Looking for dimensions--- Amara View (small)

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
mjmia3
Posts: 22
Joined: Sun Mar 20, 2016 11:21 pm

Re: Looking for dimensions--- Amara View (small)

Post by mjmia3 » Fri Apr 01, 2016 10:22 am

We are driving to the only Children's Hospital in the state for all of her care. I got her a total face mask 2 nights ago, and she seems to be doing awesome.

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ChicagoGranny
Posts: 15093
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Looking for dimensions--- Amara View (small)

Post by ChicagoGranny » Fri Apr 01, 2016 10:29 am

mjmia3 wrote:I got her a total face mask 2 nights ago, and she seems to be doing awesome.
That is great to hear!

Soon, you should think about this -->
ChicagoGranny wrote:
MamaOf4 wrote: She has a bulky back of the tongue, so they don't expect to have her off CPAP.
mjmia3 wrote:She will be 5 in 2 weeks
I encourage you to have your daughter evaluated now by an orthodontist who has as a specialty treating sleep apnea with orthodontics. If you live in an urban area, such an orthodontist should not be too hard to find.

There is a lot that can be done with jaw and palate expanders. Just one extra millimeter of clearance can sometimes cure a patient of sleep apnea for life. The orthodontist will determine if treatment is appropriate and will recommend the best age to start treatment. If not 100% confident in the proposal, a second opinion would be a good thing to pursue.

JDS74
Posts: 3397
Joined: Sun Jan 23, 2011 2:57 pm
Location: South Carolina

Re: Looking for dimensions--- Amara View (small)

Post by JDS74 » Sat Apr 02, 2016 6:21 am

Looking at one of the videos, I noticed that your daughter is on a Trilogy 100 ventilator machine and not on a regular CPAP.
It would be helpful if you filled out the equipment profile and noted that in the equipment section additional comments.

I'm glad you found a mask that is working.

_________________
Mask: Oracle HC452 Oral CPAP Mask
Humidifier: DreamStation Heated Humidifier
Additional Comments: EverFlo Q 3.0 Liters O2 PR DSX900 ASV
Oracle 452 Lessons Learned Updated
DSX900 AutoSV with HC150 extra humidifier and Hibernite heated hose
Settings: EPAP Min-10.0, EPAP Max-17, PS Min-3, PS Max-10, Max Pressure-20, Rate-Auto, Biflex-1.
Sleepyhead and Encore Pro 2.21.