Need help, suspect UARS. Want to try APAP - need advice and guidance.

Picked up some Lansinoh and I will check out those videos.

I think where I was using the mask to get used to it before bed sat upright, because of the angle of the hose it was making the mask harder to stay fitted hence I felt the need to overtighten it, and then when I carried that over to bed it ended up being far too tight.

Fingers crossed getting the mask fitted right + the cream will allow me to actually have more success tonight.

Does anyone know, typically is it likely a nasal pillow too small will cause more irritation/soreness than one that's too big?

Last night I tried the M, I'm tempted to have a go with the L tonight.. It respects I think the L almost does feel comfier, it just seems it might be a little more likely to leak.

It is always recommended to fit any mask while lying down.

canyouhearmeaya wrote: ↑

Tue Jun 05, 2018 12:37 pm

the hose

Hose Management
Hose management needs to be given some thought. When you are lying in bed, the hose should not be pulling on the mask; there should be some slack.

Thought should be given to the hose position when the user changes positions in bed. Slack in the hose should be maintained when positions are changed.

Another fail of a night. Spent over 3 hours trying to fall asleep with it on, ended up having to take it off as I couldn't fall asleep.

The nose pain went away, with a looser mask and the cream which is good.

I'm not sure what it is stopping me sleeping.. I think it may be partly the noise, is it normal to hear the machine make noise with every breath? Like, hearing it suck the air in? I find it very hard to sleep with any kind of noise or distraction, so I do wonder if that's part of the problem. I may have to try using ear plugs.

The other problem is that I just don't feel like I'm finding a natural breathing rhythm with it. I'm constantly concious of my breathing where it feels forced, and therefor can't seem to let my mind wander to fall asleep. I tried taking EPR off, as exhaling still didn't feel that comfortable, just out of curiosity to see if it was even working, and that felt horrible so I presume EPR is working.

I presume the data collected during those 3 hours is entirely useless if I didn't actually sleep at all? As in, it won't provide me with any information on how to possibly better set it up?

Feeling so frustrated by this. I feel like my sleep is just becoming more messed up. Any suggestions?

You are correct. If you aren't asleep the data is useless.

Put your fingers in your ears and try breathing with the machine and mask on...tell me if the breathing noise level lessens, worsens or stays the same??
Go into the clinical menu area and look around to see if you have and option call "Response"....if you do, change it from standard to soft.

Tell me how you have the hose routed and close is the machine to your head. Does it lay on the bed?

Pugsy wrote: ↑

Wed Jun 06, 2018 5:23 am

You are correct. If you aren't asleep the data is useless.

Put your fingers in your ears and try breathing with the machine and mask on...tell me if the breathing noise level lessens, worsens or stays the same??
Go into the clinical menu area and look around to see if you have and option call "Response"....if you do, change it from standard to soft.

Tell me how you have the hose routed and close is the machine to your head. Does it lay on the bed?

With my fingers in my ears I can't hear the machine, just my own breathing which is better. Is it normal to hear the machine?

https://vocaroo.com/i/s1DiZki0rHZF <--- Just recorded that, probably makes it sound a tad harsher than it is because of the mic but you get the idea.. It's audible.

The hose I have led on the bed to ensure its not tugging on the mask and pulling it away from it, if I'm facing away from the machine (Which is the usual position I'd fall asleep in) I route it along the top of my matress by the headboard and then it come around to my face. Machine is on table next to bed, so probably 75cm away.

I can't seen an option called response.

Mode: Autoset for Her (Maybe this is the equivalent to what you're referring to?)
Min. Pressure: 6.0
Max Pressure: 10.0
Mask: Pillows
Ramp Time: Off
EPR: On
EPR Type: Full Time
EPR Level: 3
Climate Control: Auto
Tube Tempt: 27 Celcius
AB Filter: No
Essentials: On
Smart Start: On

Those are my settings atm. (Airsense 10 Auto For her)

If you put it into:

Mode: Autoset (vs 'Autoset for Her')
Then the 'Response' option appears in the settings.. The options are Standard and Soft.

Is putting it into regular Autoset & Soft the same as just using the Autoset for her function in the first place?

No, the choice of "soft" or "standard" has nothing to do with the algorithm that the machine uses depending on which mode.
It just affects the breathing response when it changes from inhale to exhale. Try it, see if it makes any difference in how you feel with the exhale or the machine noise.

My machine doesn't make that noise. Is that inhale or exhale?

Sometimes the hose laying on the bed causes machine noise to be conducted to the ears. Can you try routing the hose up overhead so it isn't laying on the mattress just to see if that helps with the machine noise?

Also try putting the machine on something to absorb sound. Like an old mouse pad or a towel or whatever. I use a old towel on a wooden table closer to my mattress than yours is.

Pugsy wrote: ↑

Wed Jun 06, 2018 6:05 am

No, the choice of "soft" or "standard" has nothing to do with the algorithm that the machine uses depending on which mode.
It just affects the breathing response when it changes from inhale to exhale. Try it, see if it makes any difference in how you feel with the exhale or the machine noise.

My machine doesn't make that noise. Is that inhale or exhale?

Sometimes the hose laying on the bed causes machine noise to be conducted to the ears. Can you try routing the hose up overhead so it isn't laying on the mattress just to see if that helps with the machine noise?

Also try putting the machine on something to absorb sound. Like an old mouse pad or a towel or whatever. I use a old towel on a wooden table closer to my mattress than yours is.

Oh okay seems odd it will only present that option when not in 'For her' mode, that's why I wondered. I'll try it.

As far as I can tell, the machine has made it in every mode I've put it in, doesn't matter how close or far I am, sat down, led down.. Even if you led as far from it as possible, you'd still hear it. It just sounds like the air being sucked into the machine I presume from the atmosphere to go into the mask, that's what I assume it is..

Can you hear your machine at all? I'm wondering if the machine is duff? It was a brand new and sealed box direct from Resmed..

No, I can't really hear the machine at all. I have to lay my head down close to the machine so that my ear is about an inch or so away from the machine to hear the machine itself.

Now I do get conducted noise of my own breathing through the hose. Those Darth Vader sounding inhale/exhale things but that's different from machine noise. I get no machine motor noise upon inhale or exhale.
Conductive noise is usually made worse by putting the fingers in the ears.

Do try putting the machine on a towel or mouse pad. I haven't tried mine without it but I will later. It's just something I have always done out of habit for years now with all my machines so I don't know if that's why my machine is nearly silent or not.

Pugsy wrote: ↑

Wed Jun 06, 2018 6:17 am

No, I can't really hear the machine at all. I have to lay my head down close to the machine so that my ear is about an inch or so away from the machine to hear the machine itself.

Now I do get conducted noise of my own breathing through the hose. Those Darth Vader sounding inhale/exhale things but that's different from machine noise. I get no machine motor noise upon inhale or exhale.
Conductive noise is usually made worse by putting the fingers in the ears.

Do try putting the machine on a towel or mouse pad. I haven't tried mine without it but I will later. It's just something I have always done out of habit for years now with all my machines so I don't know if that's why my machine is nearly silent or not.

Changing the mode made no different to noise (into soft from 'for her'). Removing the humidifer does actually seem to make it quieter... but it's still audible.. Putting it on a towel made no difference.

It's coming from where it sucks air in.. if you put your ear near it you can hear it sucking the air in, and then everytime I breathe it's made audible.

If you can't hear any noise coming from the machine where it's sucking air in, then I presume there must be something wrong with this..

I assume there is a filter in place?

How much water in the water chamber?

Do you have the end cap thing for the humidifier? Is that what you used to check the machine noise level without humidifier?
The humidifier is built in. Only the water chamber is removable.

Did you check the machine run hours to confirm that it was brand new?

Pugsy wrote: ↑

Wed Jun 06, 2018 6:30 am

I assume there is a filter in place?

How much water in the water chamber?

Do you have the end cap thing for the humidifier? Is that what you used to check the machine noise level without humidifier?
The humidifier is built in. Only the water chamber is removable.

I didn't check the run hours... and I cleared the data on the first day before using it on the first night as I'd been using it on and off during the day and didn't want to skew the data. GRR. I presume I've lost that now?

There is a filter, I tried removing the filter, just as noisy. Chamber is now half full, however originally I filled it to the fill line (and not over) and was just as noisy.

Sorry that's what I mean, when I remove the water chamber and put the end cap in, it is quiter. But still audible. Just less amplified.

The noise is definitely coming from the part of the machine that sucks air in.

I'm just uploading a video to show you a bit better!