Please help me to get better ! ( Attn: Pugsy )

Jas_williams wrote: ↑

Thu Jan 09, 2020 12:52 am

When you get to the profile try clicking the word welcome at the top to get to the welcome tab from there you can import your data

d'oh! <smacks self on forehead>

that's so obvious that i skipped right over it.

thanks, jas.

Thanks Jas - I'm working on OSCAR !

___________-

Hi Pugsy :

As down as I was yesterday - I'm up that much today and cautiously optimistic again- as when I had a 6.5 AHI on Jan 1 . .

An all time best AHI score of 1.6 Events per Hour- last night .

I can hardly believe IT !!!

Here are the specifics ;

FROM CPAP MACHINE :
__________________

Usage 8.39 hrs
Events 1.6
Mask
Humid

Ave use 9.2 hrs
Ave hrs 91.9 hrs

Pressure 9.7
Leak 14l

AHI 11.o
Total AI 10.5
Central AI 9.9
---------------------

RESMED : MyAIR

Score 90 ( lost 10 p0ints on seal or it would have been 100% !

Seal (poor ) 34 ( ????) Even though the CPAP shows a happy face for seal ?

All the rest 100%

____________

New as of last night " FitBit Inspire" ($ 95.00 ) - with Sleep Tracking ( Heart Rate based )

Time Asleep : 7 hrs 44 min

--

Awake : 14 % - 1hr 15 min

REM: 17 % - 1hr 15 min

Light sleep : 62% - 5hrs 34min

Deep Sleep : 7 % - 39min


There is a graph on Fitbit that shows two periods of the deep sleep between 12:30 and 2:30 ( went to bed 12:27)
The rest is mostly a Light Sleep line on graph until about 4:30 -woke up fully- - then a good two hours of more light sleep- from 7 on- chequered with waking and light sleep .

I though I had actually been awake from the time I went to bed until about 4:30 and only then did I sleep for about two hours . But if the Fitbit is correct I slept most in first 3 hours ( all of the 39min of deep ) .

So Pugsy it seems your reccomendations are dead on with the pressure and the changes to EPR- all of which I made exactly as you proposed .KUDOS for you ! What now ? If I could keep this AHI it would be returning after 5 years from the sleep deprived ( with CPAP ) dead. If this could be sustained over some days or longer I would be able to function again . But I'm also concerned to keep at this and improve AHI if that is possible . As mentioned " I'm all in this time ". !

So please do advise what next ( Sleep Yoda) Pugsy .

I'm continuing to day to work on getting OSCAR up . I'm going to seek out some pro help on that . For the moment the Fitbit seems something of a new aid and blessing for the additional data ! It's very confidence building to se the Fitbit report this way on laptop screen -with all the other CPAP data .

The suggestions you made with pressure down and ERP changes seems to have turned the tide ( maybe- I do hope so ! ). Anyway what suggestions ( apart from OSCAR ) - if any- what next -please ?

Most Grateful :

pat

Thanks also to Zonker, Jas , Dog S , and the entire crew !

What to do now.....continue with the new settings for one week and report back.
No other changes in settings at this time. Keep what you used last night.

Ignore the MyAir leak stuff for now unless leaks are waking you often.
Mr Smiley on the LCD screen won't turn to Mr Frowny until you spend over 30 % of the night.
I really need to see the software detailed leak report from OSCAR before I start worrying about the leak as long as you are still seeing Mr Frowny.
Most important thing right now....sleep and feeling decent and a nice low AHI without a truckload of centrals...and we got that at least last night. Let's see if we can get it more nights.
Worrying about leaks is on the back burner for now.

Read this thread of mine
viewtopic.php?f=1&t=108724&p=1036669&hi ... t#p1036669
On the face of it when just looking at the leak numbers things sort of look like the whole night went to hell in terms of leak management but I think you can see that while I did have some large leak....the bulk of the night wasn't bad at all even though the numbers were just plain awful. This is why I need to see your leak graphs before I get all worried about leaks.

Now if leaks are waking you up...we need to work on them because they are disturbing your sleep but otherwise let's worry about them later because I am betting that while you may have some time in large leak....you probably also have a lot more time not in large leak.

Hopefully putting you on the path to better sleep and feeling better was so simple as turning off EPR and reducing those centrals.
They were messing with your sleep....causing arousals and loss of good solid sleep stages which are need for the restorative powers of sleep to work their magic. You weren't getting good quality sleep.

It's nice when a plan has a simple easy to use solution....but lets make sure it continues by watching things for at least a week or so.

One night doesn't make a trend...we need more nights to make a trend.

Hi Pugsy :

Understood much thanks- and will study the link you sent .

I'm at Apple shop and they have now helped me to get Oscar up and running .The Mac approach may be different than non -Mac - I'm still not sure what the agent did ? I can see all the data now on Oscar and can report any detail to you ,that you ask for and that might help . Would it be ok to do that before tackling being able to transmit those pages directly to you ? I don't think I have the resources just today to take on more - although I'm super pleased to have got to what was had last night .I did not mind at all the air leaks - I did not even notice them - entirely unconscious of that !

Are there a few specific items of data /info that I can send you on this thread- later today- that you could consider ? But eventually I'll do the work to get the material directly to you even if that means coming back to the Apple store . Although much better- I'm quite wrung out from the last three days - particularly the "poor "sleeps last few days -save last night .And fully understood - one low HPI night does not -a typical night make !

Same as before - Truly Obliged !

p

I don't urgently need to see anything at the moment.

What you need to learn how to do is take screenshots, save them and then attach them in your post here...that's how we share the detailed reports.

When you have time....read this.
wiki/index.php/Oscar:organize

Right now I just want you to concentrate on sleeping with the machine at these settings and hopefully keep the AHI below 2.0 for the most part. We can worry about evaluating the leak stuff a bit later. The better sleep will help you get the cobwebs out of your brain which will help you be able to learn how to do the graphs and stuff.

We don't just have to do everything right now.

PPP wrote: ↑

Thu Jan 09, 2020 4:02 pm

Hi Pugsy :

Understood much thanks- and will study the link you sent .

pat, you are in the hands of the best adviser here on the forum. go along with her as she is able to get you going without needing to see any oscar stuff for now.

just sort of put oscar on the back burner and follow pugsy's advice to the letter.

you've got this.

Thanks Pugsy and Zonker .

Will get back to you in a week or so !

Very - Much Obliged for all !

pk

Hi Pugsy :

I have tried twice to use the thread you note below in your post of Jan 9 below - but it does not seem to nor is available(" view topic " ...) . Can you help with any other suggestion .

Thanks a lot- as always .

pk

I am not sure why the link doesn't want to load for you

wiki/index.php/Oscar:organize

See if this one above works any better for you or try this one below that isn't quite as detailed but does show the basics

viewtopic/t158560/How-to-post-images-for-review.html

THANKS Pugsy -will read both and when have made sense of that will send OSCAR data - I hope .

p

Hi Pugsy :

Both now opened - the difficulty before was that I tried to input directly off google and , of course , that did not work . But bringing up directly from CPAP site - they worked fine . Again ,I have no skill ( knowledge ) whatsoever re tech . Dealing with seniors ( some at least ) must be doubly frustrating due to very modest , or no no tech capacity . Sorry .

Will now study both - now printed - before attempting to send next day or so , OSCAR data to you .

p

No rush...take your time and do things at your own speed.
I do understand about some people not being maybe on top of the world when it comes to computer stuff.
I can't deal with battery stuff...I tell you my eyes glaze over and my brain shuts down anytime I have to think about battery stuff.
No matter how much I try I just can't wrap my brain around it.
We all have our own strong points and weak points.