First off it's great that you posted, that obviously means you want help. And you'll find it here.blownaway wrote:I've been on CPAP now for about 4 weeks with Airsense10.
First, let me say that I'm not getting any help from Doctor or supplier (LinCare). I could sooner get to talk to the POTUS than my doctor anytime soon. Also upset that I've been given this machine and told almost notion about it or my condition. Yes, I did get a copy of my report but its technical terms meant little to me. I recall that my apnea rating was something like 51 (borderline, they said).
After complaining to Lincare, they said they'd get with doctor and try to resolve my problems. That was 2 weeks ago and I've heard nothing.
Now, to my problems. I can't sleep with this contraption blowing a hurricane on my face. I wake up numerous times with wind shrieking out the mask, tongue stuck to the roof of my mouth OR I wake up with mask ripped off and on the floor. I haven't got more than 4 hrs of interrupted sleep in more than a month. Suffering sleep deprivation. 4 - 6 wakeups/night.
With pressures of 8- 11 that is more than I can bear. I find it incredible that anyone could sleep this way.
I came here looking for answers but frankly I don't get the lingo and can't get past the extensive use of acronyms.
It appears to me that I need weeks of intensive study, and I just do not have the time to become an expert on this "therapy."
1. Please don't make the mistake of jumping to a bunch of conclusions that could have a major negative health impact on your life based on assumptions and wrong information. What I mean by that is don't assume that what you experiencing is what you have to experience, several of your statements indicate that something is wrong with your mask or something else. People don't "sleep this way". Yes there is going to be a period of adaption, but otherwise you can adapt and sleep comfortably and if you don't keep posting here and people will help you figure it out.
2. I understand the problem with getting through to your doctor, this is one of the reasons you must take your care into your own hands as much as possible so you are not dependent on him/her or anyone else. I just started treatment and one of the things I did was call my doctors office and insist on getting a copy of my prescription and results, so I was not dependent on her nor a supplier, now I can order supplies from whoever when I want. And I came here so I could learn everything, because you're going to get more time devoted to you here than you'll ever get from the doctors office. As far as not understanding the lingo, then ask, and people will answer, and if you don't understand ask again.
BTW, one little example of taking your care into your own hands is finding out what your suppliers policy is if your mask doesn't fit. Mine would never have even told me, I had to ask based on advice here. So I found out it is 30 days and know I better request an exchange before that if my mask isn't working.
3. As others have said, if your rating was indeed 51 as opposed to 5.1 that's dangerous, not borderline. If you don't stick with it I do hope for your sake it was 5.1 because you're literally messing with your life if it was 51.