cpap/sleep apnea

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
chevy25001

cpap/sleep apnea

Post by chevy25001 » Mon Jun 06, 2016 4:49 pm

Hi,

I've been recently diagnosed with sleep apnea. I've been wearing my cpap machine for the third week now and feel a lot better then what i use to. On my second week of using the machine though I've had some issues. I've had 6 episodes in my second week of wearing the machine. when i say episodes i mean I'm going along in my daily routine and my head will drop down for 15 sec. or so i can tell that some time has passed. when its over i continue on like normal. i was wondering if this is a sign narolespy or my body becoming used to the cap machine? your help will be greatly appreciated thanks.

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Bons
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Re: cpap/sleep apnea

Post by Bons » Mon Jun 06, 2016 6:10 pm

There are all kinds of reasons why we can get tired during the day. Are you on any medications? Are you getting enough sleep at night? Are you doing things during the day that either wear you out or bore you to sleep? These days I'm tired during the day because of allergies that aren't controlled well enough by medication, and a new beta blocker.

"Getting used to cpap" wont make you more tired. All cpap does is keep your airway open WHILE THE MACHINE IS ON. The air pressure sorta pushes against the soft tissues in your throat and keeps them open so air can get into your longs. it does nothing for you unless it is on. You can't build up a tolerance to it, Pressures MAY not be high enough. Do you have data to see whether your apnea is under control?

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chunkyfrog
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Re: cpap/sleep apnea

Post by chunkyfrog » Mon Jun 06, 2016 6:26 pm

There was a short period of time, where I felt the effect of lowered levels of stress hormones,
but not yet a lot of new energy. It was temporary. I felt droopy, but not drowsy--weird.
The stress hormones had me all hopped up, (giggle), so the reduction was a bit of a downer.
All this while I was getting my first real, decent sleep in ages, so not sleepy in the day.

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Julie
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Re: cpap/sleep apnea

Post by Julie » Mon Jun 06, 2016 7:23 pm

If you had a proper in-lab study, narcolepsy would have been seen, certainly flagged as a possibility, and just dropping your head x a few mins probably doesn't quality. Is it really completely involuntary, or could anxiety maybe have a role in there?
Last edited by Julie on Tue Jun 07, 2016 3:25 am, edited 1 time in total.

chevy25001

Re: cpap/sleep apnea

Post by chevy25001 » Mon Jun 06, 2016 7:46 pm

Hi,
when i have these episodes i can not control them. the majority of them happened while sitting in a vichele, and 1 of them inside a store. after it happens i can tell time has lapsed. somebody watched me while i had theses, and they say my eyes are not closed i look straight down and mumble. I've been tested for everything under the sun. seizures, heart related problems, blood flow in my head and neck. all have come back negative. i got dignoised with sleep apnea and have these issues now.

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LSAT
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Re: cpap/sleep apnea

Post by LSAT » Mon Jun 06, 2016 8:24 pm

chevy25001 wrote:Hi,
when i have these episodes i can not control them. the majority of them happened while sitting in a vichele, and 1 of them inside a store. after it happens i can tell time has lapsed. somebody watched me while i had theses, and they say my eyes are not closed i look straight down and mumble. I've been tested for everything under the sun. seizures, heart related problems, blood flow in my head and neck. all have come back negative. i got dignoised with sleep apnea and have these issues now.
See a neurologist

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Julie
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Re: cpap/sleep apnea

Post by Julie » Mon Jun 06, 2016 8:31 pm

+1

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Bons
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Re: cpap/sleep apnea

Post by Bons » Mon Jun 06, 2016 8:36 pm

This doesn't sound at all related to sleep apnea. I agree with the neuro consult.

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BlackSpinner
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Re: cpap/sleep apnea

Post by BlackSpinner » Mon Jun 06, 2016 10:03 pm

That sounds more like a seizures - Go to ER.

ETA: do not drive there - get someone to drive you or take a taxi.

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49er
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Re: cpap/sleep apnea

Post by 49er » Tue Jun 07, 2016 3:52 am

chevy25001 wrote:Hi,

I've been recently diagnosed with sleep apnea. I've been wearing my cpap machine for the third week now and feel a lot better then what i use to. On my second week of using the machine though I've had some issues. I've had 6 episodes in my second week of wearing the machine. when i say episodes i mean I'm going along in my daily routine and my head will drop down for 15 sec. or so i can tell that some time has passed. when its over i continue on like normal. i was wondering if this is a sign narolespy or my body becoming used to the cap machine? your help will be greatly appreciated thanks.
I definitely agree with the suggestions to see the neurologist.

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jnk...
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Re: cpap/sleep apnea

Post by jnk... » Tue Jun 07, 2016 7:31 am

Also inform sleep doc in case a multiple sleep latency test (MSLT), which is not part of the test for obstructive sleep apnea, might be in order.
Julie wrote:If you had a proper in-lab study, narcolepsy would have been seen . . .
Narcolepsy can easily be missed in an NPSG, especially when moderate-to-severe OSA is present. Some estimate that as many as 50% of cases are "missed" during in-lab overnight studies. Generally, as I understand it, OSA is often treated first before narcolepsy symptoms are investigated, since OSA can at times mimic the symptoms.
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