I couldn't get online yesterday, so here's what has happened since my last desperate posts.
I was finally able to go to sleep with the CPAP at 7:30 am and slept for 4 hours. I had to get up to go to my parents 50th wedding anniversary celebration, otherwise I may have tried to sleep more.
Today I spoke with the RT, and she thinks that congestion may be the biggest culprit. She has suggested a move to 8cm on the machine, and I have an appointment with the doctor tomorrow.
I really appreciate all the advice I have been getting. It makes me feel much better that I am not alone in dealing with this (not that I would wish it anyone else)