Interesting story about UARS and apnea in young, thin people

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
yaconsult
Posts: 1099
Joined: Fri Nov 14, 2014 10:43 pm
Location: "Silicon Valley", CA

Interesting story about UARS and apnea in young, thin people

Post by yaconsult » Sat Apr 29, 2017 10:56 pm

This story was linked in the Apnea News section of cpap.com

It's a well written article and worth reading:
http://www.elle.com/beauty/health-fitne ... nightmare/

It's the fascinating story of how a young, thin woman who had lots of problems sleeping and tried everything to fix it without success - only to eventually find out that she had UARS/sleep apnea.

Here's a small excerpt:
[...]
After some tussling with my health insurer (Manganaro says insurers seem to prefer to wait until people develop the calamitous downstream effects of untreated apnea—such as high blood pressure and stroke—rather than pay for preventive measures), my CPAP machine finally arrived. It looked like a clock radio, connected by a long tube to a mask for your face. I had to try five masks before I found one that didn't give me claustrophobia or rub my nostrils so raw and pink that I looked like a coke-addicted rabbit when I awoke. Ultimately I settled on a snazzy ResMed AirFit P10 for Her, size extra-small, that goes just into the tips of my nostrils and gives me the appearance of having a dainty lilac-and-white elephant trunk dangling off my schnoz. It's the least sexy thing I've ever worn to bed, outside of the disposable panties filled with ice packs and Tucks hemorrhoid pads the hospital gives you after you have a baby.

I was told it would take a couple of weeks to get used to the machine, but it took me nearly two months. It was definitely a "nevertheless, she persisted" type of situation. At first, I had to use sleeping pills to be able to fall asleep with the mask, and I'd often rip it off in the wee hours. But then the turning point came: I woke up one morning and realized I'd slept straight through the night—CPAP success! But then my heart sank. Where was my mask? I didn't feel it on my face; I must have clawed it off without realizing it. I scanned my bedside table, looking for my little lilac elephant…before realizing it was, in fact, still on my face. I'd acclimated!

Once I was able to wear my CPAP through the night without sleeping meds, my fatigue and anxiety just…stopped. Another part of my brain—the part that had enthusiasm for work, playing with my kids, even getting errands done—turned on. It was like I'd been listening to a fire alarm for decade upon decade and then, finally, found the button to switch it off. At my follow-up visit with Manganaro, my resting heart rate had dropped from 79 to 60 beats per minute.
[...]

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: January 2015 Sleep Study Results: Apnea/Hypopnea Index (AHI): 80.2, Sleepyhead

User avatar
Julie
Posts: 20025
Joined: Tue Feb 28, 2006 12:58 pm

Re: Interesting story about UARS and apnea in young, thin people

Post by Julie » Sun Apr 30, 2017 3:35 am

What is so 'fascinating' there - the fact she was young? Thin? Female? Do you know just how many people here fit that description? It sounds like just another 'I did it" note that we see here all the time... not a big deal really.

Arlene1963
Posts: 547
Joined: Thu Nov 05, 2015 5:43 am

Re: Interesting story about UARS and apnea in young, thin people

Post by Arlene1963 » Sun Apr 30, 2017 6:55 am

Thanks for posting the link to that article, Yaconsult.

What I find interesting is the mention of a scalloped tongue (as in the writer's case) as a marker for sleep disordered breathing.

I wish someone had told me that a scalloped tongue indicated sleep disordered breathing when I was in my twenties, because I have had a scalloped tongue for as long as I can remember. But heck, I don't think OSA was really on the radar back in the 1980s.

Yes, the young and beautiful part is a bit silly, but so is the fat/middle aged snoring male when it comes to stereotypes and OSA.

Maybe women will be more likely to speak to their doctors about sleep apnea and UARS if it's associated with "beauty" instead of it being "a fat person's" disease.

An article like this in a magazine that targets young women (Elle), might get the word out that anyone, fat or thin, young or old, male or female can have sleep disordered breathing. (apnea or UARS) .... and the writer was actually diagnosed with moderate OSA. (which is indeed interesting) Kudos to her for making her diagnosis public and writing about this, I think it a great way to break away from some of the old misconceptions.
Last edited by Arlene1963 on Fri May 05, 2017 9:04 am, edited 1 time in total.

User avatar
Julie
Posts: 20025
Joined: Tue Feb 28, 2006 12:58 pm

Re: Interesting story about UARS and apnea in young, thin people

Post by Julie » Sun Apr 30, 2017 7:38 am

I didn't pay enough attn to the fact it was in Elle - so take back some of what I said because it's good to see that someone (or a mag like Elle) is bringing things to light... more mainstream outlets should do it!