Post
by RestlessinWoolley » Sat Feb 18, 2017 9:27 pm
No sadly with my nervous system disorder, and the Neurogenic Bladder, I lose control of my bladder. I don't get woken up with the urgency to go. Now with all this going on I notice how often i do wake up with the urge to go which is usually 1-2 of the session breaks or disconnects during the night. but I do have a rash of tumors on the spine at L3,4,5,6 and have other issues with those as well. I heavily medicated on a Seizure Medicine as well, I have an unclassified seizure disorder as well, if I push myself too hard and ignore the warning signs, I will get woozy, and have the Aura and pass out totally, no twitching noting, I am totally out, not able to be awoken easily for 2-4 hours. but ever since starting on those meds i've had a small number of minor and a few major ones and of course the bladder issue shows up there as well.. SO yeah Neurofibromatosis Type ! is only one of my many issues, the Chronic Pain, the Seizures, getting arthritis really bad, migraines almost daily now, hypertension (controlled), low Thyroid, been borderline for Lympthoma for 15 years. yeah and i'm only 36. It s not fun at all.. and this sleep thing on top of it.. Why I really hope they can sort this out and get my seep fix so maybe healing can start and clear up a few things and make it so I can at least make it thru the day without collapsing..
I did try a new thing last night as well as I sleep on a Sleep Number Bed, I bumped my pressure up for tonight, but I have been wearing my under armor leggings under my normal PJs and find my legs dont twitch as much, my legs stay warmer and i can get comfortable faster. I also sleep under a mountain of blankets as i like a cold room. trying a few things tonight, I got the window cracked a bit getting some fresh air in here, and got an eye mask as well since there is so much light in the house due to various night lights and my mom who usually up to 2-3 am as well..
I just want to sort this out! Appreciate the help!!
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Machine | Mask | |
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Additional Comments: Resmed AirCurve 10 ASV |
EPAP Min 6, Max 15, PS Min 6, Max 21, BURR 10, Press Max 25, BPM 11, Ti 1.2
"I hate the word 'Handicapped' and 'Disabled'. They imply that you are less than whole don't see myself that way at all". ~Aimee Mullins