New here and need help!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
nightingale
Posts: 27
Joined: Mon Jul 03, 2006 5:24 am

New here and need help!

Post by nightingale » Mon Aug 28, 2006 1:24 pm

I am new to the CPAP world, and not well informed.
> Was sent
> home from sleep lab with incorrect mask, and after
> repeated
> phone calls, took it back to Sleep Clinic, was seen
> by
> Clinical Director who put me in a small ResMed Ultra
> Miracle
> full face mask (had been given an awful LARGE one of
> a
> different kind). I am having a difficult time
> keeping the
> mask on; I awaken after about 2 hrs with a start,
> gasping
> for breath. My machine was changed last week after
> it was
> discovered the card in that one did not register
> apneic
> episodes. I am currently using a RemStar C-Flex
> w/humidifier
> at pressure of 10. Plan is to read the card in
> another week
> to determine if settings are correct. I am
> interested in the
> CPAP-PRO based on ad, but all I read is that it is
> "no good"
> but no details as to why. Also, why do the machines
> not come
> with something to allow user to "read" the card if
> there are
> so many variables to consider in the settings? Where
> is a
> good place to find information that will address
> questions
> without posting questions here that irritate
> long-time
> users?


User avatar
Goofproof
Posts: 16087
Joined: Mon Dec 05, 2005 3:16 pm
Location: Central Indiana, USA

Post by Goofproof » Mon Aug 28, 2006 1:48 pm

The reason they don't give you a machine that can give data is that they know we are to dumb to be able to help ourselves, we are not.

A good machine, while it would help is, won't help them but that new Hummer they want. It's all about greed.

And as far as being sent home from the sleep study with the wrong mask? You got a mask??? All I got was the door know in my Butt.

You can use the (Poor) Search function at the top of the page, and read previous posts.

As far as Irritating old worn out users, ignore them, this is a place to get answers and help, most people understand and if they don't, don't worry on it.

My chouce of machines would be in order of best to worse, Remstar APAP, Remstar PRO2, Heated Hudimifier, You can them purchace the softwate and reader if you want to take charge of your treatment.

I use a Full Face Mask, because I am a mouthbreather.

Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

User avatar
Moogy
Posts: 434
Joined: Sat Mar 04, 2006 12:32 pm
Location: a ranch in west Texas

Post by Moogy » Mon Aug 28, 2006 3:15 pm

Re CPAP Pro: I think this mask must look better than it is, because we get lots of questions about it. I think most people find that it is not a good fit. Since that is the problem you have with your existing mask, the CPAPPro might not help.

Do you know why they put you in a full-face mask? Usually that is because you tend to breathe through your mouth when you are asleep. Some of us can train ourselves not to do that, while others can't convert. You are using one of the most popular full-face masks. The other favorites are the Fisher-Paykel https://www.cpap.com/productpage/fisher ... -mask.html
and the new Hybrid https://www.cpap.com/productpage-advanced.php?PNum=2204

Mask fitting is even more complicated than shopping for clothing. You individual face shape and your sleeping position(s) make a lot of difference.

As far as waking up gasping, that can mean your pressure is too low. Did you have a good sleep study to determine your pressure needs? Call your doctor or medical supplier and explain this problem to them. It is NOT part of the normal adjustment. (Problems that are normal in the adjustment period include leaks and pulling off the mask without knowing that you did it.)

The suppliers don't want us to check our own statistics. They don't trust us not to mess things up. I had a long conversation with my primary care doctor, convinced him that I knew what I was doing, showed him the software. He agreed that it was fine for me to monitor my own pressure. Some doctors are not so reasonable. Besides, this guy has been my doc for 20 years, so he knows me pretty well.

Moogy

Moogy
started bipap therapy 3/8/2006
pre-treatment AHI 102.5;
Now on my third auto bipap machine, pressures 16-20.5