New to the forum

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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SirGaspAlot
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Re: New to the forum

Post by SirGaspAlot » Thu Jul 19, 2018 11:45 am

Its may well come to that very thing. I will do what I have to do indeed. If/when that occurs, perhaps some would be willing to help me with the settings?

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Jas_williams
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Re: New to the forum

Post by Jas_williams » Fri Jul 20, 2018 5:47 am

We’re hear whatever happens

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Pugsy
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Re: New to the forum

Post by Pugsy » Fri Jul 20, 2018 6:07 am

Centrals can go away with time when the centrals are brought on by cpap use.
You came into this therapy with the centrals predating cpap use....

Now...for years for those people with complex sleep apnea and the centrals predated cpap use ...bilevel machines like the one you were given were still tried just in case they worked because sometimes it would work. Hell...sometimes even plain old cpap would work but that was rare.

Chances of success...pretty slim but not totally non existent. A lot would depend on severity and the cause of those centrals that were present before cpap was ever introduced.

There is a small chance that your centrals are more related to the apnea arousals themselves and once the obstructive apnea stuff is removed or significantly reduce that the central stuff will reduce as a by product of reducing the obstructive stuff.
I have seen it happen twice in my experience here...which is of course limited but if I have seen it twice...then the chance is out there. That may be what your doctor is hoping. I dunno...I failed mind reading 101.

What first has to be done though is effectively deal with the obstructive stuff and at the same time greatly improve sleep quality so that there isn't many wake ups at all because the arousals can cause the post arousal centrals.

It's quicker, faster, easier to just use ASV which can treat both but some docs and some insurance just won't do the quicker, faster, easier approach for whatever reason.

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SirGaspAlot
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Re: New to the forum

Post by SirGaspAlot » Fri Jul 20, 2018 9:25 am

Yeah, I don't know why he didn't go straight to an ASV, doesn't make any sense at all.

On my first polysomnography sleep study, once I got the summary of what was found, I started looking into it and recall clearly telling my wife that "I'm guessing I'm getting an ASV"... Not what showed up with the DME. I did sleep VERY well last night, they pushed the software and it was a very very noticeable difference. Ill pull my sleepyhead tonight when I get home and get the deets and load them. It was still at 18 AHI because I took a nap after work yesterday which was recorded VERY poorly at 33.5 ahi and Dreamapper blended my nap in with my nights sleep so as many in here already know, its a very poor representation of whats really going on.

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"If you always do what youve always done then youll always get what you always got"

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SirGaspAlot
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Re: New to the forum

Post by SirGaspAlot » Sun Jul 22, 2018 10:05 am

So I went to that appointment on Wednesday, had the discussion with my Dr. About my CPAP levels, and had the discussion about rearranging my pressure settings. Since then, my centrals have doubled. I got up this morning and read the chip in Sleepyhead and guess what? The thresholds were never changed. Still at 2-4 PS, min 6, max 18. So I manually changed them myself and went to the website of the medical care and found that the summary if my treatment says only that we discussed my obstructive apnea and system hygiene. Nothing else.

I had forgotten that on Wednesday, I had already called the DME out of desperation and they called back that evening. I told them about the Dr. Visit and settings changes and they said they never got any requests from him, but said they'd load it in 12-24 hours after they get it. That was 5 days ago. I'm so glad they take my care so seriously. I've got a referral to a new Dr. already and hope they are better. I was at 20.01 AHI, 9.4 hours sleep (theoretically), 10.38 centrals, 5.61 obstructive and 4.02 hypopneas. And who knows where my oxygen is because its not being monitored. I feel like shit.

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US Navy Retired E6, F-18 Aircraft Inspector/ejection seat inspector/mechanic and all around human being.

"If you always do what youve always done then youll always get what you always got"