What are my chances of recovery

49er · Post by **49er** » Tue Mar 10, 2015 6:13 pm

tiredandscared wrote:
chunkyfrog wrote:When I realized that there were people smarter than me, it was a shock.
Later, I learned that people with much less gray matter have accomplished far more than I.
When you have a smaller bucket of water to take to the fire, you just take more trips.
The job still gets done.
I wish that was easy. Im good at specific stuff. If i cant do those things, like i used to , i dont see a future. On whole I was already impaired by NVLD i cant afford getting more Impaired. Ive had to give up alot of things.

tiredandscared,

I think you will find that once you started with pap therapy and getting that good quality sleep that the NLD might not be as much of an issue as it previously was. Obviously, as we both know, there is no cure for it so I am not going to make grandiose promises. But I think you will be surprised at how great you feel with this and that you will be be better able to find ways to compensate for the NLD.

49er

tiredandscared · Post by **tiredandscared** » Tue Mar 10, 2015 6:25 pm

49er wrote:
tiredandscared wrote:Hi guys. I highly suspect that I have sleep apnea. since 24th of january ive had night time arousals and fatigue and concentration and short term memory issues. Began having them after screwing up with my sleep schedule. Which resulted inu weight gain (i was borderline obese with a BMI of 30 which increased to 32). I fit all the classic symptoms for it. I recorded my self sleeping a couple of times and I do snore especially on my back, i didnt notice many apneas but possible hyponoapneas(it could be UARS but im not sure before i get the results). Im going to get sleep study soon. and my question is will i have permanent cognitive dysfunction? I intend to go to university and become a journalist. so its a very worrisome conundrum that Im in. I already have some cognitive issues (depression and nvld). Will I be able to reverse the affects of it if i get it treated early? 2 months after onset. Im worried that it has damaged my brain so much that ill not be able to study. ( I apologize for the quality of the text I usually could write well with.
Tired and Scared,

As an aside, I also have NLD so if you want to PM me to talk more about it, feel free to.

Even though I am yet a cpap success story (which hopefully will change with deviated septum surgery), I am still able to offer encouragement believe it or not. During the rare times it worked, I noticed my cognitive abilities improved greatly.

Therefore, it seems since your chances of success are alot greater according to the odds and that you have an excellent chance of greatly improving your cognitive abilities and starting that career in journalism. I mean heck, if I can see improvement when I have had one great night, think of what you can expect with several nights in a row.

But you gotta take the first step and get treatment. And take things one step at a time and don't let yourself get overwhelmed at everything. Break the process down into small steps and you will be fine.

49er

Thanks alot my friend. Its good to hear that there are some of us who get out of this terrible situation. I know there is no cure for it , took alot to accept it. But the losing what brainpower i have feels like an existential threat( ours is limited to one area). I just wonder how you managed to cope with OSA and NLD. Daily functoning is very compromised. I just worry over the prospect of it staying that way or just making a half baked recovery. You know probably better than me how much were dependent on our brains just to do simple stuff even without OSA.

Julie · Post by **Julie** » Tue Mar 10, 2015 6:30 pm

You're trying to rate yourself/abilities on how you feel now, which is kind of pointless (and anxiety producing). Until you're set up with the right machine and mask, with some time having passed, you won't know what's possible, and if you've had OSA for a long time you could even find that you surpass what you've done previously! I know you want all the answers now, but you're smart enough to realize there's no way anyone can give them to you... at least not yet, so relax and focus on getting each step - individually - working for you, and how much better you'll feel physically, if nothing else yet.

49er · Post by **49er** » Tue Mar 10, 2015 7:21 pm

Thanks alot my friend. Its good to hear that there are some of us who get out of this terrible situation. I know there is no cure for it , took alot to accept it. But the losing what brainpower i have feels like an existential threat( ours is limited to one area). I just wonder how you managed to cope with OSA and NLD. Daily functoning is very compromised. I just worry over the prospect of it staying that way or just making a half baked recovery. You know probably better than me how much were dependent on our brains just to do simple stuff even without OSA.

[/quote]

To be honest, I don't know how long I have had OSA so I can't say for sure how I coped having both conditions. All I know is you are lucky to be diagnosed with it very young and this gives you a great chance to make alot of progress.

Oh god yes, I understand the issue of doing simple stuff. By the way, that is how I explain NLD to people by stating we have trouble with the those types of tasks. It seems to help.

49er

49er · Post by **49er** » Tue Mar 10, 2015 7:23 pm

tiredandscared · Post by **tiredandscared** » Tue Mar 10, 2015 7:28 pm

VVV wrote:He is beginning to sound like a troll dragging sympathetic people in deeper.

As far as I am concerned buddy, go to a doctor or ....

Im not a troll, trolling is a waste of time. You have to make a huge leap in reasoning to assume that someone who trolls would come here out of all places to drag people behind the light. And you're being rude against someone in a hard jam with a massive problem. I'd like to see how you'd cope with learning disorder with a brainfog. I doubt you'd call yourself a troll or go to a random forum and ask people about their experiences. Like I said its an existential threat. If I stay impaired from this im pretty screwed. Studies results are scary. Especially when they say that there is a possibility for potential irreversible cognitive dysfunction that comes with it. Lots of people here have stated themselves that they have cognitive deficits or residual symptoms as a result of OSA. Even after being on CPAP therapy. The prospect of that for someone who has an LD already is very anxious ridden. Its like mutilating an already mutilated limb. I dont know how anyone could stop feeling anxious about that.

Julie · Post by **Julie** » Tue Mar 10, 2015 7:42 pm

Ok, take it easy... I don't believe you're a troll at all and I doubt many others do, but unfortunately we have had our share here like you wouldn't believe, and some are very good at it... just let this one go for now - you have enough to worry about! What I do suggest, if you don't take it wrong, is to maybe look into something like CBT to help you cope with the anxiety... nothing to lose.

49er · Post by **49er** » Tue Mar 10, 2015 7:43 pm

tiredandscared wrote:
VVV wrote:He is beginning to sound like a troll dragging sympathetic people in deeper.

As far as I am concerned buddy, go to a doctor or ....
Im not a troll, trolling is a waste of time. You have to make a huge leap in reasoning to assume that someone who trolls would come here out of all places to drag people behind the light. And you're being rude against someone in a hard jam with a massive problem. I'd like to see how you'd cope with learning disorder with a brainfog ontop. I doubt you'd call yourself a troll or go to a random forum and ask people about their experiences. Like I said its an existential threat. If i stay impaired from this im pretty screwed. Studies results are scary. Especially when they say that there is a potential irreversible cognitive dysfunction that comes with it. Lots of people here gave stated themselves that they have cognitive deficits or residual symptoms as a result of OSA. Even after being on CPAP therapy. The prospect for someone who has an LD is very anxious risden. Its like mutilating an already mutilated limb.

Great response which I should have waited for instead of saying what I did. Anyway, I have deleted my post because compared to what you said, it does you a complete injustice.

However, again, i want to stress to you to focus on the positives that can happen from this diagnosis and how you have a great chance to make some wonderful improvements.

49er

chunkyfrog · Post by **chunkyfrog** » Tue Mar 10, 2015 7:51 pm

VVV, please behave yourself! Some day you may feel the same pain, frustration, and hopelessness.
"There but for the grace . . . ".
Just think about it.
What we put on the wheel, goes around, and comes around.
Whatever misery makes you so untrusting, so mean, I hope you find relief, but it will not be through the pain of others.

tiredandscared · Post by **tiredandscared** » Tue Mar 10, 2015 8:06 pm

guys thanks for all the replies. It helps to hear that most people seem to recover well enough to feel like they function adequately at work or school. I guess that increases my chances since i havent had this OSA like issue for a long time (2 months) and maybe that means I have more neglible damage then people with severe and long term affliction with Sleep apnea . I've been buying a host of nutritional supplements that supposedly reduce neuro inflammation , o xidative stress from hypoxia. B1 seems to be able to rejeuvenate damaged or dying braincells in alcoholics so i've been taking that recently. I'd appreciate hearing about what people did to recover that also helped alongside CPAP. I guess I have to dig in and see what happens. I have a bad habit of letting anxiety get to the better part of me when it comes to health.

ChicagoGranny · Post by **ChicagoGranny** » Tue Mar 10, 2015 8:22 pm

Maybe WW's post did some good. Here came the first positive reply:

tiredandscared wrote: It helps to hear that most people seem to recover well enough to feel like they function adequately at work or school. I guess that increases my chances since i havent had this OSA like issue for a long time (2 months) and maybe that means I have more neglible damage then people with severe and long term affliction with Sleep apnea

I hope that you are now beginning to change your attitude.

tiredandscared · Post by **tiredandscared** » Tue Mar 10, 2015 8:38 pm

ChicagoGranny wrote:Maybe WW's post did some good. Here came the first positive reply:

tiredandscared wrote: It helps to hear that most people seem to recover well enough to feel like they function adequately at work or school. I guess that increases my chances since i havent had this OSA like issue for a long time (2 months) and maybe that means I have more neglible damage then people with severe and long term affliction with Sleep apnea

I hope that you are now beginning to change your attitude.

Im not out of the dark yet. But we'll see what happens.

Julie · Post by **Julie** » Tue Mar 10, 2015 8:49 pm

Take it easy on the supplements - some of them can have not so great effects on sleep - at least check carefully into individual ones... e.g. B1 may be good for alcoholics, but that doesn't necessary mean it's a good idea for you (tho' I have no idea that it isn't ).

tiredandscared · Post by **tiredandscared** » Tue Mar 10, 2015 9:07 pm

Julie wrote:Take it easy on the supplements - some of them can have not so great effects on sleep - at least check carefully into individual ones... e.g. B1 may be good for alcoholics, but that doesn't necessary mean it's a good idea for you (tho' I have no idea that it isn't ).

Which ones? Most seem to lower neuro inflammation. Theoretically they should be protective atleast in part against the effects of hypoxia. Technically they that mitigate the inflammation and oxidative stress induced by the lack of oxygen saturation. Im not sure how much affect they have though.

chunkyfrog · Post by **chunkyfrog** » Tue Mar 10, 2015 9:31 pm

Some folks have found that their need for drugs (OTC or RX) is reduced while using cpap.
Don't go overboard on anything--just take it easy and let things settle down.
Best to change only one thing at a time. Cpap for now.

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