Post
by GoofyUT » Sun Sep 17, 2006 11:27 am
I feel compelled to stand up in support of DSM. he has been a steadfast member of this forum and has posted SO MUCH valuable information and has developed SO MANY resources valuable to us all!!
He has drawn some criticism regarding a question that he has, appropriately I believe, raised regarding the possibility of "vested interests" amongst some who place posts advocating the purchase and use of one particular brand of equipment here. I will stand next to DSM in stating that I share his same concerns.
This forum, while unquestionably valuable to the larger community of xPAP and SDB patients and their families, is after all, sponsored and moderated by a retailer of xPAP equipment and supplies. The fact that they have a vested interest in selling equipment is patent and unquestioned. To the extent that they may have a vested interest in selling a particular brand of such equipment for contractual or other reasons should also be unquestioned as such arrangements are a normal part of the world of retail sales.
However, the almost monolithic adoration of Respironics equipment as represented by the posts of many of the users here, is worrisome to me. In my six months or so of participation in this forum, I couldn't help but notice that posts in support of other manufacturer's equipment, most particularly ResMed, are met with torrents of derision. At the same time, adverse comments about Respironics gear are similarly met with incendiary flames.
Now, we've all speculated openly on this forum from time to time, that manufacturer's representatives may frequently masquerade on this forum as users and give posts biased toward enhancing sales of the gear they represent. And, i take those posts with a grain of salt. I expect them , and I believe above all else here in the principle of CAVEAT EMPTOR.
But, I am also concerned about inducements that may be offered to respected, independent users in the form of eequipment provided for review purposes. Such HAS happened here in the past on a number of occasions. The proprietors of this site have even posted regarding their policies in doing so.
Many of those respected users who have participated in this practice have responded with outrage when they have felt that their integrity has been questioned. And, for many of them, I believe that they have been open and candid regarding their receipt of free equipment to the exstent that I DON'T question their integrity or the honesty of their posts.
But the problem is, I don't know how many of the rest of the "partisan" users here have received inducements here that we are NOT aware of. This information, I believe, is VITAL to my ability to evaluate the posts that I read that inevitably influence purchase decisions (as I believe that they are intended to do).
I work as a state government human services for the disabled administrator. We take careful pains to inquire about conflicts of interest amongst the offerors of the contracts that we solicit, and even greater pains to require disclosure of potential conflicts of interest in those, including myself, who are asked to serve on panels evaluating the proposals that we are sent. Of course, none of us own this forum and therefore, we have no place in requiring, suggesting or even expecting such efforts or policies to protect us against such conflicts of interest. Once again, this forum is "owned" by a retailer with an intrinsic VESTED INTEREST in sales.
However, as a simple courtesy to one another, I would desperately hope that any of us who are simply friends and colleagues struggling together to overcome the same disorder, have the integrity to simply disclose UP FRONT ANY POSIIBLE CONFLICT OF INTEREST OR INDUCEMENT that they may have received from ANY source. Such inducment might be as simple as the pride one gets for being recognized as a respected member by being selected to review a piece of equipment int he first palce. This is still an inducement however. The fact that such individuals may have purchased the equipment before or after posting their review is irrelevant. The inducement of being selected to post the review needs to be disclosed IN ADVANCE. And, given the number of new members who turn to us evry day, this disclosure needs to be reminded frequently.That's the only way that we can fairly evaluate the merits of reviews or incidental posts. That's the only way that we can fairly rely upon one another for truly helpful advice.
However, once again, we are all playing on a retailer's playground here, so LET THE BUYER BEWARE (CAVEAT EMPTOR)!!!
BTW, I have NO interest in ANYONE'S sales or profits related to xPAP or SDB. And, I'll NEVER recommend one piece of equipment over another. I believe that each of our experiences is different and we all need to try before we buy, and DEMAND NO LESS from our suppliers. Our health depends on it.
Now, bring on the flames.
Chuck
People are dying every day in Darfur simply for who they are!!! PLEASE HELP THEM!
http://www.savedarfur.org
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