Need help, suspect UARS. Want to try APAP - need advice and guidance.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
canyouhearmeaya
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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by canyouhearmeaya » Mon Jul 23, 2018 9:30 am

Pugsy wrote:
Mon Jul 23, 2018 6:39 am
Whatever you do...make one change only at a time and be prepared to stick with that change for 1 week before changing anything else unless the results are just disastrous for some reason or other.

Keep a detailed log of how you feel you slept...hours slept...number of wake ups (approx) and how you feel in general.
Along with documentation of any extra stuff you might be doing for leak control. You need to be able to look back at the log and make accurate comparisons and don't rely on your memory.

My suggestion...work on leak control and minimizing those wake ups first because without the leak control being optimized it's really futile to go changing all that other stuff.
If the leaks didn't wake you up...I wouldn't worry about them..for the most part they are well within the machine's ability to compensate.
Yeah it's a great idea. Starting a little log on excel now, with last nights results and todays observations being the first entry.

The other thing I just thought is, I have the 'for her' option to try again, as I'm currently running in regulat 'Auto' on the 'Comfort' setting.

I definitely feeling much more positive about all of this now, even if I'm yet to see the benefits. Just being able to use the machine is huge. I've also set up ResMeds 'MyAir', so will be interesting to see how the data compares in that tomorrow, and if it shows anything different to Sleepyhead.

It's frustrating having to wait for the day to pass to get to night time, I actually look forward to bed time now as I feel like i'm working toward something!! But, we should never wish our time away eh. :)


Edit: Just realised sleepyhead has it's own Note function!! With an energy meter too, brilliant! Scrap that excel sheet then! :lol:

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palerider
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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by palerider » Mon Jul 23, 2018 11:23 am

canyouhearmeaya wrote:
Mon Jul 23, 2018 6:15 am
Pugsy wrote:
Mon Jul 23, 2018 5:58 am
Quit worrying about the centrals.
I'm not worried about them, just good to see them go down. Ultimate aim is as little disruption as possible, right?
Centrals are minimally disruptive, if at all.

All a central is, is your body deciding it doesn't need to breathe for 10 seconds or longer. You may be turning over, you may be transitioning from awake breathing to asleep breathing.

If you stick an oximeter on your finger, and hold your breath till you get that "I want to breathe now" feeling, you'll find that your oxygen level is barely affected... that's all the occasional central means.... nothing.

Obstructives, however, *ARE* disturbing, because you're fighting to get past that blockage.

Centrals are like holding your breath for a bit... obstructives are like pinching your nose shut while TRYING to breathe...

Centrals only become a problem when they're so frequent that your oxygen level starts to decline because they're coming one after another.

In essence, just take Pugsy's advice and don't worry about them, don't think about them, until they get up well over 5 CAI.

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by canyouhearmeaya » Mon Jul 23, 2018 11:28 am

palerider wrote:
Mon Jul 23, 2018 11:23 am
canyouhearmeaya wrote:
Mon Jul 23, 2018 6:15 am
Pugsy wrote:
Mon Jul 23, 2018 5:58 am
Quit worrying about the centrals.
I'm not worried about them, just good to see them go down. Ultimate aim is as little disruption as possible, right?
Centrals are minimally disruptive, if at all.

All a central is, is your body deciding it doesn't need to breathe for 10 seconds or longer. You may be turning over, you may be transitioning from awake breathing to asleep breathing.

If you stick an oximeter on your finger, and hold your breath till you get that "I want to breathe now" feeling, you'll find that your oxygen level is barely affected... that's all the occasional central means.... nothing.

Obstructives, however, *ARE* disturbing, because you're fighting to get past that blockage.

Centrals are like holding your breath for a bit... obstructives are like pinching your nose shut while TRYING to breathe...

Centrals only become a problem when they're so frequent that your oxygen level starts to decline because they're coming one after another.

In essence, just take Pugsy's advice and don't worry about them, don't think about them, until they get up well over 5 CAI.
I like that explantation, makes more sense of them now, thanks! :D

How do my flow limitations look? I know previously it was mentioned they possibly looked a little high. I know it's difficult in my situation as my AHI was only 1 to begin with, yet my RDI was 15 so I'm trying to improve something which the machine won't necessarily measure, and thus i'm going to have to rely more heavily on subjective feeling (which is fine, as ultimately thats my only goal, to feel good!)

But I wonder if flow limitations could be a good metric for me to observe? I.e. will aiming to reduce my FL potentially correlate to better therapy? (Given that my initial diagnosis was 'upper airway flow limitation'.

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by palerider » Mon Jul 23, 2018 11:38 am

canyouhearmeaya wrote:
Mon Jul 23, 2018 11:28 am
:D
How do my flow limitations look? I know previously it was mentioned they possibly looked a little high. I know it's difficult in my situation as my AHI was only 1 to begin with, yet my RDI was 15 so I'm trying to improve something which the machine won't necessarily measure, and thus i'm going to have to rely more heavily on subjective feeling (which is fine, as ultimately thats my only goal, to feel good!)
They're not great, and they're probably driving your pressure increases. (I say probably because you didn't include the snore chart).

If it were me, (and not wanting to step on Pugsy's toes), I'd look at your pressure strip for a few days, see where it gets to that point that the pressure jumps up, and set the minimum just above that point, so that you can keep the pressure from getting down to where something happens that results in needing more pressure.

The last chart is pretty regular, something happens, pressure goes up, stuff stops happening, machine says "Ok, time to get back down to the baseline that I've been told to use" and then at some point, pressure gets low enough that you have more snores (maybe) or flow limitations... and the cycle starts over with pressure going up... I like to set the minimum *above* where that happens, so that things are more even. (and more even usually means less disturbances).
canyouhearmeaya wrote:
Mon Jul 23, 2018 11:28 am
But I wonder if flow limitations could be a good metric for me to observe? I.e. will aiming to reduce my FL potentially correlate to better therapy?
Probably.

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by canyouhearmeaya » Mon Jul 23, 2018 11:49 am

palerider wrote:
Mon Jul 23, 2018 11:38 am
canyouhearmeaya wrote:
Mon Jul 23, 2018 11:28 am
:D
How do my flow limitations look? I know previously it was mentioned they possibly looked a little high. I know it's difficult in my situation as my AHI was only 1 to begin with, yet my RDI was 15 so I'm trying to improve something which the machine won't necessarily measure, and thus i'm going to have to rely more heavily on subjective feeling (which is fine, as ultimately thats my only goal, to feel good!)
They're not great, and they're probably driving your pressure increases. (I say probably because you didn't include the snore chart).

If it were me, (and not wanting to step on Pugsy's toes), I'd look at your pressure strip for a few days, see where it gets to that point that the pressure jumps up, and set the minimum just above that point, so that you can keep the pressure from getting down to where something happens that results in needing more pressure.

The last chart is pretty regular, something happens, pressure goes up, stuff stops happening, machine says "Ok, time to get back down to the baseline that I've been told to use" and then at some point, pressure gets low enough that you have more snores (maybe) or flow limitations... and the cycle starts over with pressure going up... I like to set the minimum *above* where that happens, so that things are more even. (and more even usually means less disturbances).
canyouhearmeaya wrote:
Mon Jul 23, 2018 11:28 am
But I wonder if flow limitations could be a good metric for me to observe? I.e. will aiming to reduce my FL potentially correlate to better therapy?
Probably.
That makes sense. With regards to snores, they're non-existent, last nights data showed 2 tiny little snore marks, and they don't appear to be associated with any pressure increase. Stupid question... but are snores.... snoring..? I ask because, I don't really ever snore at all - which would make sense as to why I have no snores. :lol:

Your line of thinking is the same wavelength I was on, again no discredit to Pugs. I started at 7 on a whim, with no rhyme or reason, I just figured it was best to start at a lowish pressure, see the dat and go from there. Given that it seems for most of the night my pressure is at 8 or above, I figured it would be worth just trying to start at 8 and see how I fair. I'm going to bump it up to 8 tonight, fingers crossed for a better result.

My max is currently set at 11, again for no rhyme or reason whatsoever - if I'm increasing my min by 1, is it worth bumping the max up 1 to 12 also?

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palerider
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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by palerider » Mon Jul 23, 2018 11:56 am

canyouhearmeaya wrote:
Mon Jul 23, 2018 11:49 am
That makes sense. With regards to snores, they're non-existent, last nights data showed 2 tiny little snore marks, and they don't appear to be associated with any pressure increase. Stupid question... but are snores.... snoring..? I ask because, I don't really ever snore at all - which would make sense as to why I have no snores. :lol:
Snores are flagged from a wavyness at the top of the inhalation curve on the flow strip, basically, a specific type of wiggle where their should be a smooth curve line... flow limitations are other deformations of that smooth curve. so, yeah, snores are pretty much... snores.
canyouhearmeaya wrote:
Mon Jul 23, 2018 11:49 am
Your line of thinking is the same wavelength I was on, again no discredit to Pugs. I started at 7 on a whim, with no rhyme or reason, I just figured it was best to start at a lowish pressure, see the dat and go from there. Given that it seems for most of the night my pressure is at 8 or above, I figured it would be worth just trying to start at 8 and see how I fair. I'm going to bump it up to 8 tonight, fingers crossed for a better result.

My max is currently set at 11, again for no rhyme or reason whatsoever - if I'm increasing my min by 1, is it worth bumping the max up 1 to 12 also?
I mention Pugsy because ... frankly, I haven't been following your thread much.. She's been advising you, and she's *excellent*, so I wasn't sticking my nose in. I didn't know if she'd advised keeping the min low for other reasons that I wasn't aware of, that's the only reason I said that.

Unless you're having some kind of problem with high pressure, (aerophagea, etc) then the max pressure is irrelevant. I'd set it to 20 and forget it.

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by canyouhearmeaya » Mon Jul 23, 2018 11:57 am

Looking at my data, it certainly seems that there's a direct correlation between pressure and FLs. When FLs go up, pressure is there with it.

Stupid question: but I presume the pressure increases to FIX Flow limitations? So, pressure increases wouldn't be CAUSING the increase in Flow Limitations, would it?

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by palerider » Mon Jul 23, 2018 1:03 pm

canyouhearmeaya wrote:
Mon Jul 23, 2018 11:57 am
Looking at my data, it certainly seems that there's a direct correlation between pressure and FLs. When FLs go up, pressure is there with it.

Stupid question: but I presume the pressure increases to FIX Flow limitations? So, pressure increases wouldn't be CAUSING the increase in Flow Limitations, would it?

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by canyouhearmeaya » Mon Jul 23, 2018 1:06 pm

palerider wrote:
Mon Jul 23, 2018 1:03 pm
canyouhearmeaya wrote:
Mon Jul 23, 2018 11:57 am
Looking at my data, it certainly seems that there's a direct correlation between pressure and FLs. When FLs go up, pressure is there with it.

Stupid question: but I presume the pressure increases to FIX Flow limitations? So, pressure increases wouldn't be CAUSING the increase in Flow Limitations, would it?
?

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by palerider » Mon Jul 23, 2018 1:23 pm

canyouhearmeaya wrote:
Mon Jul 23, 2018 1:06 pm
palerider wrote:
Mon Jul 23, 2018 1:03 pm
canyouhearmeaya wrote:
Mon Jul 23, 2018 11:57 am
Looking at my data, it certainly seems that there's a direct correlation between pressure and FLs. When FLs go up, pressure is there with it.

Stupid question: but I presume the pressure increases to FIX Flow limitations? So, pressure increases wouldn't be CAUSING the increase in Flow Limitations, would it?
?
I typed up a good explanation... I dunno where it went.

If you zoom in, you'll see your breath shapes get irregular, the FL chart start to spike, and pressure start to go up, till breath shapes normalize.

Then pressure will start to go back down to the minimum, because the machine figures whoever set the min knows what they're doing. (An assumption not born out by your average sleep doctor).

Pressure goes up because of apneas, hypopneas, snores and... flow limitations.

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by canyouhearmeaya » Mon Jul 23, 2018 1:26 pm

palerider wrote:
Mon Jul 23, 2018 1:23 pm
canyouhearmeaya wrote:
Mon Jul 23, 2018 1:06 pm
palerider wrote:
Mon Jul 23, 2018 1:03 pm
canyouhearmeaya wrote:
Mon Jul 23, 2018 11:57 am
Looking at my data, it certainly seems that there's a direct correlation between pressure and FLs. When FLs go up, pressure is there with it.

Stupid question: but I presume the pressure increases to FIX Flow limitations? So, pressure increases wouldn't be CAUSING the increase in Flow Limitations, would it?
?
I typed up a good explanation... I dunno where it went.

If you zoom in, you'll see your breath shapes get irregular, the FL chart start to spike, and pressure start to go up, till breath shapes normalize.

Then pressure will start to go back down to the minimum, because the machine figures whoever set the min knows what they're doing. (An assumption not born out by your average sleep doctor).

Pressure goes up because of apneas, hypopneas, snores and... flow limitations.
Ah okay great, so in which case FL maybe my best metric to guage progress from an objective standpoint during this process. :D

Given my AHI was only 1 to begin with, and my snores are virtually non-existent, I guess it makes sense to reason that FLs are my primary issue.

Will be interesting to see how my therapy developes with this approach!

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by Pugsy » Mon Jul 23, 2018 9:58 pm

Hey, if you noticed I didn't suggest a certain pressure. I said pick something and stick with it for a week.
Make only one change a time. Don't go changing things willy nilly nightly. You will just be chasing your tail.

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by palerider » Mon Jul 23, 2018 10:24 pm

Pugsy wrote:
Mon Jul 23, 2018 9:58 pm
Hey, if you noticed I didn't suggest a certain pressure. I said pick something and stick with it for a week.
Make only one change a time. Don't go changing things willy nilly nightly. You will just be chasing your tail.
What she said... Sleep varies from night to night... work with averages, not a single night's results.

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by mtnguyen » Tue Jul 24, 2018 5:49 am

reason why you mouth breathe is because your nasal airway is narrow, narrow nasal airway dries up your turbinate and makes it swells, I also have UARS and the treatment for me to reduce nasal resistance is palatal expander, according to research, using palatal expander reduce 35% of nasal resistance and 59% of sleep apnea patients find it easier to breathe and reduce sleep apnea, hope you were on the same track as me, I lived with sleep apnea for 15 years bc my mother is ignorant and stupid for not fixing my teeth, after seeing a huge medical bills for orthodontic even though she totally can afford it, she chose not to fix my teeth... if my mom were a teacher, she will teach the course name-IDGAF101-"how to ruin your kid's life 101", also breathe through your mouth until your nasal airway is no longer narrow, or you will suffer with constant fatigue, or if you want to take a risk, medrol 16mg will help with your nasal congestion, you will feel much better but your skin and hair will dry and flaky, for me fluticasone or mometasone nasal spray don't help at all, if you fix your narrow nasal airway you will have to sleep with CPAP for the rest of your life. That's all I have to say...
This is the research, of if you are afraid of virus, google reduce nasal airway resistance
https://academic.oup.com/ejo/article-pd ... 260397.pdf

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Re: Need help, suspect UARS. Want to try APAP - need advice and guidance.

Post by canyouhearmeaya » Tue Jul 24, 2018 7:35 am

mtnguyen wrote:
Tue Jul 24, 2018 5:49 am
reason why you mouth breathe is because your nasal airway is narrow, narrow nasal airway dries up your turbinate and makes it swells, I also have UARS and the treatment for me to reduce nasal resistance is palatal expander, according to research, using palatal expander reduce 35% of nasal resistance and 59% of sleep apnea patients find it easier to breathe and reduce sleep apnea, hope you were on the same track as me, I lived with sleep apnea for 15 years bc my mother is ignorant and stupid for not fixing my teeth, after seeing a huge medical bills for orthodontic even though she totally can afford it, she chose not to fix my teeth... if my mom were a teacher, she will teach the course name-IDGAF101-"how to ruin your kid's life 101", also breathe through your mouth until your nasal airway is no longer narrow, or you will suffer with constant fatigue, or if you want to take a risk, medrol 16mg will help with your nasal congestion, you will feel much better but your skin and hair will dry and flaky, for me fluticasone or mometasone nasal spray don't help at all, if you fix your narrow nasal airway you will have to sleep with CPAP for the rest of your life. That's all I have to say...
This is the research, of if you are afraid of virus, google reduce nasal airway resistance
https://academic.oup.com/ejo/article-pd ... 260397.pdf
I don't disagree with what you're saying. You should look into 'Mike Mew', he's an orthodontist that specialises in this sort of stuff. I totally buy in to his theories. Mouth breathing CAUSES a narrow pallete, so mouth breathing until you fix your nasal resistance is actually somewhat paradoxical. The 2 biggest causes are incorrect tongue posture, and an incorrect swallow. If you mouth breathe, you CAN'T have correct tongue posture, it's physically impossible. The tongue at rest should stay on the roof of your mouth, and when you swallow it should be done with the tongue pressing up against the pallette.

People who mouth breathe have a tongue that rests lower in their mouth, they also usually swallow with their face muscles.. In a correct swallow, nothing should move but your throat/adams apple - you should see virtually 0 movement in the actual face. It's the tongue position that encourages correct cranofacial developement.. When the tongue rests on the roof, and everytime you swallow, you're applying pounds of force onto your structure, this encourages the face to grow longtindunal and horizontally. Hence you'll notice that people that mouth breathe, especially from a younge age often have longer faces, narrower jaws and often sunken chins.

Until 1 month ago, I had incorrect tongue posture. I've now corrected it.. The debate is, can tongue posture alone in adulthood influence cranofacial development enough to correct the issue? I'd argue yes, although changes will happen more radidly in younger years, adults still see changes in structure.. Look at a stroke victim, or steven hawkin. Once the muscle balance changes, their cranofacial development changed.

Using a palattal expander is all good and well, but if you're still maintaining poor tongue posture, as soon as you remove that, it's likely you'll revert backwards. UNLESS you correct tongue posture, as the tongue fundamentally is what determines facial development.

I do think you need to re-evaluate how you are looking at the process. Mouth breathing CAUSES the issue, the issue doesn't happen spontaneously (in 90+% of people anyway.) It's not hereditary, they've shown that in studies of pure bread inuits. It's largely due to environmental factors.

You'll also often notice a correlation, I have found this in my own circle of friends and family. ALL of my friends who have allergies, have narrower faces, and mouth breathe more than they should to some degree. It's a self perpetuating cycle. Mouth breathing CAUSES allergies to a large degree, beacuse you don't filter out the pollutants, that causes congestion, which then causes you to mouth breathe further.. As that happens over time, your facial development goes wrong (and grows downwards rather than out and across), which then further narrows the airway.

But the way you're talking about it (and correct me if I'm wrong) is that it seems you think that facial development happens of no reason, and that mouth breathing is the consequence of it. Where as I'd argue (as would Dr Mike Mew) that the reverse is true.

WHY we start mouth breathing in the first place, is the question. It can be due to allergies, bad habits, you name it. He also argues the reason we swallow incorrectly is because of the types of food we eat. Western diet is full of soft foods, which require little chewing (reducing masseter and other jaw muscular development) and allowing us to swallow incorrectly.

So my plan is: to maintain good tongue posture, day and night, and also continue with CPAP for now - and I HOPE that over time my new tongue posture will encourage my face to develope more correctly, opening up my airways, and potentially solving the issue - however this is a process that will take place over time. The other issue is tongue tone. The tongue is a muscle, and when postured correctly, is effectively being 'worked' more heavily and will improve tone over time.. Those that mouth breathe effectively have a 'lazy' tongue, it's in a rested position more often than not, and therefor is more likely to collapse backwards during sleep. Correct tongue posture and swallowing anchors the tongue to the roof of your mouth. You'll notice that once you learn to swallow correctly, each time you swallow the tongue is literally suctioned to the roof of your mouth.. so when you start doing that unconciously day and night, your tongue is anchored forward and doesn't collapse back so much - hence why the numerous studies done on orofacial myotherapy show improvement in AHI scores, the issue is they're often only done over a short period of time, and to see enough improvement to solve the issue (if possible) will take longer than 3 months in a grown adult.

Ofc if you believe the process happens otherwise, that's fine. Everyone is going to have their own theories that resonate with them, but Mike Mew's work to me makes TOTAL sense and correlates with my life.

Ofc there are other reasons Sleep Apnea and SDB can occur, this is only one element of it. However my guess is that patients especially with UARS, this is most likely the cause (hence why UARS sufferers often respond better to MAD devices, because pulling the mandible forward brings the tongue forward, and often in UARS the tongue is the primary cause of obstruction.)

But I suspect if you're using a palletal expander, you almost certainly won't have correct tongue posture, as the device is going to prevent your tongue resting correctly on the hard pallete, and you'll continue to swallow incorrectly too. So although it might force your facial development to change in the right way, in the absence of the device that will revert unless the tongue is there to maintain it.