Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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kteague
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by kteague » Sat Sep 28, 2019 3:04 am

Samson232 wrote:
Thu Sep 26, 2019 8:24 pm
Did you ever figure out what the root of the issue was??
I have basically every symptom you’ve listed and I’m thinking I have low oxygen due to undiagnosed sleep apnea.
Thanks, Sam
Hello Sam and welcome. Maybe you can start a new thread and tell us about your biggest issues so we can try to be of some help. If you do have undiagnosed sleep apnea, addressing it will be the best thing you could do for yourself. Good luck with things.

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gsroberts
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by gsroberts » Thu Nov 14, 2019 8:51 am

I know this is a bit of a dead thread, but I am also very curious as to whether or not your symptoms were resolved. It is fairly remarkable how similar our clinical presentations are. I recently performed an at home sleep study with a suspicion of sleep apnea (at age 27). I would be very eager to hear a 3 year follow up from Yub Yub.

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Julie
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by Julie » Thu Nov 14, 2019 9:34 am

Hasn't been heard from in yrs.

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chunkyfrog
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by chunkyfrog » Thu Nov 14, 2019 10:07 am

4 years ago.

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zonker
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by zonker » Thu Nov 14, 2019 12:58 pm

gsroberts wrote:
Thu Nov 14, 2019 8:51 am
I know this is a bit of a dead thread, but I am also very curious as to whether or not your symptoms were resolved. It is fairly remarkable how similar our clinical presentations are. I recently performed an at home sleep study with a suspicion of sleep apnea (at age 27). I would be very eager to hear a 3 year follow up from Yub Yub.
might want to start your own thread as it's likely to get more comments than a zombie thread. while it's possible the op COULD come back, their last log on was july of this year.

good luck!

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ChicagoGranny
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by ChicagoGranny » Thu Nov 14, 2019 4:09 pm

gsroberts wrote:
Thu Nov 14, 2019 8:51 am
I recently performed an at home sleep study with a suspicion of sleep apnea (at age 27).
What were the results of your HST?

Geer1
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by Geer1 » Fri Nov 15, 2019 9:50 am

Interesting necrothread. Sounds similar to me, glad to have seen some of the responses and that some members have had similar symptoms clear up with cpap treatment.

Samson232
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by Samson232 » Tue Nov 26, 2019 8:45 pm

I’m 26 and all of the neuromuscular symptoms are the same for me. Just ordered a sleep study and I’m finally going to find out if low oxygen levels are throwing my body completely out of whack!!


Sam

sanchez911zak
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by sanchez911zak » Sat Feb 29, 2020 6:59 am

hey Yub Yub any news?
Did you get diagnosed eventually?

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Julie
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by Julie » Sat Feb 29, 2020 8:38 am

Please look at date last notes were posted (under the topic title above the note). You're trying to reach someone who hasn't been around in a long long time.

marcelian
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by marcelian » Fri Apr 17, 2020 11:57 am

Heya !

I Really wanna know how are u nowadays? I have totally same symptoms, and I dont really know the case, you still suffer from apena? No another underlying condition?

u can write PM

Cheers,

Armin




Yub Yub wrote:
Fri Feb 13, 2015 7:44 pm
Hello all,

I'm new on here. I recently had a sleep study conducted and was initially told I had an AHI > 15. I was put on a CPAP- full facial mask only 2 hours into the study but couldn't sleep with it on. I'm waiting for the doctor to read the study and have me come back in to be fitted for a mask + machine.

I have none of the typical sleep apnea triggers: I'm young- 24 years old, athletic, non-drinker, fairly good diet. I've been told I only snore occasionally. Never have woken up short of breath/heart racing, no sleepiness during the day. Never have been told I struggle to breathe while sleeping. In fact the sleep study doc after listening to my symptoms told me and I quote, "You probably don't have sleep apnea but we'll run the test anyways..." It appears I may be one of those atypical cases.

The symptoms I do have: chronic fatigue, foggy head (especially in morning), irritable, depression, anxiety

also, and the reason why I'm posting...

I have a lot of neuro-muscular symptoms (for 2 years now) the predominant symptoms being: muscle twitching (every day- more often in the evening), muscle cramps and stiffness, muscle pain, achy joints (occasional), exercise intolerance (causes muscle twitches and cramps to increase), insomnia (this started around the same time as the muscle twitches), nerve sensations like numbness and tingling in feet & extremities, occasional nerve pain, and a host of smaller intermittant symptoms. Lately I've started getting a little chest pain right over my heart, and the sensation of difficulty breathing but this doesn't last and as soon as I get my mind off of it it goes away. Essentially I feel stiff and achy most of the day. I notice the muscle twitches and cramps increase with physical activity (unless I'm very careful and stretch extensively) and generally increase in the evening and when I'm lying down to sleep and when I wake up in the morning.

I have seen my primary care doctor for these symptoms probably over a dozen times. I've seen two rheumatologists, a neurologist (I'm going back to see another neuro doc in two weeks), endocrinologists. I've had tons of blood work done, nerve conduction test on lower legs for the muscle cramps, but each time everything comes back normal. I've simply been dealing with these sypmtoms for the last 2 years. I take 15mg of Elavil daily for pain and to help with the insomnia and flexeril to relax the muscles but these are really no more than band-aids as I feel very tired and awful every day.

After doing research on-and-off for the last two years I've narrowed down what I think could be causing the symptoms. Low Testosterone, Cervical injury/degradation, Sleep Apnea, Neurological Disease like ALS or Multiple Sclerosis, Gluten-Dairy/Food intolerance (Leaky Gut syndrome), or some combination of all the above.

I know now that I have sleep apnea- despite the fact I don't have a typical presentation of symptoms. I have found some medical articles identifying sleep apnea as potential trigger and cause for muscle twitching and cramps.

I also know that sleep disorders and fibromyalgia, benign fasiculation syndrome, cramp fasiculation syndrome all have a strong connection. So I wanted to present to the forum members here a question- (I apologize in advance if this has been asked/covered before on here)

Has anyone seen a positive improvement in their neuromuscluar/fibromyalgia symptoms (muscle twitching, muscle cramps, muscle pain, muscle stiffness, joint pain, exercise intolerance, peripheral neuropathy, weird nerve sensations, etc.) by treating Only their sleep apnea? What were your symptoms, how long did you have them, what treatments did you try before, and how has treating your sleep apnea helped with your symptoms? Have you seen a complete remission of symptoms, a 50% reduction of symptoms, etc? Lastly, how long did it take being on the CPAP to start seeing positive results?

Hopefully someone on here can help! I appreciate any feedback. I'm simply trying to find a correlation between sleep apnea and neuro-muscular symptoms for my own personal curiosity. If it helped you with your symptoms it might help me.

Thanks,

Yub Yub

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zonker
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by zonker » Fri Apr 17, 2020 6:00 pm

marcelian wrote:
Fri Apr 17, 2020 11:57 am
Heya !

I Really wanna know how are u nowadays? I have totally same symptoms, and I dont really know the case, you still suffer from apena? No another underlying condition?

u can write PM

Cheers,

Armin
yub yub hasn't logged on since july 2019, so don't think you're going to get a reply.

sorry, but this is what we call a zombie thread.
people say i'm self absorbed.
but that's enough about them.
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Julie
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by Julie » Fri Apr 17, 2020 6:45 pm

Apart from being a zombie thread, posters should learn that while some people seem to have the same symptoms 'we' do, it doesn't mean the answers will be the same - everyone's body is different, everyone's history is different, and everyone's potential answers will be different... stop trying to diagnose yourselves here or through Google... you're only making life harder and misleading yourself and unfortunately probably others.

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zonker
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by zonker » Fri Apr 17, 2020 7:47 pm

Julie wrote:
Fri Apr 17, 2020 6:45 pm
Apart from being a zombie thread, posters should learn that while some people seem to have the same symptoms 'we' do, it doesn't mean the answers will be the same - everyone's body is different, everyone's history is different, and everyone's potential answers will be different... stop trying to diagnose yourselves here or through Google... you're only making life harder and misleading yourself and unfortunately probably others.
good point. it's always worthwhile for a new user to start their own thread.
people say i'm self absorbed.
but that's enough about them.
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Hypno
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Re: Sleep Apnea and Muscle Twitching, Cramps, Fibromyalgia

Post by Hypno » Sat Apr 18, 2020 5:27 am

I have some similarities but I have creutzfeldt Jakob disease mm2 thalamic