Sleep Test Results - Looking for validation

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
niek125
Posts: 5
Joined: Fri Nov 02, 2018 10:11 pm

Re: Sleep Test Results - Looking for validation

Post by niek125 » Thu Dec 06, 2018 3:29 am

Sorry for the late reply. Finally went in and re-downloaded the data.

In general my AHI is now in between 1.5 and 2.5 which I'm happy with.

Every now and then there is a weird night like the attached example.

Any insights or advice much appreciated.

And now time for some venting:

Some of the things I learned along the way which might be helpful, amusing or comforting for others.

1. I'm traveling in India and I cant find distilled water here so just using bottled water. It seems to cause a bit of extra calcium in the water tank but other than that no issues. When its available in other places like Thailand I do use distilled water.

2; Going to switch from the Wisp to the Amara View Mask as the headband of my Wisp mask is done after 5 months.. I think I washed it too often with Dettol which caused the fabric to deteriorate. I also keep ripping off the mask instead of mindfully and patiently using the clips. Pic attached. Time for change.

3. Tape has been a lifesaver. Just the stickiest one available. I put a cross over my mouth and it works like a charm. I HATE the chin strap with passion and cant sleep with it. Now switching to full face so not needing it anymore, but who knows someone else might be struggling.

4. I bounced straight from CPAP denial to ADHD denial. ADHD, allergies and sleep disorders are often seen together and in a lot of cases ADHD like symptoms can be caused by sleep apnea. I have been dealing with ADHD, anxiety, depression issues since childhood but formally diagnosed at 27. ADHD is associated with a lot of stigma and I found it hard to fully accept that diagnosis. Now with the CPAP I thought "hey, probably it was all just sleep apnea" and in a very ADHD like impulse stopped taking and threw away my medication. Bottom line is no, things are not that simple as I learned the hard way. Still recovering from a bad flare up. :roll:

5. I was very worried about travelling and the CPAP but I created some extra space in my backpack and could even fit the whole setup in my backpack. Together with my family travelled from night train to beach hut all through India and had 0% issues. I did have an incident in an airport in Thailand when I left my backpack and CPAP on one trolley and went through customs and to the taxi's with another trolley (ADHD anyone?) but after a major scene at customs I was allowed to retrieve my dear machine, still on the trolley at the luggage band.... :lol:

6. Additional - just had minor surgery and its important to tell the anesthetists about your CPAP. This required an extra check by a long specialist and they kept a closer look on my breathing during surgery. Its something I could have forgotten to mention easily.
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Pugsy
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Re: Sleep Test Results - Looking for validation

Post by Pugsy » Thu Dec 06, 2018 5:48 am

The weird high AHI ugly night. My first suspect is that probably of good chunk of those flagged events aren't real and are SWJ sleep/wake/junk awake irregular awake breathing flagged by mistake. Looks like a crappy night's sleep in general for some reason and it might not have been all related to those flagged events. Those flagged events might have just been a symptom of crappy sleep.
It's obvious you woke up a lot for some reason or other....so a lot of known awake time there until roughly 22:00 and it appears you probably went to sleep and stayed asleep.

If you get bored and want to learn how to distinguish between awake and asleep flagged events go here and watch the videos.
A lot is talking about flagged centrals/CAs but it really pertains to any flagged event....arousal/awake breathing flagged events aren't real and thus we have to mentally remove them from any pressure needs evaluations. I had a high (for me) AHI not long ago of near 4..and every single one of my flagged events wasn't real...and it was a nice mix of centrals/CAs, OAs and hyponeas. Not one of them was real but I did have a crappy night's sleep because of back pain causing me to toss and turn all night with lots of wake ups trying to get more comfortable in an effort to ease the pain. The high AHI was more of a symptom of just crappy sleep and not related to sleep apnea at all.
http://freecpapadvice.com/sleepyhead-free-software

The Wisp headgear (or actually a lot of the headgears) is not known to survive long with frequent washings in anything. The foam stuff just breaks down too quickly. Maybe a combination of factors involved ...or maybe Planned obsolescence somewhat by the manufacturers because they want us to buy more headgear. I dunno for sure but we want comfort and we want longevity and sometimes the stuff needed for longevity isn't so comfortable...something has to give.
I don't wash my headgear often at all. I don't see the need...doesn't look dirty to me. :lol: If something doesn't look dirty or feel dirty to me...there's a good chance I won't be washing it very often.

And yes...I do understand the desire to want to blame sleep apnea for all your problems including the ADHD stuff but the cold hard fact of life is that sometimes we just have more than one problem to deal with and we can't always put all the blame for what is wrong with is on one problem and expect one solution for fixing all our problems. I see it all the time.
People coming here with all sorts of complaints and screaming "cpap isn't working because I still have all these other symptoms" and come to find out the unwanted symptoms are caused by something that cpap can't fix.
If the problem is caused by something else besides sleep apnea...cpap can't fix it...just like you found out with your ADHD.
There's a mile long list for causes for insomnia....sleep apnea is just one of the potential culprits in that mile long list.
There's a mile long list for fatigue and brain fog or whatever...and sleep apnea is but one item on that mile long list.
We want the machine to fix all our problems and make us superwoman or superman ....and sometimes it is just an unrealistic goal and people have a real hard time coming to grips with that fact. Yeah...a few lucky people it does work that way for them...they are the minority. Most of us will have more than one problem going on and the machine can't do a damn thing for the other problem.
I have first hand experience with this myself so I know about it.

Good job on getting a handle on your situation and your therapy and making it work for you despite traveling all over the world. It's a bit of extra work for sure but it can be done.

The mineral deposits you sometimes get in the water chamber...won't hurt you and are easily removed with a little vinegar or lemon juice when they become too annoying to look at.

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niek125
Posts: 5
Joined: Fri Nov 02, 2018 10:11 pm

Re: Sleep Test Results - Looking for validation

Post by niek125 » Thu Dec 06, 2018 7:07 am

Thanks so much for your input!!! :D :D :D

Let's see how we go and I'll keep you guys updated if anything newsworthy occurs.

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A KLERK
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Re: Sleep Test Results - Looking for validation

Post by A KLERK » Mon Dec 24, 2018 12:40 pm

Sorry for being so late, an American/Canadian friend advised me to make caontact, back in beginning November, but I forgot... Apnea, you know :)
I am Dutch and the rep of SleepyHead back here and I'am the translations coordinator for SH, now having some twenty language-friends all over the world. Could you make a Thai translation?
I'm staff member of the ApneuVereniging too (www.apneuvereniging.nl). Als je nog nederlands kunt spreken, doe dat in een PM :) or arie@jedimark.net will do.
I just want to show you the new Dutch invention of the Sleep Position Trainer (SPT: https://forum.apneuvereniging.nl/viewto ... 8f8baee46d). It acts better than a tennis ball. It trains you and is accepted in the Dutch zorgverzekeringen now.
I'd love to get in touch with you.
Fijne feestdagen toegewenst uit een nat Nederland.

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