etc. That happens here even among the generally friendly. Try not to take it personally.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: Low AHI but still no benefits

Post by Espada » Tue Jun 09, 2020 10:50 am

khauser wrote: ↑
Tue Jun 09, 2020 8:09 am
Hello Espada,
Please read viewtopic/t172378/Sticky--Newbies-PLEAS ... STING.html. We know next to nothing about you right now. Update your profile with equipment and start (if you haven't already been doing it) collecting data.

How well do you sleep? Do you wake up a lot? Maybe even without knowing it.

The fog and headache are typical symptoms of poorly treated sleep apnea, but you also might be a bit dehydrated (definitely can cause headaches). People with sleep apnea are annoyed by waking up a lot and having to urinate ... but the reality is that the urge to use the bathroom is often caused by stress hormones from the sleep apnea, and NOT by drinking too much water before bed. So if you are in the habit of avoiding water before bed, that might also contribute to headaches. Drinking alcohol will make that WAY worse...

We'll be looking for that data....
I have a machine that no one knows here πŸ˜… from a brand called " Yuwell " it has sd card but the software provided here doesn't support it, i have noticed that i do wake up in the middle of the night for seconds stressed and then back to sleep but not always and when that happens those are the shittiest nights ever i feel like shit all day next day and have hard time to sleep even tho i am sleepy, since I started using the APAP i never woke up to pee and i drink alot of water, btw i have no idea why do i wake up feeling my heart is gonna jump from my chest for seconds then i relax and sleep again

User avatar
ChicagoGranny
Posts: 15251
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Low AHI but still no benefits

Post by ChicagoGranny » Tue Jun 09, 2020 10:57 am

Espada wrote: ↑
Tue Jun 09, 2020 10:50 am
btw i have no god damn idea why do i wake up feeling my heart is gonna jump from my chest for seconds
You may be having long apneas and/or clusters of apneas. The settings on the machine may not be appropriate for your condition. What is the model number of your Yuwell machine? What are the pressure settings?

User avatar
Pugsy
Posts: 65114
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Low AHI but still no benefits

Post by Pugsy » Tue Jun 09, 2020 11:05 am

Not everything that messes with our sleep or messes with how we feel is related to sleep apnea.
CPAP can only fix sleep apnea problems. It can't fix bad sleep from other problems that mess with us no matter how much we want or expect it to. It can't.
A nice low AHI just means the sleep apnea is well treated. It doesn't mean that there's nothing else going on that could be a problem.

Now it's nice when we have the machine's software reports to look at and maybe give us some guidance as to what might be causing the not feeling those nice low numbers.
There can be other airway related issues that don't show up in the AHI that could also be a factor in how we feel but without more detailed information we are left just guessing.

So maybe if you had the ability to see detailed reports (if your machine even flags anything other than AHI) you might have some hints to target to feel the low numbers.
Maybe you have other issues that are part of the problem and there's nothing really to see on detailed reports that might help you.

About all we can do without anything to go on is tell you to get with your doctor and do further investigation. We can only speculate as to why you don't feel those low numbers.

Otherwise you get the standard speech we have to give when people either don't have a machine to maybe help or they do and nothing stands out in the reports to help.

Take a look at the usual suspects..
Sleep hygiene..
Hours of sleep..
Sleep quality in general...
Medication side effects...
Other potential health issues..

It's not always about sleep apnea when we feel like crap. Been there and done that myself.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

User avatar
khauser
Posts: 1308
Joined: Fri Feb 01, 2013 9:31 am
Location: Nashua, NH

Re: Low AHI but still no benefits

Post by khauser » Tue Jun 09, 2020 11:21 am

Also (I forgot to mention earlier), if you ARE experiencing large leaks, then the AHI is not a useful number because the machine may not be able to properly detect them...

_________________
MachineMask
Sleep loss is a terrible thing. People get grumpy, short-tempered, etc. That happens here even among the generally friendly. Try not to take it personally.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: Low AHI but still no benefits

Post by Espada » Tue Jun 09, 2020 11:38 am

khauser wrote: ↑
Tue Jun 09, 2020 11:21 am
Also (I forgot to mention earlier), if you ARE experiencing large leaks, then the AHI is not a useful number because the machine may not be able to properly detect them...
Last night report

AHI: 2.1
Used time: 8.2 hours
Average pressure: 10
Average leak volume: 7.0
Pugsy wrote: ↑
Tue Jun 09, 2020 11:05 am
Not everything that messes with our sleep or messes with how we feel is related to sleep apnea.
CPAP can only fix sleep apnea problems. It can't fix bad sleep from other problems that mess with us no matter how much we want or expect it to. It can't.
A nice low AHI just means the sleep apnea is well treated. It doesn't mean that there's nothing else going on that could be a problem.

Now it's nice when we have the machine's software reports to look at and maybe give us some guidance as to what might be causing the not feeling those nice low numbers.
There can be other airway related issues that don't show up in the AHI that could also be a factor in how we feel but without more detailed information we are left just guessing.

So maybe if you had the ability to see detailed reports (if your machine even flags anything other than AHI) you might have some hints to target to feel the low numbers.
Maybe you have other issues that are part of the problem and there's nothing really to see on detailed reports that might help you.

About all we can do without anything to go on is tell you to get with your doctor and do further investigation. We can only speculate as to why you don't feel those low numbers.

Otherwise you get the standard speech we have to give when people either don't have a machine to maybe help or they do and nothing stands out in the reports to help.

Take a look at the usual suspects..
Sleep hygiene..
Hours of sleep..
Sleep quality in general...
Medication side effects...
Other potential health issues..

It's not always about sleep apnea when we feel like crap. Been there and done that myself.
Well i do what anyone does clean sheets on the bed and wash my teeth before sleeping and then i use mouth wash regularly sleep quality sux beyond measure and i cant detect the culprit as my sleeping sux in cold or warm sea side town or away from the sea tried losing weight even tho i am not even overweight, tried using sea water spray before sleeping to clean my nasal airways didn't help, if i sleep 8-12 hours i feel like crap but here is the awkward thing is when i sleep for 4-5 hours i feel more rested I don't feel perfectly fine but better than longer sleep and i always feel that my sleep is disrupted by something just don't know what it is πŸ˜” no medications whatsoever but i had acid reflux which was treated and since i fixed my eating habits it's gone for good

I wanna thank you guys for trying to help even tho it is hard without the required data ❀️

User avatar
Pugsy
Posts: 65114
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Low AHI but still no benefits

Post by Pugsy » Tue Jun 09, 2020 11:44 am

Sleep maintenance insomnia...google it.
The potential list of culprits is miles long. Sleep apnea is but one item on that list.
If you wake often or have trouble going back to sleep when you do...sleep maintenance insomnia.
It's bad sleep quality...and cpap can only fix bad sleep quality when the bad is caused by airway issues.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: Low AHI but still no benefits

Post by Espada » Tue Jun 09, 2020 11:47 am

ChicagoGranny wrote: ↑
Tue Jun 09, 2020 10:57 am
Espada wrote: ↑
Tue Jun 09, 2020 10:50 am
btw i have no god damn idea why do i wake up feeling my heart is gonna jump from my chest for seconds
You may be having long apneas and/or clusters of apneas. The settings on the machine may not be appropriate for your condition. What is the model number of your Yuwell machine? What are the pressure settings?
Trying to get the model

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: Low AHI but still no benefits

Post by Espada » Tue Jun 09, 2020 11:50 am

Pugsy wrote: ↑
Tue Jun 09, 2020 11:44 am
Sleep maintenance insomnia...google it.
The potential list of culprits is miles long. Sleep apnea is but one item on that list.
If you wake often or have trouble going back to sleep when you do...sleep maintenance insomnia.
It's bad sleep quality...and cpap can only fix bad sleep quality when the bad is caused by airway issues.
Omg yess i forgot about that i lost my sleep lab result but i had that condition too but i totally forgot it πŸ˜…πŸ˜… yes i had sleep maintenance doctor told me that it means its hard to get up and hard to get to sleep but he said it might be because its my first time sleeping at the clinic so i forgot about it but yes i have that too thanks for reminding me you are an angel ❀️

User avatar
ChicagoGranny
Posts: 15251
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Low AHI but still no benefits

Post by ChicagoGranny » Tue Jun 09, 2020 12:04 pm

Espada wrote: ↑
Tue Jun 09, 2020 11:38 am
AHI: 2.1
Used time: 8.2 hours
Average pressure: 10
Average leak volume: 7.0
Decent numbers. It sounds like you have machine model YH560 APAP.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: Low AHI but still no benefits

Post by Espada » Tue Jun 09, 2020 2:28 pm

ChicagoGranny wrote: ↑
Tue Jun 09, 2020 12:04 pm
Espada wrote: ↑
Tue Jun 09, 2020 11:38 am
AHI: 2.1
Used time: 8.2 hours
Average pressure: 10
Average leak volume: 7.0
Decent numbers. It sounds like you have machine model YH560 APAP.
Close to mine i flipped the machine and it says YH550A

Norma45
Posts: 71
Joined: Sat May 30, 2020 12:14 am

Re: Low AHI but still no benefits

Post by Norma45 » Tue Jun 09, 2020 2:37 pm

I agree with ChicagoGranny - I would wake up after clusters and could not get to sleep again for a while.
I also (before I got my machine adjusted better) would wake up enough to do things like turn off the machine/pull the mask off without being conscious I was doing so - e.g. pulled out of deeper sleep into something very light but not fully awake.
As I got the mask and machine adjusted better, these don't happen anymore.

Besides doing these little wake ups (maybe without even knowing you are doing them), there are a lot of other things that affect sleep quality and quantity including the ability to relax enough to fall asleep and being able to stay asleep - that are not apnea related. Some are diagnosed with a blood test and might be worth trying.

If you can't get software to look at your charts, using an oximeter might give you some clues if you are having O2 drops which would affect your ability to stay asleep. That might help (with some rudimentary info from your machine of AHIs and maybe what pressures you are actually using) to figure out machine changes to make. But the manufacturer might be able to get you some software (or point to a DR that uses it) that will read the chip. Or even do a one time favor to translate into charts, so you at least know what max and min pressures you use as well as where you sit most of the night.

_________________
MachineMask
Additional Comments: Contec CMS50FW, also Oscar - the select software field wouldn't show me choices

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: Low AHI but still no benefits

Post by Espada » Thu Jun 11, 2020 3:59 am

Pugsy wrote: ↑
Tue Jun 09, 2020 11:44 am
Sleep maintenance insomnia...google it.
The potential list of culprits is miles long. Sleep apnea is but one item on that list.
If you wake often or have trouble going back to sleep when you do...sleep maintenance insomnia.
It's bad sleep quality...and cpap can only fix bad sleep quality when the bad is caused by airway issues.
Update:
I got to my doctor and she gave me a drug to help sleep and at 2nd days it started to get a bit better but here is what i noticed i wake up at those times

1: my wife sleeps after me and she must sleep in my hug so during this process of her unfolding my hands and getting me into position for her to be hugged i get waken up
2: air from the mask hits my face " i tightened the mask for that issue "
3: air in my mouth trying to get out, i get a balloon of air in my mouth try to get out even tho i am 100% sure my mouth is closed
4: sometimes i feel suffocating and when check pressure its between 12 and 14 and i have to reset the machine to be able to sleep again
Current minimum pressure is at 10 and maximum at 20 and my AHI became better at 1.8 and i feel much better today with the drug to help me sleep but what do i do with air stuck in my mouth, 90% of my treatment time the pressure was at 12 sometimes 13.5