Very scared, what has happened ?

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BlizzardUK
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Very scared, what has happened ?

Post by BlizzardUK » Tue Sep 22, 2015 9:23 am

I didn't sleep with the cpap for 90% of the night yesterday as I have a sore throat and cold, but I used it for the last 2 hours as I woke up with a headache. I thought I would check my results for the 2 hours in sleephead and it comes up with awful results, and something I haven't had before, Cheyne Stokes Respiration. I am using nasal pillows. Have I done damage to myself ? Or could it be due to the sore throat ? Just a bit scared as those results are awful and cheyne is not good. I have never had results like this before. I know I need a higher pressure but I put it on low due to my possible cold and sore throat. I also have a bit of as blocked nose still.

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Pugsy
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Re: Very scared, what has happened ?

Post by Pugsy » Tue Sep 22, 2015 9:31 am

You haven't damaged anything. You are ill with a cold and that's totally messing with everything.

The Respironics 560 machines report Periodic Breathing which is a waxing and waning of the air flow...SleepyHead calls it Cheyne Stokes Respiration but it is really Periodic Breathing and CSR is one of many forms of Periodic Breathing.
You aren't having a truck load of centrals associated with the time that is flagged as PB and for it to be true CSR that is worrisome you would need a truck load of centrals (CAs) and have it happen when we can blame the irregular breathing on cold symptoms.
Besides...even if you did have true CSR there's not enough of it here to worry about.
It looks a lot worse because of the short time frame involved.

You haven't damaged anything at all and there's nothing to worry about.

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BlizzardUK
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Re: Very scared, what has happened ?

Post by BlizzardUK » Tue Sep 22, 2015 9:38 am

Pugsy wrote:You haven't damaged anything. You are ill with a cold and that's totally messing with everything.

The Respironics 560 machines report Periodic Breathing which is a waxing and waning of the air flow...SleepyHead calls it Cheyne Stokes Respiration but it is really Periodic Breathing and CSR is one of many forms of Periodic Breathing.
You aren't having a truck load of centrals associated with the time that is flagged as PB and for it to be true CSR that is worrisome you would need a truck load of centrals (CAs) and have it happen when we can blame the irregular breathing on cold symptoms.
Besides...even if you did have true CSR there's not enough of it here to worry about.
It looks a lot worse because of the short time frame involved.

You haven't damaged anything at all and there's nothing to worry about.
Thanks, that makes me feel a lot better. So those results look ok ? Just looking back through my results none have CSR listed before, and the graph is so broken up, all my previous ones, even when I slept for 2 hours, are all closely joined up. This graph has so many gaps. At the moment I feel like I have a lump in my throat, but I am sure it is probably just from all the snoring before I put on the cpap for the last 2 hours, or from a cold (I didn't have the sore throat prior to going to bed but I have had a runny stuffy nose). Could it be because one nostril is a little blocked when I breathe out ? My left nostril is totally fine though. Sorry for the panic but when I looked up Cheyne online it showed people with heart failure at deaths door.

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Pugsy
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Re: Very scared, what has happened ?

Post by Pugsy » Tue Sep 22, 2015 9:57 am

It's NOT CSR...SleepyHead calls it CSR but it is Periodic Breathing.
Even if it was CSR there's not enough of it to worry about.
We can suppose all we want to but there's no way to know for sure what is causing the periodic breathing...it's definitely related to your illness though.

BTW...not all true CSR is related to heart issues. Lots of people have what we call idiopathic CSR with no heart issues at all. Idiopathic...no known reason.

This isn't CSR...even if it was we don't worry about a few minutes of it here and there...and we can't rely on any data gathered when a person is in the throes of a common cold. Our breathing is so messed up when we have a cold that it can easily fool the machine into all sorts of things.
Basically...the data is totally unreliable when we have a cold.

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Julie
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Re: Very scared, what has happened ?

Post by Julie » Tue Sep 22, 2015 10:55 am

And you might want to consider that you got the cold from setting the humidifier higher than necessary - it can definitely cause congestion and cold symptoms, and should be used only when obviously needed for comfort and taking into account local relative humidity (if it's already humid there, cool or not, you may want to lower the setting or turn it off altogether.

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Re: Very scared, what has happened ?

Post by Pugsy » Tue Sep 22, 2015 11:05 am

Last I heard "colds" are caused by viruses and not humidity settings.

OP was having nose bleeds from not enough humidity when first starting therapy at the lower setting. It's more than just "comfort" unless someone thinks its comfortable having nose bleeds. Some people simply do need it for more than "comfort".

Sometimes a cold is just a cold and just bad luck.

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PoolQ
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Re: Very scared, what has happened ?

Post by PoolQ » Tue Sep 22, 2015 11:19 am

I have been wondering what would happen when I get a cold and now I know.
Think of what the machine is doing and what is happening with your respiratory system when you have a cold.
Flow restrictions-yep all the time.
Obstructive-yep those also
both of the above happening on and off during all of your sleep-yep

Does the machine know you have a cold-nope
your counts are going to go way up
CSR, just like everything else with the machine, is a ticking off check marks, what happened and how long did it last. CSR just has a few more check boxes that need to be met before the machine counts it.

Now you also know what happens when you get a cold while using CPAP.
Sleeping MUCH better now

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ChicagoGranny
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Re: Very scared, what has happened ?

Post by ChicagoGranny » Tue Sep 22, 2015 11:36 am

PoolQ wrote:Now you also know what happens when you get a cold while using CPAP.
Bulldonkers.

BlizzardUK wrote:I didn't sleep with the cpap for 90% of the night yesterday as I have a sore throat and cold,

I know I need a higher pressure but I put it on low due to my possible cold and sore throat.
Why would you do those two things???

When your body is fighting a cold virus, you need sleep and you need to be breathing while sleeping.

You undoubtedly suffered with apneas and awakenings while not using CPAP, and you can see in your report an AHI of 64 while using CPAP. This is making it way more difficult for your body to fight that cold.

Two side benefits I have from using CPAP are, 1) I don't get a cold but every couple of years (Knock on wood.) and 2)When I do get a cold, CPAP allows me to breathe and sleep and both the severity and duration of the cold is lessened.

The few colds I have had since starting CPAP, I left my machine pressure settings the same (10 - 20 cm auto) and achieved my usual AHI of less than 2.0.
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mariejeanne
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Re: Very scared, what has happened ?

Post by mariejeanne » Wed Sep 23, 2015 8:18 am

This post makes me want to obtain & get used to using a ffm before cold season! (I'm a Swift FX nasal pillow girl atm.)

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Pugsy
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Re: Very scared, what has happened ?

Post by Pugsy » Wed Sep 23, 2015 8:43 am

mariejeanne wrote:This post makes me want to obtain & get used to using a ffm before cold season! (I'm a Swift FX nasal pillow girl atm.)
I have had some colds over the years and still used my nasal pillow mask. If I can move a little air through my nose (either with the help of oral meds or tiny bit of Afrin) at the beginning of the night I can use my nasal pillows and wake up breathing better than when I started the night.
I have never not been able to at least move a little air so I have never used or needed a full face mask when i have had a cold.

When I first started therapy I thought I had to have a full face mask to...everyone made out like I would die a thousand deaths if I didn't ...but I found out that I really had issues with full face masks and decided to only use one in case I totally couldn't breathe and that never happened.

But yes...if you think you might be in need of a full face mask...get one and get used to it before you are sick...it's no fun to be trying to adjust, fit and get used to a new mask when one is ill.

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betam4x
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Re: Very scared, what has happened ?

Post by betam4x » Wed Sep 23, 2015 8:55 am

Pugsy wrote:
mariejeanne wrote:This post makes me want to obtain & get used to using a ffm before cold season! (I'm a Swift FX nasal pillow girl atm.)
I have had some colds over the years and still used my nasal pillow mask. If I can move a little air through my nose (either with the help of oral meds or tiny bit of Afrin) at the beginning of the night I can use my nasal pillows and wake up breathing better than when I started the night.
I have never not been able to at least move a little air so I have never used or needed a full face mask when i have had a cold.

When I first started therapy I thought I had to have a full face mask to...everyone made out like I would die a thousand deaths if I didn't ...but I found out that I really had issues with full face masks and decided to only use one in case I totally couldn't breathe and that never happened.

But yes...if you think you might be in need of a full face mask...get one and get used to it before you are sick...it's no fun to be trying to adjust, fit and get used to a new mask when one is ill.
My wife has a full face mask...when she saw mine she mentioned possibly switching, but then I pulled her AHI off her machine...1.1 last night and 1.4 30 day average. Told her to stick with the full face mask. Why mess with a good thing?

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Re: Very scared, what has happened ?

Post by nanwilson » Wed Sep 23, 2015 8:59 am

Me too!!! Exactly what Pugsy said!!! I do have several full face masks, but still use nasal pillows when I have a cold...... they work just fine by pushing air into my clogged nose and by morning I do feel somewhat better by having had a decent sleep. There is no reason you have to use a full face mask when you have a cold, it tends to enable you to mouth breathe and does nothing for your stuffed up nose
Cheers
Nan
Started cpap in 2010.. still at it with great results.

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Pugsy
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Re: Very scared, what has happened ?

Post by Pugsy » Wed Sep 23, 2015 9:13 am

betam4x wrote:Why mess with a good thing?
You are asking someone who might be called the Queen of experimenting why mess with a good thing...because we can.

I have experimented with a lot of masks just because I wanted to and I could even though I was/am quite happy with what I am using. It's a good learning experience...I always learn something even if it is only how much I hated what I tried. Sometimes I learn that a new mask ends up being what I want to use all the time...like when the P10 came out and I was using the Tap Pap and quite happy with it.

On my list of masks to try....the full face Respironics Amara View just because it looks interesting and I want to see what it is like and the latest Respironics nasal mask called the DreamWear as it uses a cradle system which I have never tried and hose placement up on top of the head.
So I mess with a good thing all the time...and enjoy doing it.

I am of the opinion that "wanting to try something" is a good enough reason to try it...no matter what it is.
Now sometimes it ends up being not the wisest of choices but sometimes I learn that I really like the new experiment.

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Cereal Killer
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Re: Very scared, what has happened ?

Post by Cereal Killer » Wed Sep 23, 2015 11:47 am

mariejeanne wrote:This post makes me want to obtain & get used to using a ffm before cold season! (I'm a Swift FX nasal pillow girl atm.)

Keeping a FFM mask on hand and ready to use during times of severe congestion is a very prudent thing to do.

Don't let Pugsy dissuade you. She has a bias against FFMs because she could never get one to perform without leaking.

For me, it is easy to switch from my nasal mask to my FFM when I get a cold.
ChicagoGranny wrote:When your body is fighting a cold virus, you need sleep and you need to be breathing while sleeping.
+1

I need CPAP more than ever when I am fighting a cold. I haven't had one in a long time and this is a good reminder to check my FFM box and make sure everything is ready should I get a cold.

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Re: Very scared, what has happened ?

Post by Pugsy » Wed Sep 23, 2015 2:09 pm

Cereal Killer wrote:Don't let Pugsy dissuade you. She has a bias against FFMs because she could never get one to perform without leaking.
You are full of crap. I already told you that I could use the Innomed Hybrid and my problem with FFM wasn't leaking..it was the lower strap doing a serious number on my neck and anything that presses on my nasal bridge area causes immediate congestion. Almost all FFM have a lower strap that messes with my neck with the exception of the Oracle and no way could I use it because of the nasal restriction needed.

I have elected to not use a full face mask for 2 reasons.
1....I don't want to
2....I don't have to
Not because of any other reason.

And did you even bother to notice what I said last?
Pugsy wrote:But yes...if you think you might be in need of a full face mask...get one and get used to it before you are sick...it's no fun to be trying to adjust, fit and get used to a new mask when one is ill.

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