New User 2nd post

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
mrbreezeet1
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Re: New User 2nd post

Post by mrbreezeet1 » Wed Mar 08, 2017 10:47 pm

Hannibal 2 wrote:Hi Anthony and welcome!
Could you fill out your equipment details in your profile so that folk can see straight away what you're using and guide you better.
Done, thank you.
Pugys helped me I'd My equipment.
Had a feeling you were not in USA.
I worked with a fellow from Ireland, he used to say, straight away.
And if you were striking up a conversation, you were "chatting them up" Image
Thanks Again...... Glad to have found this group?

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Last edited by mrbreezeet1 on Wed Mar 08, 2017 11:21 pm, edited 1 time in total.

mrbreezeet1
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Re: New User 2nd post

Post by mrbreezeet1 » Wed Mar 08, 2017 11:06 pm

Goofproof wrote:A good fitting FFM is the best if you can control the leaks. Using a FFM, bypass concerns of mouthbreathing and mouthleaking, keep your treatment pressure inside your airway where it's needed. No fuss or muss!

A FFM also is needed when your nose gets plugged, and for COLDs.

As far as treatment pressure, it seem for most about 10cm of water pressure is a good starting place, but it really only your body you have to be concerned about. Using software to monitor your progress is a must APAP is the best for most, as our pressure need change during the night, we change positions as we sleep.
Makes sense.
I'm going to stay with this Mask for now, and get a soft collar, as suggested.
Don't know if you read where I ran my unit out of water?
That may have made me wake up, and took the mask off.
I remember getting up, and taking it off, as if saying, "this thing has got to go"!
Now...... IIRC, I DON'T remember waking prior to that.
I wish I could have used my collar tonight, I was hoping with a full container of water, and the collar, may have been on to something?

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mrbreezeet1
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Re: New User 2nd post

Post by mrbreezeet1 » Wed Mar 08, 2017 11:12 pm

Pugsy wrote:
mrbreezeet1 wrote:To be honest, I think she just wanted to get out of here.
To be honest I think you are right.

There's a lot to learn and a lot to adjust to but you don't have to do it all in one day or one week or even one month.

If you are experiencing nasal congestion that is worse after using cpap...then we look at which way you might need to adjust it.
If your nose is happy and nasal congestion is no worse...don't worry about it.

You are going to find that a lot of this cpap stuff comes with a really big YMMV (your mileage may vary) sticker and that what works well for one person might be a total disaster for the next person. It applies to masks, whether to use ramp or not, what humidity your nose might prefer, whether a cervical collar helps or hurts things....lots of varying opinions and results.
We have a saying...one man's trash is another man's treasure. There's a lot of variables that you will need to just sort through yourself.
That is very true with drugs and people too.
You know like an over the counter sleep aid, has an opposite effect on me, and "wires me up" instead of allowing me to sleep!

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Pugsy
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Re: New User 2nd post

Post by Pugsy » Wed Mar 08, 2017 11:17 pm

You are going to likely have some nights where things happen that you can't put a finger on as to the exact reason why. I know I did and on occasionally still do after almost 8 years.
There's a pretty good size learning curve so take you time at your own pace.
This is a marathon and not a sprint.
If you see an idea you want to try...try to remember Science 101...keep your variables to a minimum so that you can evaluate your results more clearly. Adding many changes at once makes it difficult to know which change might have caused what result.

Good luck tonight.

I don't know if the humidifier going dry was the cause of the wake up. It might have been like I said with the odor, it might have been that the nose got dry and was uncomfortable...it might have been any number of things that we simply can't put a finger on but we keep on trying. Unfortunately sometimes stuff happens we just can't figure out exactly for sure what happened. If it becomes a habit we can look at your data that your machine gathers and see if we spot anything there that might explain it.

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Pugsy
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Re: New User 2nd post

Post by Pugsy » Wed Mar 08, 2017 11:19 pm

mrbreezeet1 wrote:That is very true with drugs and people too.
You know like an over the counter sleep aid, has an opposite effect on me, and "wires me up" instead of allowing me to sleep!
Me too.

Plus I take a medication for pain that comes with a big "may cause drowsiness sticker" and it wires me up something awful. If I take it after 6 PM I am up cleaning the house at 2 AM.

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Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
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mrbreezeet1
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Re: New User 2nd post

Post by mrbreezeet1 » Wed Mar 08, 2017 11:30 pm

Ok, thanks we will look at the data if need be.
I take (well am allowed up to 20 MG) a day, oxco coden/acptm. 325, and I think it keeps me up to a point.
It's a "double edge sword"

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mrbreezeet1
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Re: New User 2nd post

Post by mrbreezeet1 » Thu Mar 09, 2017 9:50 am

mrbreezeet1 wrote:
Pugsy wrote:Do you know if you have the heated hose or regular non heated hose?
It makes a huge difference in your humidity options and hose air temp options.
Does your hose look like this one?
https://www.cpap.com/productpage/pr-dre ... -tube.html
There will be a tiny electrical plug in thing at the end of the hose where it plugs into the humidifier.

When you have time go here and request the clinical/provider manual for your machine.
There's some really good information in it that isn't in the user manual that you have and you may need that additional information at some time in the future.
http://www.apneaboard.com/adjust-cpap-p ... tup-manual
You can request via email. Instructions about 2/3 down the page.
Ok, I will request the information.
Thank you.

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Looked at your link better, That's my hose.
She said it was heated, (The hose) and it looks like the one linked to.
Has the wire coiled through it, guess that's the heating wire.
Took the mask off again, don't quit know why.
Got up about something to 8, and turned the TV on, and listened to a show for 1/2 hour, and put the mask back on,
fell asleep after about a half hour, got up about 10:00 with miss Cleo (the cat) laying on my arm, getting heavy, making my arm fall asleep.
So I got back up to stay up.
Going to have to go see the dr again, as much as I hate to. Got some new issues.

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Pugsy
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Re: New User 2nd post

Post by Pugsy » Thu Mar 09, 2017 10:13 am

Having the heated hose opens up a lot of customization in the humidity and hose air temp department.
It can be more than just condensation prevention...it can be a comfort thing too.
If we aren't comfortable for whatever reason we don't sleep so great.

Removing the mask...were you awake and aware you did it and just said "to heck with it, it's coming off" or did you do it in your sleep and not realize it?
If awake..bad habit to get into. Bad habits are easy to make and notoriously difficult to break.

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Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

mrbreezeet1
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Joined: Mon Mar 06, 2017 7:35 pm

Re: New User 2nd post

Post by mrbreezeet1 » Thu Mar 09, 2017 10:50 am

Pugsy wrote:Having the heated hose opens up a lot of customization in the humidity and hose air temp department.
It can be more than just condensation prevention...it can be a comfort thing too.
If we aren't comfortable for whatever reason we don't sleep so great.

Removing the mask...were you awake and aware you did it and just said "to heck with it, it's coming off" or did you do it in your sleep and not realize it?
If awake..bad habit to get into. Bad habits are easy to make and notoriously difficult to break.
Yes, I guess something was bothering me, I knew I was taking it off.
Did that both nights. (knew I was taking it off)

mrbreezeet1
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Re: New User 2nd post

Post by mrbreezeet1 » Thu Mar 09, 2017 4:41 pm

mrbreezeet1 wrote:
Pugsy wrote:Having the heated hose opens up a lot of customization in the humidity and hose air temp department.
It can be more than just condensation prevention...it can be a comfort thing too.
If we aren't comfortable for whatever reason we don't sleep so great.

Removing the mask...were you awake and aware you did it and just said "to heck with it, it's coming off" or did you do it in your sleep and not realize it?
If awake..bad habit to get into. Bad habits are easy to make and notoriously difficult to break.
Yes, I guess something was bothering me, I knew I was taking it off.
Did that both nights. (knew I was taking it off)
Now today, 5:15 pm thought I'd lie low a bit, with CPAP of course.
Better check the water.
That thing was empty, that don't seem right.
Actually when I filled last night, I just guessed, but then took it out to check.
It was about 1/8" over the Max. LINE.
Don't seem right, I think I am just a bit more stuffed up than usual too, and I notice my nose is a little bit sore too.
Didn't get a collar yet either.
To be honest, don't think I'm resting /sleeping well, so I don't feel like doing much.

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Re: New User 2nd post

Post by mrbreezeet1 » Fri Mar 10, 2017 7:55 am

mrbreezeet1 wrote:
bonjour wrote:
rlentless226 wrote: Question for you all/Results:
My results from last night (below) were pretty good but I feel like I am having a bit of a mask fit issue. According to MyAir I got a good seal for a full face mask, but I could still feel a little air at times blowing towards my eyes. I'm a side sleeper and I do have a beard that I keep at approximately 1/4in and 6MM. I am also a mouth breather and I just don't think I can keep my mouth closed unless I tape it shut. Any tips out there for full face mask sealing? Since my air says it is good should I just learn to deal with it? I do feel a lot more refreshed today!
This is from the Mask Primer I authored.
Mouth Breathing is when you open your mouth and the air pressure from your PAP is venting out your mouth typically showing on your charts as a large leak which can substantially negate the effectiveness of your therapy. It is generally not good. The solution varies depending on the person

How to manage Mouth Breathing, not in any particular order.

Tongue Trick. Place the tongue on the roof of the mouth, Practice during the daytime. The idea is to train the tongue that this is a good place to be, not overnight, but it works for some.

Chin Strap. A chin strap is to manage mouth leaks from a variety of causes. Most result from the jaw dropping or opening either partially or wider. The chin strap is to gently keep the jaw closed. If you have to crank it shut to make it work this is not the correct solution. Note that your jaw is strong enough to open if it wants to.

Cervical collar. A Cervical Collar may also be used to keep the jaw from dropping.

Mouth Guard. The concept here is a closed mouth guard to keep the air from leaking out.

Taping. The purpose of taping is to seal the lips and prevent mouth leaks / mouth breathing. It is not to stop the mouth from opening. I make sure that I can easily open my mouth, when taped, if I need to.

FFM – Full Face Mask or Hybrid Mask. This is a very traditional solution and it is generally effective.

Hope this helps you some.
mrbreezeet1 wrote:Well, is mouth breathing not an issue if I'm using a FFM?
My mouth is getting dry, and I am just not getting the sleep and rest and feeling good, like I was hoping.
Something is still making me wake up, not stay asleep, and not rested like I thought I would.

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Julie wrote:You can still mouth breathe (and get dry) with a FF mask on, you just won't lose Cpap air that way, which is a good thing, if uncomfortable. You can try using Biotene before putting the mask on to help prevent the dryness.
OK, I will need to google it.
I don't know Julie, I hope I can adjust to this %$%^ thing. and start getting some rest-full sleep!
I still want to get my collar too!
I got up I guess after about 5 0r 6 hours, cane out for a while, went back to bed, and DID use the mask.
But the problem besides Dry mouth, is Today and yesterday, (But today was worse) I fell like My neck is/was all Bunched up.
I guess in the defense of the strap and mask, and hose, the orthopedic doctor , not unlike my knees, my one shoulder is almost bone on bone, so that is causing the muscle over from my shoulder to hurt. He said something like it's trying to hold my shoulder up, or something like that.
This dr. "floored me" cause I said, "well, dr, it don't hurt at ,my Shoulder, he said, "NO, and he grabs my neck ,over near the shoulder(if that make sense) and said, "It hurts here" I was Like Wide Eyed, and said, OMG, Yes. So he apparently knows what he is talking about.
I'm going to also post this in my original thread, so that I should keep it all together too.
I do have to say,I am very Very Disappointed thus far. Although I do have to say In spite of my neck area and shoulder, and waking up all "Bunched up" feeling,
I'm "Starting " to feel 1/4 decent.
Thing is too tho, I think maybe Im using a little too much water, Can I over fill that chamber a Tad?

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Pugsy
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Re: New User 2nd post

Post by Pugsy » Fri Mar 10, 2017 9:25 pm

You can safely exceed that max water line a tad if it helps you not run out of water during the night.
I do it all the time.

There are several factors that can affect water consumption and leaks and higher pressures are a couple of the factors. Humidity setting and the ambient humidity will also affect the water consumption.
And of course how many hours you use it.

Once you get the software up and running let's check to see what the leak situation is.

I saw your comment about the DME encouraging you to use the F10 full face mask because it is the "best".
Can you normally breathe okay during your nose during the day and any congestion that you have is minor and relatively easy to fix?
Or do you have significant nasal congestion that you just can't clear up enough to rely solely on your nose for breathing?
If you simply have congestion so bad you just have to mouth breathe then you probably need a full face mask but if your nose is clear enough that you breathe through your nose mainly...you could very likely use a nasal interface mask successfully.
If your nose is clear enough and you would rather not have the bulk of the full face mask and you want to try one of the nasal interface masks....do it.

Also...do a little experiment..take your fingers and put them up on the sides of your nose near the nasal bridge area where the mask rests...apply a little pressure to the sides of your nose...see if it causes an increase in congestion. If it does then the full face mask could maybe be causing some of your nighttime nasal congestion.
I have this problem and for this reason I can't wear any mask that puts pressure on that area of my nose.
Heck even my sunglasses will sometimes cause a little congestion from the weight resting on the turbinate area of my nose.

If you are like me...you might do better with a nasal pillow mask or one of the nasal cushion masks that just fit under the nose...like the Respironics DreamWear.
And even if you just have to use a full face mask because the nose is simply too congested all the time there are full face masks that don't put pressure on that area of the nose.

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I may have to RISE but I refuse to SHINE.

mrbreezeet1
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Re: New User 2nd post

Post by mrbreezeet1 » Mon Mar 13, 2017 8:57 pm

I'm thinking a other thing too. When that lady was her, I was trying to put this mask on, and she said I had it too Hi up up by my eyes, so I am pulling it down, you know it, now, but I'm thinking this mask IS TOO BIG!!! It's almost at the top of my nose as it is, and sometimes is leaking at the sides.
I'm going to have to bring this stupid thing to the doctors office.
Now here's one thing too, I worry homemade collar last night, and slept straight for about 3 04 4 hours.
I did not have a dry mouth though..
I just wish to God I could sleep through the night, and feel good.
I'm so tired of this.

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Re: New User 2nd post

Post by mrbreezeet1 » Mon Mar 13, 2017 9:00 pm

I think I'd like to try those pillow nose mask.
But I'd have to have th collar for sure, cause I'm pretty sure my mouth is opening up at night.

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Re: New User 2nd post

Post by mrbreezeet1 » Thu Mar 23, 2017 3:36 pm

well, I hated to be the kind of person that gets his answers, and doesn't follow up.
I'm not even using my Cpap right now!, and I'm pretty unhappy with my doctor too.
I made and appointment with the sleep dr, and net with the practitioner.
I told them I had a VERY!!! dry mouth, and more drainage than before.
She gave me a sample of this stuff to spray up my nose, and when I use it and sallow, it tastes
like I drank lighter fluid. (Not that I ever drank lighter fluid)
I brought my mask to the visit, I told her I thought it was not fitting right, and I thought maybe
it was too big. I SWEAR she said she wanted me to try Such and Such mask.
and that the mask comes "under my chin" (she must have been talking about the chin strap)
I asked about the Collar, Right away, NO! (Cause it wasn't here Idea I'm thinking)
Oh, and increased the humidity on my machine cause of the dry mouth.
(It didn't work)
I'm sure it's like you guys say, and my mouth is coming open.
Well the next thing you know, My health care company, that brings the equipment calls and asks,"What kind of mask I want to try" ?
I WAS FLABBERGASTED!!!!!
I said, What the hell, I thought the doctor called it in.
Well, she has To ORDER this mask she wants me to try. (The health care company, that brings the equipment)
I called the doctor back, they said it was "Patients choice" and the practitioner did NOT recommend a mask.
I told them I didn't think that was a very acceptable answer, But OK. So There is another doctor with Piss Poor service I think.
They said "It was the health care company, that brings the equipment job"
meanwhile after my first sleep study, They said the 2nd sleep study, with a CPAP machine they were supposed to "FIT ME"
Lot of B/S if you ask me.
She didn't "Fit" Nothing.
She said the one she gave me was the "Best" and I said OK.
So I'm waiting for this other mask.
Then the health care company, that brings the equipment, said they turned up the Heat"
and The stupid thing Is too darn HOT!
She was supposed to call me back, but didn't.
so Im not too happy with either one of them.
This mask is leaking now, up around the top of my nose, and I'm tired of fooling with it.
Oh, and I did get a Collar off E bay, But It was too small.