What a long, STRANGE trip its been!!!!!
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Sleepy-eyes
- Posts: 507
- Joined: Mon Nov 06, 2006 12:50 pm
- Location: Central Oklahoma
This is a great, and very informative thread, so I hate to interrupt, but could someone pm me and tell me what a Central is?
Chris
I'm not a Doctor, nor am I associated with the medical profession in any way. Any comments I make are just personal opinions. Take them or leave them. (justa don't gripe at me if ya donna like 'em!)
I'm not a Doctor, nor am I associated with the medical profession in any way. Any comments I make are just personal opinions. Take them or leave them. (justa don't gripe at me if ya donna like 'em!)
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SelfSeeker
- Posts: 779
- Joined: Tue Sep 19, 2006 6:25 pm
Hi Sleepy-eyes,
I hope I do not bucher this explanation.
A central apnea is a an apnea (no breathing) which is not caused by an obstruction of the airway. It could be from the brain not telling the body to take a breath. The body does not move as when we breath but stays still. Many times it may be neurologically based.
Many posts about Centrals:
cpaptalk-faq.php?FCID=18#18
I hope I do not bucher this explanation.
A central apnea is a an apnea (no breathing) which is not caused by an obstruction of the airway. It could be from the brain not telling the body to take a breath. The body does not move as when we breath but stays still. Many times it may be neurologically based.
Many posts about Centrals:
cpaptalk-faq.php?FCID=18#18
Sleepy-eyes wrote:This is a great, and very informative thread, so I hate to interrupt, but could someone pm me and tell me what a Central is?
I can do this, I will do this.
My disclaimer: I'm not a doctor, nor have I ever worked in the health care field Just my personal opinions.
My disclaimer: I'm not a doctor, nor have I ever worked in the health care field Just my personal opinions.
SS,
First night I had the low side set on 12.5 and didn't sleep well at all.
Second night raised it to 14 and did good. Left it there the third night as well.
Raised it to 14.5 last night and did slightly less well. I'll bump it back down a bit tonight.
Thanks
First night I had the low side set on 12.5 and didn't sleep well at all.
Second night raised it to 14 and did good. Left it there the third night as well.
Raised it to 14.5 last night and did slightly less well. I'll bump it back down a bit tonight.
Thanks
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| Additional Comments: Equipment isn't correct, S9 ASV w/H5i | ||||
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whatrdreamsmadeof
- Posts: 421
- Joined: Sat Aug 19, 2006 2:12 pm
- Location: vA. BEACH, VA.
ahhhhhhhh chuck
Hi chuck, ahhhhhhhhhhh my story parallels with yours to a t, until the end,,, I too struggled with the resmed vantage, and with the centrals I had at both my titrations of 9 I too thought I may be one of the few with complex osa.......you know, you were a great help to me along the way. That said, the respironics "tank" is my saving grace in all this.........I do need the auto as at a 9-12 setting i am alway in the 10-11 range when the ahi goes to between 0.0 and 1.2 I know everyones story and successes and failures are different, but without your journey and help, my outcome may not have been as successful as it is now. THe resmed at straight cpap would not do it for me.........so thanks for the ride and great blessings to you!!!!!! : Ellenroll: I also tend to agree with Jim as far as your lifestyle change may be why straight cpap is good for you now. Take Care and Happy Holidays!
LOL!
ROFLMAO!!!
Snoredog, ya NEVER looked better!!
(Who's the kid holding you?)
Snoredog, ya NEVER looked better!!
(Who's the kid holding you?)
People are dying every day in Darfur simply for who they are!!! PLEASE HELP THEM!
http://www.savedarfur.org
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http://www.savedarfur.org
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Chuck,
I just read your report and want to thankyou for your determination in researching & experimenting even if you did settle back on 10 cms.
I have learned from your reports ant the different machines you tried & I appreciate that you were intent on being as open and honest as you could. That was always apparent.
Speaking for myself - I was told my titration was 15 - after 15 or so months of experimenting & one big burst where I had great experimental input from SWS & FrequenSeeker (and as always the wonderful wealth of insights & links from Rested Gal), I decided my best results were from a Bilevel running at epap=10 & ipap=13.
Then on the most recent visit to my highly qualified & well respected respiratory doctor (string of degrees in Resp) I was told that the clinic had miswritten my cms which should have been 13 !!!.
So I do appreciate the lesson you learned (which endorsed the sleep study) & how my own research and investigations led me to a similar cms despite the mistake by my sleep study clinic.
Chuck, like you I too have lost a ton of weight (well in my case I peaked at 230 lbs earlier this year & today am steady at 204 lbs & heading for 190 )
It is a wonderful feeling to be confident that we have it right irrespective of if our medical advisors did or didn't. Some may have understood where we were at (but IMHO not many really do) but it is for ourselves to believe that what we are doing is right and is working and that we don't feel like sh** during the day no matter what the software feedback says (i.e. great AHI but still feel like lead)
One great lesson I learned here at cpaptalk among all the usual forum clutter & other stuff, are these points ...
1) Having access to good detailed data from an xpap is essential
2) Being able to make sense of that data, takes time & help
3) cpaptalk.com is a fantastic facilitator to get us thinking & exploring
Some other observations
a) AUTOs are great at helping understand what is happening during sleep when you have access to the nightly data
b) One brand of AUTO may work well for one person but not necessarily for another
c) That AUTO mode may not be the ultimate way we decide to use the xpap but it sure helped in understanding what & why we choose as our preferred setup
Chuck,
Your post was a good catalyst for the subsequent posts.
Cheers
DSM
I just read your report and want to thankyou for your determination in researching & experimenting even if you did settle back on 10 cms.
I have learned from your reports ant the different machines you tried & I appreciate that you were intent on being as open and honest as you could. That was always apparent.
Speaking for myself - I was told my titration was 15 - after 15 or so months of experimenting & one big burst where I had great experimental input from SWS & FrequenSeeker (and as always the wonderful wealth of insights & links from Rested Gal), I decided my best results were from a Bilevel running at epap=10 & ipap=13.
Then on the most recent visit to my highly qualified & well respected respiratory doctor (string of degrees in Resp) I was told that the clinic had miswritten my cms which should have been 13 !!!.
So I do appreciate the lesson you learned (which endorsed the sleep study) & how my own research and investigations led me to a similar cms despite the mistake by my sleep study clinic.
Chuck, like you I too have lost a ton of weight (well in my case I peaked at 230 lbs earlier this year & today am steady at 204 lbs & heading for 190 )
It is a wonderful feeling to be confident that we have it right irrespective of if our medical advisors did or didn't. Some may have understood where we were at (but IMHO not many really do) but it is for ourselves to believe that what we are doing is right and is working and that we don't feel like sh** during the day no matter what the software feedback says (i.e. great AHI but still feel like lead)
One great lesson I learned here at cpaptalk among all the usual forum clutter & other stuff, are these points ...
1) Having access to good detailed data from an xpap is essential
2) Being able to make sense of that data, takes time & help
3) cpaptalk.com is a fantastic facilitator to get us thinking & exploring
Some other observations
a) AUTOs are great at helping understand what is happening during sleep when you have access to the nightly data
b) One brand of AUTO may work well for one person but not necessarily for another
c) That AUTO mode may not be the ultimate way we decide to use the xpap but it sure helped in understanding what & why we choose as our preferred setup
Chuck,
Your post was a good catalyst for the subsequent posts.
Cheers
DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)