Next level specialist/referral?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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robysue
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Re: Next level specialist/referral?

Post by robysue » Tue Oct 18, 2016 11:46 pm

BlackSpinner wrote:
So Well wrote:
krl wrote:I really appreciate hearing that it takes a solid year to really start seeing some changes.
This is NOT true.
It can be for some people.

Also if you don't keep records like a journal you won't see all the subtle changes.
and
Hang Fire wrote:Patients shouldn't be misled into believing it will take a year to see improvements. In the case of the OP, we don't know his leak level or his AHI. He could be getting crummy therapy and see posts here and think, oh, it will take a year before I start to feel better.
Some people do take a year (or more) before really starting to see some positive changes. I'm one of those unlucky folks. And I do think it's important to let newbies know that not everybody sees remarkable results in the first 1-2 months.

But as Hang Fire says, we need to know the OP's leak level and his AHI, as well as a bit of information about his usage and how well he's sleeping in ways other than CPAP usage.

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Hang Fire
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Re: Next level specialist/referral?

Post by Hang Fire » Wed Oct 19, 2016 5:44 am

robysue wrote:But as Hang Fire says, we need to know the OP's leak level and his AHI, as well as a bit of information about his usage and how well he's sleeping in ways other than CPAP usage.
Sylvia54 wrote:Here's the problem, for some reason he doesn't want to share any of his stats, even though he's been on cpap for at least 2 mos now.
He's been asked for more information repetitively.
In other words, the OP, krl, should put up or shut up.

Sylvia54
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Re: Next level specialist/referral?

Post by Sylvia54 » Wed Oct 19, 2016 7:20 am

Hang Fire wrote:
robysue wrote:But as Hang Fire says, we need to know the OP's leak level and his AHI, as well as a bit of information about his usage and how well he's sleeping in ways other than CPAP usage.
Sylvia54 wrote:Here's the problem, for some reason he doesn't want to share any of his stats, even though he's been on cpap for at least 2 mos now.
He's been asked for more information repetitively.
In other words, the OP, krl, should put up or shut up.
Hang Fire; Your comments make no sense. Look up krl postings and see all the complaining he's been doing here with other members trying to help.
Meanwhile, he won't provide any data at all while it appears he's been using cpap since August. Can YOU provide meaningful help to him by guessing?
I agree with RobySue, and it's just like I said in my previous post here, for SOME PEOPLE it CAN take a year or more of consistent use on cpap to make full recovery.
In fact I've seen postings from people who have been on cpap for years and have still not made full recovery from their symptoms.

My main symptom was and still is chronic insomnia.
For me, it's taken over 6 mos. of consistent cpap treatment to START getting 6 hrs+ sleep more than once or twice a week. I suspect I had untreated sleep apnea for many years. Sleep doctor started me out on fixed pressure of 7cm for the first three mos of therapy and progress was subtle. DME told me to start RAMP on 4 (no air) and flex on maximum setting of 3. Finally got clinic NP to change my prescription to variable 8-12cm last July and that helped with longer sleep intermittently. Last month I turned off the flex exhale relief setting and sleep has improved more. Progress for some is very gradual as we figure out through trial and error what needs changing at the moment. Obstacles such as dry mouth, sinus trouble from weather change or who knows what, mask leaking, hose getting in the way and tugging on the mask, are all obstacles that we must resolve on our own or through help from those more experienced.

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The Choker
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Re: Next level specialist/referral?

Post by The Choker » Wed Oct 19, 2016 8:23 am

Hang Fire wrote:In other words, the OP, krl, should put up or shut up.
Sylvia54 wrote:Hang Fire; Your comments make no sense. Look up krl postings and see all the complaining he's been doing here with other members trying to help.
Meanwhile, he won't provide any data at all while it appears he's been using cpap since August.
Sylvia, You and Hang Fire are saying the same thing. krl needs to provide data. "Put up or shut up."
T.C.

Sylvia54
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Re: Next level specialist/referral?

Post by Sylvia54 » Wed Oct 19, 2016 8:37 am

The Choker wrote:
Hang Fire wrote:In other words, the OP, krl, should put up or shut up.
Sylvia54 wrote:Hang Fire; Your comments make no sense. Look up krl postings and see all the complaining he's been doing here with other members trying to help.
Meanwhile, he won't provide any data at all while it appears he's been using cpap since August.
Sylvia, You and Hang Fire are saying the same thing. krl needs to provide data. "Put up or shut up."
No, I'm not going to shut up. Read through all the postings here again. Hang Fire says; "Patients shouldn't be misled into believing it will take a year to see improvements."

Actually, it CAN take a year or more for SOME people to recover from their symptoms. And some sleep apnea symptoms don't fully resolve even after years of therapy. Go back and read postings by people who've been using xpap for years and still spend time on this forum. Not all have fully recovered. Read RobySue's posting. Hang Fire may have made a quick recovery and if so, he/she is one of the lucky ones.

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The Choker
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Re: Next level specialist/referral?

Post by The Choker » Wed Oct 19, 2016 8:53 am

Sylvia54 wrote:No, I'm not going to shut up.
I think your insomnia is affecting your ability to read and reason. Hang Fire's "shut up" was not directed to you. It was meant as mutually exclusive options for krl. krl can "put up" which means post your data. Or he needs to quit posting because we can't help him any further without data.
Sylvia54 wrote: Hang Fire says; "Patients shouldn't be misled into believing it will take a year to see improvements."
He's absolutely correct about that in the context of this thread. We haven't seen krl's data, so for all we know, he could have high leak and/or high AHI. What if he goes on with poor therapy thinking, "they told me it could take a year before I feel better"? None of us want that to happen. We want to see his data, and maybe then we can give him help.

Compreendo, Sylvia?
T.C.

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LSAT
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Re: Next level specialist/referral?

Post by LSAT » Wed Oct 19, 2016 9:16 am

krl has been asked for Sleepyhead data numerous times...I agree...if he wants help he needs to supply something to look at.

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The Choker
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Re: Next level specialist/referral?

Post by The Choker » Wed Oct 19, 2016 10:55 am

LSAT wrote:I agree...if he wants help he needs to supply something to look at.
"Put up or shut up."
T.C.