First week nightmare.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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BlackSpinner
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Re: First week nightmare.

Post by BlackSpinner » Sun Feb 21, 2016 12:18 pm

Gcfcos wrote: Thanks for that. I've gone into the clinical settings and turned the beginning pressure up to 6 from 4, just tried the mask on for a few minutes and possibly seems a bit better, I'll know when I go to bed tonight. I haven't touched the max pressure of 10 though untill after I speak to my specialist. The specialist at the hospital says I've got the worst case of osa he's seen in a while so a max of 10 seems low to me?
Pressure has no relationship to severity. Mine was extreme and my O2 dropped to 56% but a pressure of 7 reduced it down dramatically and 9 means an AHI of 0. One can have an AHI of 15 and require a pressure of 19 or more.

Put that mask back on and watched some tv or play some computer games.

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Re: First week nightmare.

Post by palerider » Sun Feb 21, 2016 7:10 pm

Gcfcos wrote: haven't touched the max pressure of 10 though untill after I speak to my specialist. The specialist at the hospital says I've got the worst case of osa he's seen in a while so a max of 10 seems low to me?
pressure and apnea severity (number of events) have absolutely no correlation to each other. (what she said)

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Re: First week nightmare.

Post by Mudrock63 » Sun Feb 21, 2016 10:32 pm

If you are still having trouble feeling suffocated, try turning the ramp feature off, like another poster said. My pressure is set at 18-20 and I have no difficulty getting right to it.

You have to be patient and get used to this stuff. It is a major adjustment, but it is going to save your life if you stick to it.

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California1849
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Re: First week nightmare.

Post by California1849 » Sun Feb 21, 2016 11:58 pm

Hi there,

Another first weeker, and I'll just add that the original minimum machine settings also made me feel suffocated. I've reset to a higher pressure, and also deactivated the ramp "feature."

Like you, hoping for a better night.

Good luck.

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Gcfcos
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Re: First week nightmare.

Post by Gcfcos » Mon Feb 22, 2016 2:18 pm

California1849 wrote:Hi there,

Another first weeker, and I'll just add that the original minimum machine settings also made me feel suffocated. I've reset to a higher pressure, and also deactivated the ramp "feature."

Like you, hoping for a better night.

Good luck.
Hi there, yes I've turned the start pressure from 4 up to 6 and I phoned the specialist today who looked and saw my events were really high so she turned the max pressure from 10 up to 12. We'll see how I get on tonight! How are u getting on with yours now?

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Re: First week nightmare.

Post by WindCpap » Mon Feb 22, 2016 2:49 pm

It sounds like you are gasping and choking, and throwing the event calculation off while you are awake. Don't worry about events for right now. I would turn the pressure back down to 10, and leave it there until you get at least 4-5 hours straight sleep. Don't deactivate the ramp. You have an Airsense 10 Elite which has an excellent autoramp. Set your ramp pressure to 7, and your EPR to 3, but ramp only. This will mean that you are inhaling at 7 cmH20, and exhaling at 4, but the moment you fall asleep, the machine will ramp to 10 cmH20 therapy pressure over 3 minutes. Only the events from that point forward will be counted. It also does this at 30 minutes, but you can turn it off/on to reset the ramp. People who advise turning off the ramp either never had autoramp (it is only available on the Airsense 10 machines) or never set the ramp up properly for comfortable breathing. When set correctly, it will make falling asleep much easier.

Edit: Forgot to mention that you need to set the ramp time all the way up until it says "Auto" to activate the autoramp.

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California1849
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Re: First week nightmare.

Post by California1849 » Mon Feb 22, 2016 4:12 pm

Last night I set the minimum to 6, left the maximum at 20, and deactivated the auto-ramp. It felt much easier to breathe.

It was my best night of sleep by far (out of only 4 to date), and I actually feel pretty good today.

Please don't take my limited experience as advice...just trying to figure things out, like you.

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Re: First week nightmare.

Post by Gcfcos » Mon Feb 22, 2016 4:29 pm

California1849 wrote:Last night I set the minimum to 6, left the maximum at 20, and deactivated the auto-ramp. It felt much easier to breathe.

It was my best night of sleep by far (out of only 4 to date), and I actually feel pretty good today.

Please don't take my limited experience as advice...just trying to figure things out, like you.
Yeah sounds good to me mate, when I had it on 4 I really struggled as soon as I laid down and found it very hard to breathe and within minutes I felt suffocated and had to sit up, soon as I turned it up to 6 I found it a lot easier, plus I turned the tube temp down to 19 degrees as I didn't like the warm air. I've left
The humidity on auto. I did have the tube temp on 16 but ended up with "rain out" mask

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Re: First week nightmare.

Post by OkyDoky » Mon Feb 22, 2016 5:34 pm

WindCpap wrote:It sounds like you are gasping and choking, and throwing the event calculation off while you are awake. Don't worry about events for right now. I would turn the pressure back down to 10, and leave it there until you get at least 4-5 hours straight sleep. Don't deactivate the ramp. You have an Airsense 10 Elite which has an excellent autoramp. Set your ramp pressure to 7, and your EPR to 3, but ramp only. This will mean that you are inhaling at 7 cmH20, and exhaling at 4, but the moment you fall asleep, the machine will ramp to 10 cmH20 therapy pressure over 3 minutes. Only the events from that point forward will be counted. It also does this at 30 minutes, but you can turn it off/on to reset the ramp. People who advise turning off the ramp either never had autoramp (it is only available on the Airsense 10 machines) or never set the ramp up properly for comfortable breathing. When set correctly, it will make falling asleep much easier.

Edit: Forgot to mention that you need to set the ramp time all the way up until it says "Auto" to activate the autoramp.
WindCpap, did you notice his minimum pressure was recently changed from 4 to 6 so he can't and doesn't need to set ramp pressure at 7. And until Sleepyhead data is evaluated we don't have enough info to guess at other pressures. The tech may have seen obstructions that we don't know about.
I have the latest and greatest machine but never felt the need for ramp after the first week. People can find out which they like but it is individual preference, not one right or wrong. EPR is the same way and if I had an autoset I would use it full time because it is comfortable for me. That is why I have a bilevel.
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Re: First week nightmare.

Post by palerider » Mon Feb 22, 2016 5:38 pm

WindCpap wrote:It sounds like you are gasping and choking, and throwing the event calculation off while you are awake. Don't worry about events for right now. I would turn the pressure back down to 10, and leave it there until you get at least 4-5 hours straight sleep. Don't deactivate the ramp.
best to just ignore the wind...

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Re: First week nightmare.

Post by WindCpap » Mon Feb 22, 2016 8:06 pm

OkyDoky wrote:
WindCpap wrote:It sounds like you are gasping and choking, and throwing the event calculation off while you are awake. Don't worry about events for right now. I would turn the pressure back down to 10, and leave it there until you get at least 4-5 hours straight sleep. Don't deactivate the ramp. You have an Airsense 10 Elite which has an excellent autoramp. Set your ramp pressure to 7, and your EPR to 3, but ramp only. This will mean that you are inhaling at 7 cmH20, and exhaling at 4, but the moment you fall asleep, the machine will ramp to 10 cmH20 therapy pressure over 3 minutes. Only the events from that point forward will be counted. It also does this at 30 minutes, but you can turn it off/on to reset the ramp. People who advise turning off the ramp either never had autoramp (it is only available on the Airsense 10 machines) or never set the ramp up properly for comfortable breathing. When set correctly, it will make falling asleep much easier.

Edit: Forgot to mention that you need to set the ramp time all the way up until it says "Auto" to activate the autoramp.
WindCpap, did you notice his minimum pressure was recently changed from 4 to 6 so he can't and doesn't need to set ramp pressure at 7. And until Sleepyhead data is evaluated we don't have enough info to guess at other pressures. The tech may have seen obstructions that we don't know about.
I have the latest and greatest machine but never felt the need for ramp after the first week. People can find out which they like but it is individual preference, not one right or wrong. EPR is the same way and if I had an autoset I would use it full time because it is comfortable for me. That is why I have a bilevel.
Did you notice that his machine is an Elite, and not an autoset. I interpreted the low pressure to be the ramp pressure since there is no low pressure on an Elite, and advised accordingly.

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Re: First week nightmare.

Post by OkyDoky » Mon Feb 22, 2016 8:24 pm

WindCpap wrote:
OkyDoky wrote:
WindCpap wrote:It sounds like you are gasping and choking, and throwing the event calculation off while you are awake. Don't worry about events for right now. I would turn the pressure back down to 10, and leave it there until you get at least 4-5 hours straight sleep. Don't deactivate the ramp. You have an Airsense 10 Elite which has an excellent autoramp. Set your ramp pressure to 7, and your EPR to 3, but ramp only. This will mean that you are inhaling at 7 cmH20, and exhaling at 4, but the moment you fall asleep, the machine will ramp to 10 cmH20 therapy pressure over 3 minutes. Only the events from that point forward will be counted. It also does this at 30 minutes, but you can turn it off/on to reset the ramp. People who advise turning off the ramp either never had autoramp (it is only available on the Airsense 10 machines) or never set the ramp up properly for comfortable breathing. When set correctly, it will make falling asleep much easier.

Edit: Forgot to mention that you need to set the ramp time all the way up until it says "Auto" to activate the autoramp.
WindCpap, did you notice his minimum pressure was recently changed from 4 to 6 so he can't and doesn't need to set ramp pressure at 7. And until Sleepyhead data is evaluated we don't have enough info to guess at other pressures. The tech may have seen obstructions that we don't know about.
I have the latest and greatest machine but never felt the need for ramp after the first week. People can find out which they like but it is individual preference, not one right or wrong. EPR is the same way and if I had an autoset I would use it full time because it is comfortable for me. That is why I have a bilevel.
Did you notice that his machine is an Elite, and not an autoset. I interpreted the low pressure to be the ramp pressure since there is no low pressure on an Elite, and advised accordingly.
I did notice earlier but with the terminology used I did forget. There was a question earlier if it was an Elite that wasn't answered for sure. So if it is a ramp start pressure with a fixed pressure setting then the 7 ramp pressure would work.
ResMed Aircurve 10 VAUTO EPAP 11 IPAP 15 / P10 pillows mask / Sleepyhead Software / Back up & travel machine Respironics 760

WindCpap
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Re: First week nightmare.

Post by WindCpap » Mon Feb 22, 2016 8:36 pm

I used a ramp pressure of 7 at first, but then I put it up to 8 when I started having trouble with nasal congestion, and if I went back to bed with the ramp on after having been asleep, my nostrils wouldn't keep open enough. The trick with the autoramp is to find a pressure/epr combination that feels as close to natural breathing as possible. I can actually see why people with traditional ramp on their machine would not use it. The pressure just climbs steadily whether or not you are ready to sleep. If that was my only option, I think I would probably just turn it off, and try to get used to full pressure.

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Re: First week nightmare.

Post by Gcfcos » Tue Feb 23, 2016 2:40 am

Morning everyone, thanks for all your replys (apart from the guy telling me to turn down my machine to 10 lol). Well I managed 6 hours 10 minutes on the machine last night and 2.1 events per hour from over 29 to 33 events per hour I've been getting!! Having a wet shave helped with mask seal and the new pressure of 12 must have worked very happy with those results although I could do with a few more hours sleep I may go to bed earlier tonight. Woke up 3 times due to dry throat and then when awake needed toilet so may turn up humidity tonight?? Thanks again guys

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Re: First week nightmare.

Post by palerider » Tue Feb 23, 2016 2:51 am

Gcfcos wrote:Morning everyone, thanks for all your replys (apart from the guy telling me to turn down my machine to 10 lol). Well I managed 6 hours 10 minutes on the machine last night and 2.1 events per hour from over 29 to 33 events per hour I've been getting!! Having a wet shave helped with mask seal and the new pressure of 12 must have worked very happy with those results although I could do with a few more hours sleep I may go to bed earlier tonight. Woke up 3 times due to dry throat and then when awake needed toilet so may turn up humidity tonight?? Thanks again guys
congrats, and good job on figuring out what sources of noise to ignore

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