New cpap today

Dive Apnea wrote: ↑

Fri Dec 07, 2018 9:01 am

Hi, thanks for commenting. I was wondering about people who look at their data. Like you say your mom wasn't feeling right, so you saw events clustered together. What steps with cpap therapy can be taken after you read this data? I guess you can change pressure? How do you know it's related to the cpap, and may not some physiological, or some other reason.

I value your response, I got to thinking users interpreting their data, then what? Ie, what can you do?

With my mom, we did half a night at her current prescription of 10 to see what was going on. A few nights later, we did another half night with the machine set for 10-13. This way, we could see what the machine wanted to do, but not have it go really high and bother her. I printed both reports and we took them to my sleep doctor along with her previous sleep study info from a few years prior. The sleep doctor looked at at all, and he prescribed a new machine set for 10-15. She has been much happier with it since then. It goes up as needed and prevents the clusters and longer events.

You made a prior comment that 99% receive their machine and are aok. I'd like to know where you get that number. There are thousands of people who get their machine and fail compliance during the first 3 months. If people were so successful with cpap, we wouldn't have to jump through the hoops to get insurance to pay for it. The problem is that doctors really don't know much about the settings and how to use a cpap. They just prescribe it. One night in a sleep lab is not very representative of our every day sleep. And many doctors think that a machine set wide open at 4-20 will magically take care of events. Also, many doctors and DMEs start the machine out at 4, either in the actual settings or with ramp, and that often creates a feeling of suffocation. People start with this, feel like they are suffocating, and rip off the mask. If they don't find a place like this to help them, they will quit. A lot of people are doomed to fail because the doctors and DMEs just don't know any better. They are sent home with a machine that could be the best possible model, yet the settings are so so wrong that they are set up for failure.

Apparently my 3 prior posts are "drowning" this thread which is now into 4 pages at at 15 posts a thread...wow, very easy to drown over 60 posts...surprises me I guess.
The first 2 were legitimate trying to explain things kinds of posts. I tried to play nice. Waste of my time obviously.
The 3rd was my agreement with PR about "have a nice day"...is indeed code for a lot of things and one of the codes is "I am done with you because all you want to do is argue and waste my time"...one of the other codes isn't so nice and I won't say it publicly.
If that constitutes passive aggressive in your mind ...so be it. Some minds have a different take on life which is one of the things in life I have learned I have no control over so I don't waste my time or energy worrying about it.
In general....have a nice day...when I say that it can mean a lot of things but the main thing is I am done chatting with you because it's a waste of my time and energy. And sometimes it simply means what it says...have a nice day. It isn't always code for anything except I really hope the person has a nice day. I did learn a new code though...bless your heart....and I am from the south and I often wish I could say "up yours" but I don't. I might just use it sometime.

A word about passive aggressive comments from anyone.....doesn't violate any of the terms of agreement we agree to when we become members...doubt me...go read them again. When I see them....and trust me they happen here fairly often...I just chuckle and say to myself "children, children" and I move on.
If something said doesn't violate the terms of agreement...I do nothing. It's not in my moderator job description to do anything about passive aggressive chit chat. I can't even do anything about downright blatant ugly aggressive stuff unless profanity is involved and even then I am limited to the context of what was said.
Personally I would prefer it didn't happen because it detracts from the helping stuff but my personal feelings have to be left outside when it comes to actual moderator actions. Contrary to what a lot of people might think....I don't moderate by my personal feelings....I try to stay within the terms of agreement rules. Sometimes there are gray lines...and when that happens I try to think of how Johnny would want to handle the issue..and then that's how I will handle it. I know that he is a lot more lenient than I would be but I try to put myself in his shoes first.

Disagreeing with someone...and even disagreeing forcefully with a bit of an attitude...doesn't violate the terms of agreement.
Being snarky...or passive aggressive or even full blown in your face aggressive....doesn't violate the terms of agreement unless you use the F word and tell someone to go F off or whatever.
Telling someone where to go (the not so nice place) doesn't violate the terms of agreement. It's not nice of course but there's nothing in the terms of agreement about playing nice in that fashion.

This forum is owned by someone other than me. I try to moderate it like he would if he had the time and inclination to sort through all the pettiness that sometimes shows up here. It's like I have said before....it's Johnny's playground and he gets to set the rules and if someone doesn't like how Johnny let's his playground be used...go find another playground. Johnny allows little scuffles and hopes that the children will eventually come to their senses and quit duking it out....and as long as there isn't an innocent bystander getting caught between the blows he will let them duke it out. Yes..it gets really ugly sometimes and it does leave a really bad taste in my mouth when it happens but unless there is collateral damage I will leave the parties to duke it out.
Johnny doesn't like censorship...would rather not have any most likely. I know I have asked to do some stuff that would require some censoring and was politely told "could you do this instead"....that's code for "no".

I suspect that the OP in this thread tried to Foe me and found out that you can't Foe a moderator....I really had a chuckle when I discovered that some time ago. I put myself in those shoes...someone pisses me off and I want to Foe them and ignore them and I can't....would piss me off big time.

We have a lot of very different personalities on this forum and some of them obviously are people we wouldn't want to go down to the corner bar with and have a drink and discuss the world's problems. We can't and won't try to change personalities or dictate unless they get horribly horribly disruptive to the forum as a whole. Just won't happen. This little spat in this thread...doesn't even make the horrible radar scale. Those of you here last year...remember the alphabet boy....he was horribly horrible and he did it in all threads...not just his threads and that's why he is gone.

So for the personalities you wouldn't want to go have a drink with and don't care what they say....use the Foe button.
Believe me...I have a long list of Foes. Most are no longer active on the forum but I leave them there just in case they come back so that I will have a reminder that so and so isn't someone I want to go have a drink with even though I might not remember why.

Oh...for anyone who thinks reporting someone for being snarky or passive aggressive or even down right in your face argumentative....not going to do anything about it unless it violates something in the terms of agreement.
Just because you don't like what they said or most often it's how they said it....doesn't violate the terms of agreements.
Attack the message...but refrain from attacking the messenger and people are pretty much free to say whatever and however they want as long as profanity is omitted.

Pugsy,

I, for one, would like to commend you on the amount of effort you put into the forum, not just as moderator but also trying to help people even when they refuse to accept that help. You have a lot more patience than I do.

I'll second that. Thank you Pugsy for your patience, time and willingness to help. I'm here daily reading threads to learn all I can.

Thanks also to Palerider. Your approach is different but appreciated all the same.