They Tell Me I Need This Machine

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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zoocrewphoto
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Location: Seatac, WA

Re: They Tell Me I Need This Machine

Post by zoocrewphoto » Sat Sep 03, 2016 12:51 am

ckeith wrote:
Maybe if I could loose the Roller Skates - I could climb that mountain - Insomnia being the Rollerskates
I can't see that I am going to be able to address the issue of CPAP until I get the problem of Insomnia solved

But the doctors seem to me to think that the Insomnia is a function of the Apnea
If that is the case - I'm probably a Train Wreck waiting to happen

.

For some of us, insomnia is a way of avoiding sleep because our brain unconsciously knows that sleep is dangerous. For example, if we wake up with a bad nightmare, we aren't always wanting to go back to sleep. Well, our brains know that choking, gasping, oxygen deprivation, etc is really bad. So, we resist going to bed.

I used to lay awake for an hour or more. I am already a severe night owl (possibly from decades of untreated sleep apnea). Now, with cpap, I usually fall asleep within 5 minutes or so. I barely remember anything after laying down.

Back when I had my sleep study, I had such a good night with the machine that the next night (at home without the machine), I had a dream where I was angry that I did NOT have a machine yet. I wanted one NOW. This is because my brain, even though I was asleep, KNEW that I needed another good night like that, and the machine was the reason I slept so well.

You have probably had YEARS of bad sleep. Probably decades. We don't start out at severe. And severe usually only refers to the number of events per hour, not how bad the oxygen goes down. So,, you have a double case of bad. Lots of events and probably long events to get that low oxygen saturation. Most likely the cause of the heart problems.

You NEED to make this work for you.

You need to list your equipment, list your settings, and list the actual problems. We can help you make adjustments.

Wear it during the day while watching tv or reading a book. Get used to it. Let your brain accept it is as helpful and not an enemy. This can save your life AND improve your quality of life.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?

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Uncle_Bob
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Location: Arizona

Re: They Tell Me I Need This Machine

Post by Uncle_Bob » Sat Sep 03, 2016 1:48 am

zoocrewphoto wrote: For some of us, insomnia is a way of avoiding sleep because our brain unconsciously knows that sleep is dangerous. For example, if we wake up with a bad nightmare, we aren't always wanting to go back to sleep. Well, our brains know that choking, gasping, oxygen deprivation, etc is really bad. So, we resist going to bed.

I used to lay awake for an hour or more. I am already a severe night owl (possibly from decades of untreated sleep apnea). Now, with cpap, I usually fall asleep within 5 minutes or so. I barely remember anything after laying down.

Back when I had my sleep study, I had such a good night with the machine that the next night (at home without the machine), I had a dream where I was angry that I did NOT have a machine yet. I wanted one NOW. This is because my brain, even though I was asleep, KNEW that I needed another good night like that, and the machine was the reason I slept so well.

You have probably had YEARS of bad sleep. Probably decades. We don't start out at severe. And severe usually only refers to the number of events per hour, not how bad the oxygen goes down. So,, you have a double case of bad. Lots of events and probably long events to get that low oxygen saturation. Most likely the cause of the heart problems.

You NEED to make this work for you.

You need to list your equipment, list your settings, and list the actual problems. We can help you make adjustments.

Wear it during the day while watching tv or reading a book. Get used to it. Let your brain accept it is as helpful and not an enemy. This can save your life AND improve your quality of life.
Great post, good advice

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ckeith
Posts: 72
Joined: Fri Sep 02, 2016 10:12 am

Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 2:40 am

Gasper62 wrote: ...... decide who's gonna' be the master. (the machine... or you) .....
Maybe that is a very cogent part of the problem
I am going to have to let the machine be the master
Maybe that is why I find it - So Repulsive

Gotta get a grip - Get a handle on this Insomnia

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ckeith
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Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 2:54 am

zoocrewphoto wrote:
.....Wear it during the day while watching tv or reading a book. Get used to it. Let your brain accept it .....
Yes I do that - I can almost tolerate it while if I'm sitting in a chair listening to music

I was not given one to wear during the sleep study - I was able to sleep for only a short time
The attendant was surprised at how much of that little bit of time was spent in REM

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49er
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Joined: Mon Jan 16, 2012 8:18 am

Re: They Tell Me I Need This Machine

Post by 49er » Sat Sep 03, 2016 2:58 am

We still need you to fill out the equipment profile so that every time you post, it is listed. That way, members don't have to keep going back in your thread to find the information.

So if you could use the link in my signature to do that, it would be very helpful. Where it says additional comments, please list your pressure settings.

Thanks!

49er

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zoocrewphoto
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Location: Seatac, WA

Re: They Tell Me I Need This Machine

Post by zoocrewphoto » Sat Sep 03, 2016 3:03 am

ckeith wrote:
zoocrewphoto wrote:
.....Wear it during the day while watching tv or reading a book. Get used to it. Let your brain accept it .....
Yes I do that - I can almost tolerate it while if I'm sitting in a chair listening to music

I was not given one to wear during the sleep study - I was able to sleep for only a short time
The attendant was surprised at how much of that little bit of time was spent in REM

Can you tell us what problems you are having?

For example, does the air feel like too much? Or maybe you feel starved for air?

Does the mask leak? If so, does it hiss or belch? Where is it leaking? And which mask is it?

Does the mask hurt? If, so where does it hurt?

Are you using ramp? If so, how long, and what does it start it?

Is your pressure a straight 10, or is it a range?

How is the humidity? Too much?/ Not enough?
Temp of the air? Too warm, too cool?

We can help with all of these.

Also, you can download free data and see what your machine is doing. You can make your own changes. You can have power over this machine. When you know what is going on and control its settings, you will feel better about it. Part of the problem with adjusting to cpap is that the doctors really don't tell you much and just send you home with a frustrating situation. Once you take control, it gets a lot better. And we can help you take control.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?

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49er
Posts: 5624
Joined: Mon Jan 16, 2012 8:18 am

Re: They Tell Me I Need This Machine

Post by 49er » Sat Sep 03, 2016 3:09 am

zoocrewphoto wrote:
ckeith wrote:
zoocrewphoto wrote:
.....Wear it during the day while watching tv or reading a book. Get used to it. Let your brain accept it .....
Yes I do that - I can almost tolerate it while if I'm sitting in a chair listening to music

I was not given one to wear during the sleep study - I was able to sleep for only a short time
The attendant was surprised at how much of that little bit of time was spent in REM

Can you tell us what problems you are having?

For example, does the air feel like too much? Or maybe you feel starved for air?

Does the mask leak? If so, does it hiss or belch? Where is it leaking? And which mask is it?

Does the mask hurt? If, so where does it hurt?

Are you using ramp? If so, how long, and what does it start it?

Is your pressure a straight 10, or is it a range?

How is the humidity? Too much?/ Not enough?
Temp of the air? Too warm, too cool?

We can help with all of these.

Also, you can download free data and see what your machine is doing. You can make your own changes. You can have power over this machine. When you know what is going on and control its settings, you will feel better about it. Part of the problem with adjusting to cpap is that the doctors really don't tell you much and just send you home with a frustrating situation. Once you take control, it gets a lot better. And we can help you take control.
Great post ZC.

49er

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ckeith
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Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 3:12 am

palerider wrote: it's listed as "AirSense™ 10 AutoSet CPAP Machine with HumidAir™ Heated Humidifier"
THANX - found it - I was looking for ResMed - Seems you can be a bit of a help after all - THANX

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zoocrewphoto
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Location: Seatac, WA

Re: They Tell Me I Need This Machine

Post by zoocrewphoto » Sat Sep 03, 2016 3:47 am

ckeith wrote:
palerider wrote: it's listed as "AirSense™ 10 AutoSet CPAP Machine with HumidAir™ Heated Humidifier"
THANX - found it - I was looking for ResMed - Seems you can be a bit of a help after all - THANX

The machine listed in your signature is the cpap. If your machine is really the autoset cpap, you will want to correct that. It will affect our advice since the autoset can do more than the plain cpap machine.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?

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ckeith
Posts: 72
Joined: Fri Sep 02, 2016 10:12 am

Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 3:50 am

49er wrote:
Can you tell us what problems you are having?

For example, does the air feel like too much? Or maybe you feel starved for air?

Does the mask leak? If so, does it hiss or belch? Where is it leaking? And which mask is it?

Does the mask hurt? If, so where does it hurt?

Are you using ramp? If so, how long, and what does it start it?

Is your pressure a straight 10, or is it a range?

How is the humidity? Too much?/ Not enough?
Temp of the air? Too warm, too cool?

We can help with all of these.

Also, you can download free data and see what your machine is doing. You can make your
own changes. You can have power over this machine. When you know what is going on and
control its settings, you will feel better about it. Part of the problem with adjusting to cpap
is that the doctors really don't tell you much and just send you home with a frustrating situation.
Once you take control, it gets a lot better. And we can help you take control.

- Sometimes I feel like I'm choking for air - Sometimes I feel like I'm being blown away
- It constains me - Very VERY Unpleasant to say the least -
- I blows air all over my face whenever I move

Still looking for the Info on the Mask - I'll call later in the day when 'Medigas' my provider opens

Sometimes it makes a sucking sound - Like a straw though ice on the bottom of a glass

No RAMP time - He took that off when I complained about choking
It is set at 10 - I'm not sure if there is a range - I believe it is frozen at 10

"Humidity" - I don't know - I have Not been able to tolerate it long enough in bed to find out
My Blood pressure just goes too high - I take it off after it passes 200 and I feel the adrenalin

I can't allow my Blood Pressure to go off the charts, I'm on a powerful Blood thinner "Eliquis"
I do NOT want to go into AFib
and I do not want to blow a tube in that pudding between my ears & behind my headlights

I'll be honest with you - The longest I have had it on is about 5 min. sitting in a chair
during that time "Humidity" did not seem to be an issue.

.
.

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Julie
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Re: They Tell Me I Need This Machine

Post by Julie » Sat Sep 03, 2016 4:02 am

Humidity is only necessary if local conditions (inside) are dry enough to need it... it's not 'therapy' itself, just facilitates it, so feel free not to use it at all til you feel the need.

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ckeith
Posts: 72
Joined: Fri Sep 02, 2016 10:12 am

Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 4:19 am

49er wrote:
zoocrewphoto wrote:
ckeith wrote:
zoocrewphoto wrote:
.....Wear it during the day while watching tv or reading a book. Get used to it. Let your brain accept it .....
Yes I do that - I can almost tolerate it while if I'm sitting in a chair listening to music

I was not given one to wear during the sleep study - I was able to sleep for only a short time
The attendant was surprised at how much of that little bit of time was spent in REM

Can you tell us what problems you are having?

For example, does the air feel like too much? Or maybe you feel starved for air?

Does the mask leak? If so, does it hiss or belch? Where is it leaking? And which mask is it?

Does the mask hurt? If, so where does it hurt?

Are you using ramp? If so, how long, and what does it start it?

Is your pressure a straight 10, or is it a range?

How is the humidity? Too much?/ Not enough?
Temp of the air? Too warm, too cool?

We can help with all of these.

Also, you can download free data and see what your machine is doing. You can make your own changes.
You can have power over this machine. When you know what is going on and control its settings, you will
feel better about it. Part of the problem with adjusting to cpap is that the doctors really don't tell you
much and just send you home with a frustrating situation. Once you take control, it gets a lot better.
And we can help you take control.
Sometimes I feel like I'm choking for air - Sometimes I feel like "I'm being blown away

It leaks when I move - I have to keep fooling around with it

It sometimes makes a nasty sucking sound when I inhale - Like sucking ice on the bottom of a glass with a straw wh

I get no physical pain - All the pain is Psychological - On might even say Irrational - NO less - REAL & INTENSE
I cannot help getting angry - It feels to me like an INVASION - It is strapped to me - I have NO choice
The air it pumps up my nose seems to me totally weird and UNATURAL like something I feel compelled to Spit Out


No RAMP - My provider took that off when I complained about choking

The pressure seems to be permanently set at 10 - I don't think there is any range set

" Humidity" ?? I don't know
- I'll be honest with you - 5 min. is the longest time I have been able to tolerate it while in bed
and then I start to SEETH - I can do a bit longer sitting in a chair listening to music

When my BP gets up around 200 and my RAGE at the THING starts me pumping adrenalin
I have to take it off - I am on a powerful blood thinner - I don't want to pop a tube in that
pudding that sloshes around between my ears and behind my headlights


.

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ckeith
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Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 4:35 am

[quote="zoocrewphoto
The machine listed in your signature is the cpap. If your machine is really the autoset cpap,
you will want to correct that. It will affect our advice since the autoset can do more than the plain cpap machine.[/quote]


Yah I checked it out - Hard to think - Hard to function properly - I'm very tired

It is an AUTOSET 10 for Her - does the "for her" make any difference - I am male gender ?

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ckeith
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Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 4:46 am

49er wrote:
zoocrewphoto wrote:
ckeith wrote:
zoocrewphoto wrote:
.....Wear it during the day while watching tv or reading a book. Get used to it. Let your brain accept it .....
Yes I do that - I can almost tolerate it while if I'm sitting in a chair listening to music

I was not given one to wear during the sleep study - I was able to sleep for only a short time
The attendant was surprised at how much of that little bit of time was spent in REM

Can you tell us what problems you are having?

For example, does the air feel like too much? Or maybe you feel starved for air?

Does the mask leak? If so, does it hiss or belch? Where is it leaking? And which mask is it?

Does the mask hurt? If, so where does it hurt?

Are you using ramp? If so, how long, and what does it start it?

Is your pressure a straight 10, or is it a range?

How is the humidity? Too much?/ Not enough?
Temp of the air? Too warm, too cool?

We can help with all of these.

Also, you can download free data and see what your machine is doing. You can make your own changes.
You can have power over this machine. When you know what is going on and control its settings, you will
feel better about it. Part of the problem with adjusting to cpap is that the doctors really don't tell you
much and just send you home with a frustrating situation. Once you take control, it gets a lot better.
And we can help you take control.
Sometimes I feel like I'm choking for air - Sometimes I feel like "I'm being blown away

It leaks when I move - I have to keep fooling around with it

It sometimes makes a nasty sucking sound when I inhale - Like sucking ice on the bottom of a glass with a straw

Any pain is Psychological one might even say irrational - NO less INTENSE - No less REAL

No RAMP - He took that off when I complained about choking

Pressure seems permanently set at 10 - I don't think there is any range set

" Humidity" - I'll be honest with you - 5 min. is the longest time I have been able to wear it in bed
and then I start to SEETH - I can do a bit longer sitting in a chair listening to music

When my BP gets up around 200 and my RAGE at the THING starts me pumping adrenalin
I have to take it off - I am on a powerful blood thinner - I don't want to pop a tube in that
pudding that sloshes around between my ears and behind my headlights

Or go into Afib
.

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ckeith
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Joined: Fri Sep 02, 2016 10:12 am

Re: They Tell Me I Need This Machine

Post by ckeith » Sat Sep 03, 2016 5:13 am

The machine seems so horribly UNATURAL to me -
I am so tired - can't deal with it now - want to spit it out
it is strapped to me - I have no choice - It is just a thing
it is an imposition an invasion - I have no choice

I am so tired
those are the things I feel - It seems a horror to me
irrational insane call me what you want -

I have to take this THING on - I have no choice
right now I am confused - so tired I hallucinate

gotta go for a bit - try and unwind

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