New Beginnings are terrifying!
Re: New Beginnings are terrifying!
Hi Rebamom,
I’m a newbie to CPAP. My sleep study was a nightmare too and I spent most of the next day dozing or in a daze. I almost had a panic attack when I tried a full face mask, and I haven’t had a panic attack in decades. I worried to death about “having to” use one of those “stupid machines” and put off getting it as long as I reasonably could, knowing my doc would keep nagging.
I’m about two months in now and cannot imagine not using it. I look forward to using it. I even enjoy the ritual of washing the pieces. At first I was thinking my improvement was not dramatic, but in retrospect I think it is at least somewhat dramatic. I love actually SLEEPING when I’m I’m bed .
There are many mask styles and different hose configurations, so if you don’t get it right the first time, do not give up.
I hope you’re able to get going soon so you can start working on the right configuration for you.
Susan
I’m a newbie to CPAP. My sleep study was a nightmare too and I spent most of the next day dozing or in a daze. I almost had a panic attack when I tried a full face mask, and I haven’t had a panic attack in decades. I worried to death about “having to” use one of those “stupid machines” and put off getting it as long as I reasonably could, knowing my doc would keep nagging.
I’m about two months in now and cannot imagine not using it. I look forward to using it. I even enjoy the ritual of washing the pieces. At first I was thinking my improvement was not dramatic, but in retrospect I think it is at least somewhat dramatic. I love actually SLEEPING when I’m I’m bed .
There are many mask styles and different hose configurations, so if you don’t get it right the first time, do not give up.
I hope you’re able to get going soon so you can start working on the right configuration for you.
Susan
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: DreamWear Nasal CPAP Mask with Headgear |
Re: New Beginnings are terrifying!
SusanWink - thank you so much! I can't get quite as excited right now but maybe one day. I should pick up my machine by Tuesday and will just do it. I am researching today how I can rearrange my room to use it, put it away quickly in the morning, etc. so I can make it a part of my daily routine. Hopefully by scheduling it into a routine, will make it easier to keep using. God Bless You and all those who are helping!
_________________
Machine: DreamStation Auto CPAP Machine |
Mask: DreamWear Nasal CPAP Mask with Headgear - Fit Pack (All Cushions Included with Medium Frame) |
Humidifier: DreamStation Heated Humidifier |
Re: New Beginnings are terrifying!
Why 'put it away quickly' in the am? I think most of us just leave the machine where it is (or in a bedside drawer) and cover the mask somehow. It's nothing to be ashamed of.
_________________
Mask: Ultra Mirage™ Full Face CPAP Mask with Headgear |
Humidifier: IntelliPAP Integrated Heated Humidifier |
Re: New Beginnings are terrifying!
I leave my machine out all the time so I will have no excuses not to use it
I bought one of those fabric storage cubes that match my room. Just wind the hose around the machine and set the cube down over it. Keeps dust off and looks great.
I bought one of those fabric storage cubes that match my room. Just wind the hose around the machine and set the cube down over it. Keeps dust off and looks great.
Re: New Beginnings are terrifying!
Thanks Julie and the answer is I could leave it out for the next 12 days, then I will be moving into my new home. I will need to put it up there as I purchased this home to be closer to family - who if I know them will be stopping in unannounced for a couple weeks (gotta love them though). At this point not ready to explain it to family or friends, especially my grandkids. Right now, just a comfort/privacy thing.
_________________
Machine: DreamStation Auto CPAP Machine |
Mask: DreamWear Nasal CPAP Mask with Headgear - Fit Pack (All Cushions Included with Medium Frame) |
Humidifier: DreamStation Heated Humidifier |
Re: New Beginnings are terrifying!
I guess it depends upon how old your grandkids are. My daughter is eight and she understands that mommy needs the machine to stay healthy. She doesn't touch it. It also helps that a classmates' father uses a CPAP machine and mask too, so it is no big deal.Rebamom wrote: ↑Sun Mar 11, 2018 11:46 amThanks Julie and the answer is I could leave it out for the next 12 days, then I will be moving into my new home. I will need to put it up there as I purchased this home to be closer to family - who if I know them will be stopping in unannounced for a couple weeks (gotta love them though). At this point not ready to explain it to family or friends, especially my grandkids. Right now, just a comfort/privacy thing.
I also purchased a pawprint Snuggle Hose hose cover to make it appear less scary looking. https://www.snugglehose.com/store/p96/White_Paws.html
The added benefit is the hose cover is soft on your skin.
_________________
Machine: DreamStation BiPAP® Auto Machine |
Mask: ResMed AirFit™ F20 Full Face CPAP Mask with Headgear |
Humidifier: DreamStation Heated Humidifier |
Additional Comments: Pressures: IPAP 18/ EPAP 14; Secondary mask - Nuance Pro Nasal Pillow |
Re: New Beginnings are terrifying!
Awww that's cute and not expensive - Thank you - I had considered making something, but that's affordable enough.
I'll have to see how I do with this before making a final decision. My instincts are to always protect my family and that means not allowing them to know if anything is wrong with mom/grandma/daughter/sister. Knowing what I have learned in the last couple days I now understand that this won't kill me, so definitely not something to worry anyone else about. That is a blessing.
The one thing to keep in mind and I'm sure I'm not alone is that coming to forums such as this allows me to talk about it, my feelings etc - a place where no one really knows who I am and I get good advice/information and support needed without ever having to discuss it with family and friends. It's a joke in our family, but unfortunately very true - when asked if I will ever marry again, Mom tells everyone "her computer is her husband". Very nice to have a "husband" that doesn't yell back, lol!
I'll have to see how I do with this before making a final decision. My instincts are to always protect my family and that means not allowing them to know if anything is wrong with mom/grandma/daughter/sister. Knowing what I have learned in the last couple days I now understand that this won't kill me, so definitely not something to worry anyone else about. That is a blessing.
The one thing to keep in mind and I'm sure I'm not alone is that coming to forums such as this allows me to talk about it, my feelings etc - a place where no one really knows who I am and I get good advice/information and support needed without ever having to discuss it with family and friends. It's a joke in our family, but unfortunately very true - when asked if I will ever marry again, Mom tells everyone "her computer is her husband". Very nice to have a "husband" that doesn't yell back, lol!
_________________
Machine: DreamStation Auto CPAP Machine |
Mask: DreamWear Nasal CPAP Mask with Headgear - Fit Pack (All Cushions Included with Medium Frame) |
Humidifier: DreamStation Heated Humidifier |
- Bertha deBlues
- Posts: 314
- Joined: Sun Aug 20, 2017 8:36 am
Re: New Beginnings are terrifying!
On the other hand . . . sometimes it's good to share with family. My older brother had told me several years ago that he had sleep apnea and used a CPAP machine. I forgot about it until I was diagnosed, then I thought "hey, isn't that what he has?" I called him and we had a really good conversation. We discussed notes about our symptoms, machines, masks, etc.
Edit: I also told my adult son so that he could be aware of symptoms to watch for.
_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + P10 Nasal Pillow Mask Bundle |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
And in the end the love you take is equal to the love you make. - Paul McCartney
Re: New Beginnings are terrifying!
I'm probably the most NEG person here, however I'm not Dumb, I use my XPAP all night every night, for 13 years, not 100 yet, but without XPAP I would not have made it past 2007.Rebamom wrote: ↑Sat Mar 10, 2018 6:05 pmThanks LSAT for your thoughts. I am trying to be positive - but the fact don't change - my job will wake me, older folk need medical attention in the night - these are not things I can change. Waking up with that hose around my neck WAS terrifying so how will it not happen again?
I am the most positive person in the world - but I am plain scared! Scared to admit my body doesn't function properly, scared that if I don't find a way to get past my fears I could die, scared of the whole darn thing. And just think I don't get the machine for a couple more days.
The negative person would not even try - I am willing to try but I have the limitations mentioned above - they are just a fact of life like accepting that Cpap may also be a way of life. My concern/question is can it still work?
I am a little scared of spiders and snakes I can't find to kill. (just too fast) Smart people are Scared, but they prepare to overcome, the things that scare them. You are not paranoid, if they really are out to get you. Jim
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
Re: New Beginnings are terrifying!
I grew up in a house where 'nothing was ever wrong' with family, where they 'protected' us from life... and have been paying for it ever since. Do NOT protect your kids or grands from life! They need to know stuff happens - and of course they themselves must have had childhood illnesses, etc... and that you are human and fallible and vulnerable. They will automatically see that you can also be strong when necessary (and a good example) but not invincible. Life isn't like that and the consequences of pretending it is are long lasting and lousy. Don't do it. And why shouldn't they know you have a breathing problem when asleep? They possibly could feel afraid to sleep for a night or two, though explaining that it happens to older people almost all of the time and only very rarely to kids will go a long way to helping. And so what if they feel anxious on occasion - it's part of life and they'll need to develop coping skills. Don't protect them from ilfe!
_________________
Mask: Ultra Mirage™ Full Face CPAP Mask with Headgear |
Humidifier: IntelliPAP Integrated Heated Humidifier |
Re: New Beginnings are terrifying!
So True, Life doesn't come without pain and suffering, without that you can't appreciate how good it is. Don't be a Grasshopper, be a Ant! Work with others, insure survival of the group. JimJulie wrote: ↑Sun Mar 11, 2018 12:55 pmI grew up in a house where 'nothing was ever wrong' with family, where they 'protected' us from life... and have been paying for it ever since. Do NOT protect your kids or grands from life! They need to know stuff happens - and of course they themselves must have had childhood illnesses, etc... and that you are human and fallible and vulnerable. They will automatically see that you can also be strong when necessary (and a good example) but not invincible. Life isn't like that and the consequences of pretending it is are long lasting and lousy. Don't do it. And why shouldn't they know you have a breathing problem when asleep? They possibly could feel afraid to sleep for a night or two, though explaining that it happens to older people almost all of the time and only very rarely to kids will go a long way to helping. And so what if they feel anxious on occasion - it's part of life and they'll need to develop coping skills. Don't protect them from ilfe!
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
- Jas_williams
- Posts: 1120
- Joined: Tue Dec 19, 2017 2:12 pm
- Location: Somerset UK
Re: New Beginnings are terrifying!
If you really do need to hide your machine get a bed side cabinet with a drawer get a hole cut in the back for the cable pop the machine in the drawer leave the drawer open and have the hose come out when in use pop the mask inside the drawer and slide he drawer shut to put the machine out of sight during the day ?
Jason
Jason
_________________
Mask: Bleep DreamPort CPAP Mask Solution |
Additional Comments: Using sleepyhead and a pressure of 6 - 21 Resmed S9 Adapt SV with a Bleep Sleep Mask |
Re: New Beginnings are terrifying!
Thanks Jason - I've looked at those and taking them into consideration.
So wish me luck - the journey begins tonight.
So wish me luck - the journey begins tonight.
_________________
Machine: DreamStation Auto CPAP Machine |
Mask: DreamWear Nasal CPAP Mask with Headgear - Fit Pack (All Cushions Included with Medium Frame) |
Humidifier: DreamStation Heated Humidifier |
Re: New Beginnings are terrifying!
I started on CPAP mid-January. I leave the (white) machine on my nightstand, the mask on my pillow. My granddaughters, ages 3 and 5, know that Grammy needs to wear this special mask to help her breathe when she sleeps, just like Grandpa. They are curious about it, find it interesting, not the least bit frightening. He has a matching black machine on the opposite nightstand! They occasionally spend the night with us and since they've been old enough to come into our room, they've seen him with a mask in the morning. We also told our children, because I understand there is a possibility they may also develop sleep apnea. They both sometimes snore, although not terribly bad, but it is something to keep in mind.
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Machine: AirSense 11 Autoset |
Mask: Bleep DreamPort CPAP Mask Solution |
Additional Comments: AirMini for travel, with Eclipse/Halos. OSCAR software. |
Mask: Bleep Eclipse/Halos
Machine: ResMed AirSense 11 AutoSet
Machine: ResMed AirSense 11 AutoSet
Re: New Beginnings are terrifying!
Thank you Booksfan! Something to keep in mind.
_________________
Machine: DreamStation Auto CPAP Machine |
Mask: DreamWear Nasal CPAP Mask with Headgear - Fit Pack (All Cushions Included with Medium Frame) |
Humidifier: DreamStation Heated Humidifier |