Think I'm about to get booted from another forum

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Janknitz
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Think I'm about to get booted from another forum

Post by Janknitz » Fri Jul 20, 2018 5:08 pm

I will consider it an honor!

On a diabetes website someone remarked about her high morning blood sugars and asked if it could be related to her untreated sleep apnea. I responded that it very well could and stated reasons--e.g. stress hormones all night from the apnea, effects on hormones including insulin, ghrelin, human growth hormone.

A moderator (moderator!) jumped in with "strictly following this dietary recommendation (Bernstein approach) may be considered "treating" this problem (sleep apnea) because weight loss often resolves it." (paraphrased) I responded that's not the case, even citing a study where even with significant weight loss only 10% of the subjects were "cured" of their sleep apnea, and a reminder that weight loss is often difficult or impossible with untreated apnea. Another person pointed out that even thin people can have sleep apnea.

To which I got a terse "the point has been made." In other words, it wasn't seen as relevant (and the moderator didn't like being contradicted with facts). :roll:

Guess I'm on the sh*t list now. :D
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
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palerider
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Re: Think I'm about to get booted from another forum

Post by palerider » Fri Jul 20, 2018 5:50 pm

Janknitz wrote:
Fri Jul 20, 2018 5:08 pm
I will consider it an honor!

On a diabetes website someone remarked about her high morning blood sugars and asked if it could be related to her untreated sleep apnea. I responded that it very well could and stated reasons--e.g. stress hormones all night from the apnea, effects on hormones including insulin, ghrelin, human growth hormone.

A moderator (moderator!) jumped in with "strictly following this dietary recommendation (Bernstein approach) may be considered "treating" this problem (sleep apnea) because weight loss often resolves it." (paraphrased) I responded that's not the case, even citing a study where even with significant weight loss only 10% of the subjects were "cured" of their sleep apnea, and a reminder that weight loss is often difficult or impossible with untreated apnea. Another person pointed out that even thin people can have sleep apnea.

To which I got a terse "the point has been made." In other words, it wasn't seen as relevant (and the moderator didn't like being contradicted with facts). :roll:

Guess I'm on the sh*t list now. :D
As a wise person once said "do the right thing, wait to get fired" If you get fired (banned) for doing the right thing, then that place wasn't a good one for you anyway... If you don't get fired... then all is good. :D

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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Goofproof
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Re: Think I'm about to get booted from another forum

Post by Goofproof » Fri Jul 20, 2018 5:55 pm

I would call it the "A" List! The Forum God's speak with False Tongue! Jim

I eat before bed, bad but I sleep better. the last half of the sleep period my sugar level goes up as my shot ( 60 units ) kicks in hard too soon and then runs down, I probably would do better not mixing that dose 30 fast and 30 "N" ! I tend to wake up if under 80 on the meter. Not moving in sleep doesn't burn much fuel before you get up and moving, even awake, I can't move much, so I have to use lots of Insulin just to keep even.
Use data to optimize your xPAP treatment!

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D.H.
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Re: Think I'm about to get booted from another forum

Post by D.H. » Fri Jul 20, 2018 6:29 pm

Janknitz wrote:
Fri Jul 20, 2018 5:08 pm
I will consider it an honor!

On a diabetes website someone remarked about her high morning blood sugars and asked if it could be related to her untreated sleep apnea. I responded that it very well could and stated reasons--e.g. stress hormones all night from the apnea, effects on hormones including insulin, ghrelin, human growth hormone.

A moderator (moderator!) jumped in with "strictly following this dietary recommendation (Bernstein approach) may be considered "treating" this problem (sleep apnea) because weight loss often resolves it." (paraphrased) I responded that's not the case, even citing a study where even with significant weight loss only 10% of the subjects were "cured" of their sleep apnea, and a reminder that weight loss is often difficult or impossible with untreated apnea. Another person pointed out that even thin people can have sleep apnea.

To which I got a terse "the point has been made." In other words, it wasn't seen as relevant (and the moderator didn't like being contradicted with facts). :roll:

Guess I'm on the sh*t list now. :D
Untreated Sleep Apnea can definitely make diabetes (and high blood pressure) worse, and possibly even be the causation. Sometimes, it can be treated with diet alone, but that's in a minority of cases. How many people are being injured by the bad information for that forum?

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grayghost4
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Re: Think I'm about to get booted from another forum

Post by grayghost4 » Fri Jul 20, 2018 8:00 pm

Before you get "Booted", invite that person to come here and discuss it.
If you're not part of the solution you're just scumming up the bottom of the beaker!

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old dude
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Re: Think I'm about to get booted from another forum

Post by old dude » Fri Jul 20, 2018 8:57 pm

D.H. wrote:
Fri Jul 20, 2018 6:29 pm
Janknitz wrote:
Fri Jul 20, 2018 5:08 pm
I will consider it an honor!

On a diabetes website someone remarked about her high morning blood sugars and asked if it could be related to her untreated sleep apnea. I responded that it very well could and stated reasons--e.g. stress hormones all night from the apnea, effects on hormones including insulin, ghrelin, human growth hormone.

A moderator (moderator!) jumped in with "strictly following this dietary recommendation (Bernstein approach) may be considered "treating" this problem (sleep apnea) because weight loss often resolves it." (paraphrased) I responded that's not the case, even citing a study where even with significant weight loss only 10% of the subjects were "cured" of their sleep apnea, and a reminder that weight loss is often difficult or impossible with untreated apnea. Another person pointed out that even thin people can have sleep apnea.

To which I got a terse "the point has been made." In other words, it wasn't seen as relevant (and the moderator didn't like being contradicted with facts). :roll:

Guess I'm on the sh*t list now. :D
Untreated Sleep Apnea can definitely make diabetes (and high blood pressure) worse, and possibly even be the causation. Sometimes, it can be treated with diet alone, but that's in a minority of cases. How many people are being injured by the bad information for that forum?
It isn't clear whether you're saying sleep apnea can be treated with diet in a minority of cases, or if you are referring to diabetes. If it's the latter I'm afraid you're very mistaken. A large percentage of Type II diabetics significantly mitigate their disease with the correct diet and exercise. Problem is, very few diabetics are willing to discover the facts about a very low carb diet and even fewer are willing to follow it.

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jnk...
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Re: Think I'm about to get booted from another forum

Post by jnk... » Sat Jul 21, 2018 8:17 am

I love your posts, personally. But I'm frankly surprised to learn that there are still heavily moderated diabetes forums out there that have not yet banned you for your unflinching truth-telling. :lol:
-Jeff (AS10/P30i)

Accounts to put on the foe list: Me. I often post misleading, timewasting stuff.

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palerider
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Re: Think I'm about to get booted from another forum

Post by palerider » Sat Jul 21, 2018 2:23 pm

Janknitz wrote:
Fri Jul 20, 2018 5:08 pm
I will consider it an honor!

On a diabetes website
Name the place, and they can have a bunch more new members to ban ;)

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Janknitz
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Re: Think I'm about to get booted from another forum

Post by Janknitz » Mon Jul 23, 2018 2:41 pm

It isn't clear whether you're saying sleep apnea can be treated with diet in a minority of cases, or if you are referring to diabetes. If it's the latter I'm afraid you're very mistaken. A large percentage of Type II diabetics significantly mitigate their disease with the correct diet and exercise. Problem is, very few diabetics are willing to discover the facts about a very low carb diet and even fewer are willing to follow it.
The moderator is claiming that there is no reason to treat sleep apnea (except perhaps in the short term) because following the Bernstein diet will "cure" sleep apnea along with reversing diabetes. I'm all for the dietary approach, but she's doing a disservice to others by suggesting there's no need to treat sleep apnea as long as you are following that dietary way of life.
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm

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palerider
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Re: Think I'm about to get booted from another forum

Post by palerider » Mon Jul 23, 2018 2:45 pm

Moderator is ignorant, at best, maybe an idiot.

It's like crapneabored, where the moderators think they know waaaaay more than they do, even though there are disclaimers in their sigs.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Janknitz
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Re: Think I'm about to get booted from another forum

Post by Janknitz » Mon Jul 23, 2018 2:45 pm

jnk... wrote:
Sat Jul 21, 2018 8:17 am
I love your posts, personally. But I'm frankly surprised to learn that there are still heavily moderated diabetes forums out there that have not yet banned you for your unflinching truth-telling. :lol:
There are quite a few who have :lol: :lol: :lol:
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm

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StuDogg
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Re: Think I'm about to get booted from another forum

Post by StuDogg » Mon Jul 23, 2018 2:50 pm

This is rather surprising to me. My daughter is Type 1 so I have browsed lots of sites and participate in some forums. Because diabetics have to deal with so much misinformation, they (sorry for the generalization) are usually open to understanding the facts around conditions. And if OSA is always caused by weight issues, my newly-diagnosed coworker who is about 5'9" 145 lbs had better tell his doctor that his diagnosis was wrong!

Janknitz
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Re: Think I'm about to get booted from another forum

Post by Janknitz » Mon Jul 23, 2018 2:59 pm

palerider wrote:
Sat Jul 21, 2018 2:23 pm
Janknitz wrote:
Fri Jul 20, 2018 5:08 pm
I will consider it an honor!

On a diabetes website
Name the place, and they can have a bunch more new members to ban ;)
Nah, it's a good site in general for diabetics (and people like me who don't wanna be), just that they are getting a little heavy-handed lately with the moderation and clearly some egos involved.

The problem with diabetic groups is that you have to have a little bit of judicious moderation because otherwise everyone appears to be living off faux food crappy treats and newbies get the idea that's a good thing. The Wild West of minimal moderation we enjoy here would be life-threatening to some of the clueless people that go to these diabetic sites. Every day I see questions like "are rice krispies OK on this diet" I want to tear my hair out and scream, but the moderators and many members do answer them while trying to get people to read the book and use the group's resources to understand and learn how to eat.

In an unmoderated forum, many responses would be along the lines of "sure, go ahead and then we'll have one less stupid person on the planet" :lol: :lol: :lol: (My evil alter ego would LOVE to answer someone that way, just once :wink: ) However, I have sometimes gotten the evil eye for gently suggesting that newbies learn to look up the carbs, use their meters, and learn to judge for themselves what they can eat--my "teach a person how to fish" approach is not OK with some moderators. :roll:
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm

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palerider
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Re: Think I'm about to get booted from another forum

Post by palerider » Mon Jul 23, 2018 3:04 pm

Janknitz wrote:
Mon Jul 23, 2018 2:59 pm
my "teach a person how to fish" approach is not OK with some moderators. :roll:
That's a damn shame.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Janknitz
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Re: Think I'm about to get booted from another forum

Post by Janknitz » Mon Jul 23, 2018 3:04 pm

StuDogg wrote:
Mon Jul 23, 2018 2:50 pm
This is rather surprising to me. My daughter is Type 1 so I have browsed lots of sites and participate in some forums. Because diabetics have to deal with so much misinformation, they (sorry for the generalization) are usually open to understanding the facts around conditions. And if OSA is always caused by weight issues, my newly-diagnosed coworker who is about 5'9" 145 lbs had better tell his doctor that his diagnosis was wrong!
Exactly! When another commenter brought up the fact that thin people get OSA, too, the moderator got really offended and shut it down. :lol:

I think at that point she took it more as a criticism of her remark than vital information, that really is important to diabetics.

Some other group I am on with kids that have the same genetic disorder as my daughter and I have posted about how taping her son's mouth helped with snoring and dry mouth. Other parents chimed in what a great idea that is. :( Kids with this issue often have narrowed airways, enlarged tonsils and adenoids, low muscle tone, and reflux. So lots of apnea risk factors. At least I didn't get shut down there for saying these kids MUST be tested before you try taping.
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm