ghost mask

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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ChicagoGranny
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Re: ghost mask

Post by ChicagoGranny » Sat Feb 06, 2021 8:01 am

dpeterzell wrote:
Sat Feb 06, 2021 5:55 am
You've got a mild case compared the person I met who walks around with the sensation that she is still her car, which she has 'emodied'.
How's her MPG?

Movieman
Posts: 82
Joined: Mon Nov 30, 2020 11:38 am

Re: ghost mask

Post by Movieman » Sat Feb 06, 2021 9:23 am

chunkyfrog wrote:
Fri Feb 05, 2021 11:06 pm
I don't understand how nerves work, but I understand that most get used to it
to the point that it's not significant.
As for my mastectomy, they got all the cancer (nearly 6 years ago),
and left me with jugs that I can make dance.
Cool party trick . . .
That’s great they got it all!!!

Lol on the dancing jugs.

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elsueno
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Re: ghost mask

Post by elsueno » Sat Feb 06, 2021 6:38 pm

x

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Additional Comments: ResMed S9 VPAP Auto (I've had 4), I don't use the humidifier
Last edited by elsueno on Sat Feb 20, 2021 1:28 am, edited 1 time in total.

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ChicagoGranny
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Re: ghost mask

Post by ChicagoGranny » Sun Feb 07, 2021 7:55 am

Image

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cyberdreamer
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Location: Brazil

Re: ghost mask

Post by cyberdreamer » Sun Feb 07, 2021 8:44 am

ChicagoGranny wrote:
Tue Jul 12, 2016 3:50 pm
lisajune103161 wrote:Does anyone ever feel like their mask is on when its not?
Mine feels like it is not on when it is.
After 5 years, I have the exact experience. Don't even notice my breathing when hooked to the machine. Thankfully, the mind can quickly adapt to new uncomfortable situations.
Machine: Airsense 10 Autoset (humidity 7, slimline hose) (5 years)
Mask: Resmed F30 (medium) (1 year)
Previous masks: Swift FX Nano (5 years); Dreamwear Nasal (few days); Swift FX pillow (few days)
Sleep study in 2016 with AHI 12 and some oxy desats

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loggerhead12
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Re: ghost mask

Post by loggerhead12 » Sun Feb 07, 2021 9:01 am

dpeterzell wrote:
Sat Feb 06, 2021 6:23 am
ChicagoGranny wrote:
Tue Jul 12, 2016 3:50 pm
Mine feels like it is not on when it is.
Uh oh. send this one to the psych ward
Nah, that just means it everything's working like it's supposed to. After the first few minutes I don't feel the device or the pressure.

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elsueno
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Re: ghost mask

Post by elsueno » Sun Feb 07, 2021 11:36 am

x

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: ResMed S9 VPAP Auto (I've had 4), I don't use the humidifier
Last edited by elsueno on Sat Feb 20, 2021 1:27 am, edited 2 times in total.

Movieman
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Re: ghost mask

Post by Movieman » Sun Feb 07, 2021 7:35 pm

dpeterzell wrote:
Sun Feb 07, 2021 11:36 am
loggerhead12 wrote:
Sun Feb 07, 2021 9:01 am
dpeterzell wrote:
Sat Feb 06, 2021 6:23 am
ChicagoGranny wrote:
Tue Jul 12, 2016 3:50 pm
Mine feels like it is not on when it is.
Uh oh. send this one to the psych ward
Nah, that just means it everything's working like it's supposed to. After the first few minutes I don't feel the device or the pressure.
yes obviously. :lol:
ChicagoGranny wrote:
Sun Feb 07, 2021 7:55 am
Image
Some questions for all of you phantom mask people. 1). When you experience the phantom mask, what exactly do you feel? Do you feel like your face sticks out further than usual? Do you feel tingling, buzzing, or pins and needles? Is it there constantly, or does it come and go? 2) Is your experience of the phantom mask more prevalent during COVID and these mask-wearing times?
For my ghost/phantom mask experience, I feel the actual outline of where the mask touches around my face like a thin line all around my face. Also around back of head where headgear goes. No tingling face does not feel like it’s sticking out. It is more of a pressure. It’s like when you get a new pair of glasses when you never worn them before. Then you wear the glasses all day but when you take them you feel like they are still on for awhile afterward. My ghost mask comes and goes. I feel it for awhile after I take off mask in the morning, but then it goes away. However a few hours later if I lay down I could start to feel it again even without wearing the mask since morning. And becomes more prominent when I lay on my side. Then it goes away again. I did not use CPAP for two nights last week and by second night I didn’t notice the feeling anymore. Took two days to go away!! 😂

I just started using CPAP 2/12 months ago so I don’t know about pre-Covid. I do suffer from panic attacks/anxiety and had a very hard time using Covid mask. I did it though don’t want to get sick. Being I have panic attacks maybe pre-disposed me to something like this? I don’t know. However this feeling only started very recently about two and half weeks ago. So, I used CPAP for two months without this feeling. I have sleep doc appointment tomorrow. You can bet I’m bringing this up!!! 😂 also, I love that meme Chicago granny!!! 😂

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elsueno
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Re: ghost mask

Post by elsueno » Mon Feb 08, 2021 1:40 pm

x

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: ResMed S9 VPAP Auto (I've had 4), I don't use the humidifier
Last edited by elsueno on Sat Feb 20, 2021 1:25 am, edited 1 time in total.

Movieman
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Re: ghost mask

Post by Movieman » Fri Feb 12, 2021 10:40 pm

elsueno wrote:
Mon Feb 08, 2021 1:40 pm
Movieman wrote:
Sun Feb 07, 2021 7:35 pm

For my ghost/phantom mask experience, I feel the actual outline of where the mask touches around my face like a thin line all around my face. Also around back of head where headgear goes. No tingling face does not feel like it’s sticking out. It is more of a pressure. It’s like when you get a new pair of glasses when you never worn them before. Then you wear the glasses all day but when you take them you feel like they are still on for awhile afterward. My ghost mask comes and goes. I feel it for awhile after I take off mask in the morning, but then it goes away. However a few hours later if I lay down I could start to feel it again even without wearing the mask since morning. And becomes more prominent when I lay on my side. Then it goes away again. I did not use CPAP for two nights last week and by second night I didn’t notice the feeling anymore. Took two days to go away!! 😂

I just started using CPAP 2/12 months ago so I don’t know about pre-Covid. I do suffer from panic attacks/anxiety and had a very hard time using Covid mask. I did it though don’t want to get sick. Being I have panic attacks maybe pre-disposed me to something like this? I don’t know. However this feeling only started very recently about two and half weeks ago. So, I used CPAP for two months without this feeling. I have sleep doc appointment tomorrow. You can bet I’m bringing this up!!! 😂 also, I love that meme Chicago granny!!! 😂
Thanks for that. My own experience of the phantom mask is that my nose and lips protrude out, as if to embody the full-face mask. I never noticed this until I started wearing masks for COVID. Burt once I transitioned to bleep, the phantom mask went away. When I used the FFM a couple times recently, it came back. Sometimes, the phantom tingles a bit, like pins and needles.

I've been interested in this because this whole idea of body plasticity is related to my clinical research with people who have lost limbs. People who have phantom limbs and can align their phantoms with prosthetic arms or legs seem to do better than those who don't have the phantoms, or can't get the phantom limb to align with the artificial limb. Plus it is just interesting that some people have these 'ghost' sensations -- experiencing the body as beyond the limits of one's skin. It has implications for neural plasticity. (See the classic Phantoms in the Brain by Ramachandran and Blakesee).
Thanks for your experience. It does help to know I’m not alone. I’m not sure what I’ll do about this. It isn’t going away and it’s getting more uncomfortable and intense. My sleep doctor doesn’t seem to know anything about ghost mask which is frustrating.

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elsueno
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Re: ghost mask

Post by elsueno » Sat Feb 13, 2021 12:58 pm

x

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: ResMed S9 VPAP Auto (I've had 4), I don't use the humidifier
Last edited by elsueno on Sat Feb 20, 2021 1:18 am, edited 1 time in total.

Movieman
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Joined: Mon Nov 30, 2020 11:38 am

Re: ghost mask

Post by Movieman » Sun Feb 14, 2021 2:08 pm

Thanks elsueno. I’ve been trying your suggestion since last night and this morning. Not working yet. I’ll keep at it for the week to see if it makes a difference.

I’m sleeping much worse since I started CPAP, had multiple other side effects and now this side effect. I think I was better off before CPAP. We will see what happens.

Appreciate the help!

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chunkyfrog
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Re: ghost mask

Post by chunkyfrog » Mon Feb 15, 2021 2:43 pm

People with phantom limb sensations have been helped by using mirrors.
Try keeping a mirror nearby, and when unwanted sensations appear,
admire your sweet face--with or without a mask.

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Movieman
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Joined: Mon Nov 30, 2020 11:38 am

Re: ghost mask

Post by Movieman » Mon Feb 15, 2021 10:10 pm

chunkyfrog wrote:
Mon Feb 15, 2021 2:43 pm
People with phantom limb sensations have been helped by using mirrors.
Try keeping a mirror nearby, and when unwanted sensations appear,
admire your sweet face--with or without a mask.
LOL :lol: :lol: :lol: :lol: Thanks, I will!!!