At Wits' End

TBonzie wrote:Update:

Well, I downloaded the clinician's manual and then went upstairs to look at things.

I'm still struggling at times. I'll have a few good nights (scoring 99/100) and then a night like last night, where I felt I was suffocating all night and couldn't stick the mask for even an hour. It's the same problem - breathing out. Last night, when I felt the worst, I had a quick look at the pressure and it was at 10 (I hadn't yet fallen asleep - this was 45 minutes after putting the mask off and trying to sleep (and yes, I was very tired!)

Anyhow over time, I've tried the CPAP with ramp, auto ramp, and ramp turned off. No difference. The exhalation thing ranges between 1-3 on my machine (if memory serves) and it came set to 2.

I have a call in to my pulmonologist I've had zero medical support since getting this thing.

I don't mind the mask/hose. I'm used to that. Just need to get the breathing solved.

Janknitz wrote:Keep in mind you are going to have good nights and bad nights. Once I had my first good night (not until about 3 months in, so you're way ahead there) I knew I wanted more. My goal was first to have more good nights than bad nights, and eventually to have mostly good nights.

I still have the occasional bad night with CPAP 6 years in. Sometimes things are just not right--the mask is leaky, I can't get comfortable with the mask, etc. But 99% of my nights are good, at least as far as CPAP goes. So I'm OK with that.