This is driving me nuts

pettyfan45 · Post by **pettyfan45** » Sun Jul 12, 2015 10:58 am

Enchanter wrote:
pettyfan45 wrote:I am a 23 year old male and I had an in lab sleep study in late December and they calmed I had mild obstructive sleep apnea (I had an AHI on 14, RDI of 16, and I had 36 hypopneas in the 160 minutes of sleep I got). My primary doctor thought my weight was causing this, so he told me start losing it (never told me how much I should lose mind you), so I went down from 248lbs in March to about 224lbs right now and I have experienced no change. I am still tired all the time, have a headache all day that nothing over the counter seems to help, fall asleep at my computer at home, I wake up sweating and short of breath occasionally, and sometimes wake up with chest pain that goes away after a few minutes. Should I see about getting another sleep study to see if me losing this weight has helped at all or should I try lose more and see that helps before that. I am also wondering if some of my other medical conditions could effect this like ADHD (attention deficit hyperactivity disorder) or Cerebral palsy with muscle weakness ( because of that I have issues walking for prolonged amounts of time and chronic pain in my legs)

Thank You for any help,
Pettyfan45

You said you have a headache all day. Is it a normal headache or is it a lack of oxygen headache?

tiredandscared wrote: I strongly suspect that drop in oxygen, even if it's within a normal range, will cause some headaches. Even though 90% is not going to do long-term damage, it might be enough to make the oxygen saturation optimal. It could also be sleep fragmentation and other stuff. It could also be that his polysomnography missed something.

Could it be that how fragmented my sleep was during the sleep study I didn't get deep enough sleep to show any more severe apenas that would cause my oxygen level to go below 90%

tiredandscared · Post by **tiredandscared** » Sun Jul 12, 2015 12:05 pm

pettyfan45 wrote:
Enchanter wrote:
pettyfan45 wrote:I am a 23 year old male and I had an in lab sleep study in late December and they calmed I had mild obstructive sleep apnea (I had an AHI on 14, RDI of 16, and I had 36 hypopneas in the 160 minutes of sleep I got). My primary doctor thought my weight was causing this, so he told me start losing it (never told me how much I should lose mind you), so I went down from 248lbs in March to about 224lbs right now and I have experienced no change. I am still tired all the time, have a headache all day that nothing over the counter seems to help, fall asleep at my computer at home, I wake up sweating and short of breath occasionally, and sometimes wake up with chest pain that goes away after a few minutes. Should I see about getting another sleep study to see if me losing this weight has helped at all or should I try lose more and see that helps before that. I am also wondering if some of my other medical conditions could effect this like ADHD (attention deficit hyperactivity disorder) or Cerebral palsy with muscle weakness ( because of that I have issues walking for prolonged amounts of time and chronic pain in my legs)

Thank You for any help,
Pettyfan45

You said you have a headache all day. Is it a normal headache or is it a lack of oxygen headache?

tiredandscared wrote: I strongly suspect that drop in oxygen, even if it's within a normal range, will cause some headaches. Even though 90% is not going to do long-term damage, it might be enough to make the oxygen saturation optimal. It could also be sleep fragmentation and other stuff. It could also be that his polysomnography missed something.
Could it be that how fragmented my sleep was during the sleep study I didn't get deep enough sleep to show any more severe apenas that would cause my oxygen level to go below 90%

You could always try an oximeter. They're sold on amazon and ebay. If you can get one with a recording ability. It might give you a better idea of your problems. So you might be right. My sleep study showed no serious desaturations. But I consistenly, briefly see drops into the 89s if I sleep awkwardly and even 86 if I sleep supine during REM. But I don't think it will be much worse anyway, if you sleept and only had some borderline desaturation. If you had severe sleep apnea, you'd get oxygen desaturations into the low 80s and 70s, no matter if you had rem sleep or not.

ChicagoGranny · Post by **ChicagoGranny** » Sun Jul 12, 2015 12:08 pm

Krelvin wrote: This guy is/was selling an S8 and I think he got talked down to $150 for the machine. I do not know this person so I can't say anything about him or the machine.

If that is out of your price range, You will need to have someone give you a machine then since that is pretty cheap for a good working machine.

Isn't the card reader going to be a problem on the S8?

Do we want someone who is probably going to have to self-titrate, working without efficacy software?

Krelvin · Post by **Krelvin** » Sun Jul 12, 2015 12:27 pm

ChicagoGranny wrote:Do we want someone who is probably going to have to self-titrate, working without efficacy software?

With a budget of < $200 they may not have a choice.

Even with the donated machine to Enchanter can't see his data even if he could set it up, no card reader.

pettyfan45 · Post by **pettyfan45** » Sun Jul 12, 2015 12:41 pm

Krelvin wrote:
ChicagoGranny wrote:Do we want someone who is probably going to have to self-titrate, working without efficacy software?
With a budget of < $200 they may not have a choice.

Even with the donated machine to Enchanter can't see his data even if he could set it up, no card reader.

I might wait and cross that bridge if I have to. I will see if I can see the nurse practitioner or my neurologist will help me first and hopefully my doctor was just being a jackass and lied to me so he wouldn't have to do paper work...

Minnie Maunder · Post by **Minnie Maunder** » Sun Jul 12, 2015 2:58 pm

ChicagoGranny wrote:Isn't the card reader going to be a problem on the S8?

Do we want someone who is probably going to have to self-titrate, working without efficacy software?

I used to have an S8 and that was a problem. My advice is against the S8 for a new patient. Even postponing until you can get something better.

pettyfan45 · Post by **pettyfan45** » Sun Jul 12, 2015 3:24 pm

You know thinking about the US for profit healthcare system pisses me off. I mean I live in country where they can make you wait to get treatment for potentially life treating condition to the point it can get so bad it can nearly kill and or leave you dilapidated and you have be on really expensive medication for the rest of your life that if something happens and you can't afford them could probably die. Like with someone like me who if they would put me on CPAP it would most likely keep me from having heart issues and high blood pressure among other things latter in life or worse and end up like my grandmother and die of a stroke by the age 65.

Minnie Maunder · Post by **Minnie Maunder** » Sun Jul 12, 2015 3:45 pm

pettyfan45 wrote:You know thinking about the US for profit healthcare system pisses me off.

Do you see the irony of someone using Medicaid complaining about a system where the rest of us pay our own way and your way?

tiredandscared · Post by **tiredandscared** » Sun Jul 12, 2015 4:40 pm

Minnie Maunder wrote:
pettyfan45 wrote:You know thinking about the US for profit healthcare system pisses me off.
Do you see the irony of someone using Medicaid complaining about a system where the rest of us pay our own way and your way?

Everyone pays taxes though. Or have parents who've paid taxes.

pettyfan45 · Post by **pettyfan45** » Sun Jul 12, 2015 5:02 pm

Minnie Maunder wrote:
pettyfan45 wrote:You know thinking about the US for profit healthcare system pisses me off.
Do you see the irony of someone using Medicaid complaining about a system where the rest of us pay our own way and your way?

You act like I want that. I am not on Medicaid by choice, but necessity. I would love to work, but my disabilities make that hard, in fact my sleep apena has probably cost me at least 2 job interviews to my knowledge.

Minnie Maunder · Post by **Minnie Maunder** » Sun Jul 12, 2015 5:09 pm

pettyfan45 wrote:You act like I want that.

You read that in.

pettyfan45 wrote: I am not on Medicaid by choice, but necessity. I would love to work, but my disabilities make that hard, in fact my sleep apena has probably cost me at least 2 job interviews to my knowledge.

I am happy to pay taxes to assist someone who wants to work but has a disability that makes it difficult.

pettyfan45 wrote:the US for profit healthcare system

For-profit systems are the worst kind, except for all others.

pettyfan45 · Post by **pettyfan45** » Sun Jul 12, 2015 5:26 pm

Minnie Maunder wrote:
pettyfan45 wrote:You act like I want that.
You read that in.

pettyfan45 wrote: I am not on Medicaid by choice, but necessity. I would love to work, but my disabilities make that hard, in fact my sleep apena has probably cost me at least 2 job interviews to my knowledge.
I am happy to pay taxes to assist someone who wants to work but has a disability that makes it difficult.

pettyfan45 wrote:the US for profit healthcare system
For-profit systems are the worst kind, except for all others.

My apologies, I am used to hearing that from people who are mad that their tax money goes to help pay for someone else's medical care and accuse me of being a no good free loader who wants to nothing but to lay around the house all day and be given everything without having to work.

Minnie Maunder · Post by **Minnie Maunder** » Sun Jul 12, 2015 6:11 pm

pettyfan45 wrote:I am used to hearing that from people who are mad that their tax money goes to help pay for someone else's medical care and accuse me of being a no good free loader who wants to nothing but to lay around the house all day and be given everything without having to work.

Now do you really hear that or are you just imagining that people are saying that?

pettyfan45 · Post by **pettyfan45** » Sun Jul 12, 2015 6:39 pm

Minnie Maunder wrote:
pettyfan45 wrote:I am used to hearing that from people who are mad that their tax money goes to help pay for someone else's medical care and accuse me of being a no good free loader who wants to nothing but to lay around the house all day and be given everything without having to work.
Now do you really hear that or are you just imagining that people are saying that?

Not to me personally, but in my speech class in college someone did a speech about how Medicaid and other social safety nets should be done away with because the need to "learn to work for themselves".

Pugsy · Post by **Pugsy** » Sun Jul 12, 2015 6:47 pm

I can't help with the machine situation but I can maybe help with a mask if you can get your hands on a machine.
Mask would be free. Choices are limited but maybe I might have something you could use. Just send me a private message later if you get the machine issue sorted out.

This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Re: This is driving me nuts

Machine	Mask

Additional Comments: Pressure at 7-20, Climateline Air heated tube