Maybe new machine

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bmanley
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Maybe new machine

Post by bmanley » Wed Mar 08, 2017 3:36 pm

Hate to say anything too soon but I hope to be getting a new machine tomorrow. Started this mission the 3rd of Feb so it's been a road.
My questions now are about reading the data. Going from the S9 escape to the airsense 10 autoset so night and day for data. But one of the reasons my doctor ordered the new machine was I still stop breathing and for one without some kind of data who knows. He also wanted me to try a full mask over the swift FX nasal I have now. From what others have said in other posts I think I may just stick with what I have for the nasal devise and see what the new machine tells me. Guess my question out of all this is when should I read the data? I have sleephead loaded on my laptop but since I've not had any real data I've not learned very much about ti yet. When I ask about reading the data I'm wondering should I not bother to download it for several days or do it everyday? I don't want to go over board and start second guessing what I'm seeing after the first night. So I guess what I want to know is how many nights do I need to get together before I have a good idea of what any problems I have are? Going to try and read some more about how to post the info so others can help.
Another question I have would be with the doctor ordering this and since I will be in a new period of compliance with medicare can I do anything to hurt that by making any changes if the data tell us something needs to change? Doc ordered a download a month after I get the new machine and I will see him after that. I just don't want to mess up them paying for this. I didn't have any issues with the last machine, used it every night and for 6 or more hours a night so unless something is wrong with the machine using it should not be a problem.

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Pugsy
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Re: Maybe new machine

Post by Pugsy » Wed Mar 08, 2017 4:16 pm

bmanley wrote:since I will be in a new period of compliance with medicare can I do anything to hurt that by making any changes if the data tell us something needs to change?
You looking at your data or even changing something doesn't matter to Medicare. Medicare's only concern is that you use the machine and see your doctor for that follow up visit to establish that it is helping and you are using it.

Look at the data after the first night. You are going to be dying to know what it shows.
No sense waiting. How often you choose to look at the data is up to you...just try not to obsess over small changes in any numbers you see change. It's normal for the numbers to change a bit. If you obsess it will drive you crazy worrying about little stuff that doesn't matter and since you will likely be worrying about it here on the forum I suspect it will drive us crazy too.

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bmanley
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Re: Maybe new machine

Post by bmanley » Wed Mar 08, 2017 4:22 pm

Thanks, I can wait to look I just know from a medical background you normally have to have a base line to see what is going on. Didn't figure I would know too much from one night.
From what I remember from the doc appt over a month ago now I think he ordered it to be set to go from 15-20. Is it really possible that just changing from the S9 escape to this autoset machine that I could feel a difference the first night? Well I guess it is possible but I figure it is going to take more changes then just the machine to make things better, but I'm sure this is a big step in the right direction

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Pugsy
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Re: Maybe new machine

Post by Pugsy » Wed Mar 08, 2017 4:29 pm

It's possible that the new settings will make a change in the results and how you feel but there's no guarantee that they will.
We don't know what is going on..was it just sub optimal therapy pressure or is it maybe something else like your pain meds causing central apneas...we just don't know and can't possibly know if anything will change for sure or not. We don't know for sure that sub optimal therapy is the reason you don't feel so good but it might be...so it needs to be at least evaluated to rule in or rule out sub optimal therapy as the cause.

Wait on the full face mask. See what is going on with the current mask first...you can always do the full face mask later.

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bmanley
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Re: Maybe new machine

Post by bmanley » Wed Mar 08, 2017 4:48 pm

Only reason I thought about getting a mask right now was to have one to try if I found out I'm mouth breathing more then I think. Still was going to use the one I have to get some data. Had wondered too if setting up the new machine in normal cpap mode and using it that way would tell me anything I will not learn by using it in autoset mode.
When I get some extra money I still want to get a pulse ox to see how I'm doing there as well. If we can find some issues once I have the new machine maybe that will help more then I think, but I still want to keep an eye on my O2.

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bonjour
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Re: Maybe new machine

Post by bonjour » Wed Mar 08, 2017 4:56 pm

Pugsy has good advice there,
What I would add is post your data, There might be somewhat obvious and it might not. But as you know the data tells the story.

Change your profile to show your new machine when you get it.

My signature shows how to post the data, and please pay attention to the organization section, There is a lot of data, and if we need more we will ask

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Pugsy
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Re: Maybe new machine

Post by Pugsy » Wed Mar 08, 2017 4:59 pm

Why not cross the mouth breathing or potential mouth breathing issues if and when you need to?
I am just trying to save you some money.

If you are mouth breathing it will show up as a leak...then you evaluate if the leak is big and bad or minor and not hurting anything.

It's up to you though. I see no sense in just having to have a new mask right now (especially if it is going to cost you money you can't afford to spend) in case you are mouth breathing. You don't know that you are mouth breathing...the doctor was just making a guess with the suggestion of a full face mask for maybe mouth breathing.
To me it's a waste of money until the need is proven unless they are just handing out free full face masks then by all means pick one up.

You seem to do a lot of "what iffing" ...trying to anticipate needs and plan to cover them all.
Well here's a "what if" for you...
What if your problem has nothing at all to do with mouth breathing and your leaks are very well controlled...do you really want to burn a Medicare mask allowance (and pay your share) on a mask that you might not need.

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palerider
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Re: Maybe new machine

Post by palerider » Wed Mar 08, 2017 5:28 pm

bmanley wrote:Thanks, I can wait to look I just know from a medical background you normally have to have a base line to see what is going on.
cpap is like glasses, if you go to the optician and they stick the wrong prescription on you, you don't have to wear the glasses for a few days to tell that you can't see shit.

just listen to Pugsy, you'll be much better off than bouncing around like a madman.

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bmanley
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Re: Maybe new machine

Post by bmanley » Wed Mar 08, 2017 6:26 pm

Thanks everyone for the advise. The mask would be nice to have so when I can't breath well thru my nose I'd have it. It has not been a problem too much but it does happen. Those nights I just have to take it off and sleep without the cpap. I'm pretty sure I don't mouth breath other then a couple of nights this past week the wife woke me up telling me to fix my mask and I had a very dry mouth. But again I don't think this is my problem other then those nights. Never noticed this issue before.

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Pugsy
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Re: Maybe new machine

Post by Pugsy » Wed Mar 08, 2017 6:41 pm

You trying to talk yourself into getting the new mask now or me?

You don't need to sell me...you need to sell yourself because you are paying for it ...not me.
If you will sleep better having a mask available right now this very week...get it...but just be aware that Medicare will not pay anything for the headgear and the DME is within their rights to ask you to pay for the headgear and you can't expect Medicare to pay a dime.

It's your choice because it's your money.

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jtravel
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Re: Maybe new machine

Post by jtravel » Wed Mar 08, 2017 8:37 pm

If you want a Full Face Mask for Backup the American Sleep Apnea Association have Brand-new Resmed Quatro FX or Resperonics Amera Gel Full Face Masks in different sizes for $25 shipped.
You need a Prescription and will have to scan and email it to them.
https://sleepapnea.org/community/cpap-a ... e-program/
Resmed and PR donated these masks to them and they want to sell them so that they have funds to support their non-profit Organization.

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bmanley
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Re: Maybe new machine

Post by bmanley » Thu Mar 09, 2017 2:08 pm

Well I just got home because I had some other stuff to do while I was in town. I have a brand new machine!!! And just what I wanted, well it looks right any way.
It is the Airsense 10 Autoset with zero hours on it. Got the heated tubing but had to ask for an SD card. Need to get the old one unplugged and the new one setup and go from there. Not sure how I'm going to like everything as she set it up so I will just have to give it a try and see how it goes. Really interested to see how it goes tonight.
One question I do have it they set the climate control to auto, if that is the right thing. But can anybody say how well that works? Was thinking I read in the manual that auto set the temp to 80. Seems a little high and I know I can set it to manual and set it to what I want but I think I will try it this way.
The other question I have is since she opened a new SD card and put it in the machine does it take care of setting it up right or do I need to do anything to format it? Figure it would would ask me to format it if it needed it but wanted to ask. Hate to go to read it and find out I don't have any

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Pugsy
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Re: Maybe new machine

Post by Pugsy » Thu Mar 09, 2017 2:31 pm

bmanley wrote:One question I do have it they set the climate control to auto, if that is the right thing. But can anybody say how well that works?
Works well for probably the bulk of the people out there. That's why it is the default setting.
I just got an AirCurve which is the bilevel version of what you have and I left the heated hose set to the default of "auto" for the time being. Seems to work well.
The 80 degrees is okay for now but when things warm up I will likely want it cooler but it's easily adjusted.
It all depends on how warm you keep your house.
bmanley wrote:since she opened a new SD card and put it in the machine does it take care of setting it up right or do I need to do anything to format it?
The AirSense 10 will fix up the card however it thinks it needs it. You don't have to do anything.

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Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
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I may have to RISE but I refuse to SHINE.

bmanley
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Joined: Mon Jul 15, 2013 1:08 pm

Re: Maybe new machine

Post by bmanley » Thu Mar 09, 2017 7:13 pm

Thought it was funny we were talking about the setting and she said she set up a machine yesterday for a lady and they were testing the auto start and stop and her wouldn't stop. Guess we should have tested this one but she said they just turned it off

bmanley
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Re: Maybe new machine

Post by bmanley » Thu Mar 09, 2017 7:17 pm

With the ramp set to auto which I understand it will know when I fall asleep and turn up the pressure. My question is will the sleephead software tell me when this starts or will I just have to look at when the pressure comes up? I'm sure I will understand more once I can look at my data