You gotta "love" Respironics

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Moogy
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Re: Public release of Respironics documents

Post by Moogy » Tue Jun 13, 2006 11:47 am

Anonymous wrote:
The DME 'guy' had no right WHATSOEVER making an elicit, unauthorized copy of the CD and posting it on the internet.This has nothing to do with intended audience or whether manufacturers care about its customers or user-base.

So according to you, a manufacturer doesn't have a right to restrict distribution of certain things?
Naturally, they have the RIGHT to restrict distribution. The real question we are discussing is whether it makes sense for them to do so.

Moogy

Moogy
started bipap therapy 3/8/2006
pre-treatment AHI 102.5;
Now on my third auto bipap machine, pressures 16-20.5

Guest

Re: Public release of Respironics documents

Post by Guest » Tue Jun 13, 2006 11:54 am

Moogy wrote:
Anonymous wrote:
The DME 'guy' had no right WHATSOEVER making an elicit, unauthorized copy of the CD and posting it on the internet.This has nothing to do with intended audience or whether manufacturers care about its customers or user-base.

So according to you, a manufacturer doesn't have a right to restrict distribution of certain things?
Naturally, they have the RIGHT to restrict distribution. The real question we are discussing is whether it makes sense for them to do so.

Moogy

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oldgearhead
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Post by oldgearhead » Tue Jun 13, 2006 12:03 pm

I got to study the simulation software. Its a great sales tool. However, it is
a simulation. Maybe they don't want it in general circulation, because certain parts are not correct.

After reviewing the simulation, I'm convinced the RemStar Auto is the best machine for my problems.

If the simulation is a correct representation of the 'Auto', there is no good reason for them to limit its exposure. Therefore, I must assume its a BAD
simulation, and their lawyers wanted it out of general circulation, for fear of class action lawsuits.....


Guest

Re: Public release of Respironics documents

Post by Guest » Tue Jun 13, 2006 12:12 pm

[quote="Anonymous"][quote="HP"]This seems AMAZING to me:

1. Last winter, the Respironics website allows free public access to a new piece of software that enables one to download sleep data from certain Respironics equipment. Sometime later, they take it down, but you can still buy it.

2. Now, presumably, a Respironics sales rep gives a copy of their software explaining auto functions to a DME. Right?.......Then, the DME makes it available to the cpaptalkers. Right?....... Now, Respironics wants the link removed because it's getting out to the wrong audience. If this were a competitive issue, Respironics would not even release this product to their sales guys.

It sure seems like Respironics had little or no controls in place if they really wanted limited distribution of these products.

Respironics might want to rethink their document controls program.


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Wulfman
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Post by Wulfman » Tue Jun 13, 2006 12:55 pm

This is along the lines of what I was wondering. Did Respironics put on the CD (I wonder how somebody knew it came from a CD?) that it was not to be copied, redistributed, etc. with/to the "general public"? Obviously, it was being distributed to SOME sector of purchasers. Were there signed non-disclosure agreements?
So, "elicit" and "unauthorized" depend on the way they were distributed in the first place.
I think there was more incredulity about why Respironics would not want to make MORE use of the presentation as a sales tool.....especially to the people who actually USE the machines and may be trying to decide whether to use a machine from Manufacturer A , Manufacturer B, or Manufacturer C (or D, E and F).

Just because we've been sleep-deprived, doesn't mean we're STUPID!

Let me rephrase that..... Just because we've been sleep-deprived, doesn't mean that we can't make intelligent, well-informed decisions, when given all the facts.


Den

(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

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neversleeps
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Post by neversleeps » Tue Jun 13, 2006 1:02 pm

I understand and respect Respironics' right to release (or not release) information to the general public. I understand and respect their right to ask that information which wasn't intended for release to the general public be removed from the forum.

I don't understand the criteria they use to determine what is fit for general consumption and what isn't. I wish it was all deemed worthy of public dissemination. We've been clamoring for detailed explanations of how the algorithms work for so long, a committee has even been formed (in part) to try to ascertain this information and to ask questions of the Respironics engineers regarding specific phenomena we are experiencing with the auto machines. So when I saw the files DME_Guy made available to us, I thought, "Yippee!" But, I yipped too soon.

Part of my frustration is the prevailing notion that manufacturers want to keep us, the end-users, in the dark. This does nothing to belie that notion. Other than revealing trade secrets, what is the potential harm in making this information available to those who want to know how things work? There must be some logical explanation for their reticence to give the end-user access to this information. What is it?

Guest

Post by Guest » Tue Jun 13, 2006 2:16 pm

Again, nobody from their side (Resp) ever claimed there was any "harm" in showing the info to patients or whomever---they simply didn't want the stuff outside of its intended distribution area. What's so hard to understand here???

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neversleeps
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Post by neversleeps » Tue Jun 13, 2006 2:29 pm

Anonymous wrote:Again, nobody from their side (Resp) ever claimed there was any "harm" in showing the info to patients or whomever---they simply didn't want the stuff outside of its intended distribution area. What's so hard to understand here???
I don't mean to be dense, but judging from your rolling eyes, obviously I am! My question is: there must be some logical explanation for their reticence to give the end-user access to this information. What is it?

different guest

?customer?

Post by different guest » Tue Jun 13, 2006 2:48 pm

Alas, the end user is not the customer. Insurance companies and DMEs rule. The end users that do get a choice are the lucky ones.
That we should want to understand how our machines work.....????

HP
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Respironics distribution controls

Post by HP » Tue Jun 13, 2006 3:00 pm

Guest said: "The DME 'guy' had no right WHATSOEVER making an elicit, unauthorized copy of the CD and posting it on the internet.This has nothing to do with intended audience or whether manufacturers care about its customers or user-base.

So according to you, a manufacturer doesn't have a right to restrict distribution of certain things?"
--------------------------------------------------

If the DME guy got the software improperly from the sales guy, then perhaps the sales guy might be questioned on his activity. If the DME guy got the software above board from Respironics, then it's between you and the DME guy to sort out the situation. I realize that asking Johnny to remove the links is simply good "damage" control.

I fully believe that a manufacturer does have every right to restrict distribution of certain things. I believe that a manufacturer has to put controls in place to to restrict that distribution according to the result desired.

My point is, things have occurred here at cpaptalk over the last six months that beg the question about what Respironics' document control policies are?


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Wulfman
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Re: ?customer?

Post by Wulfman » Tue Jun 13, 2006 4:30 pm

different guest wrote:Alas, the end user is not the customer. Insurance companies and DMEs rule. The end users that do get a choice are the lucky ones.
That we should want to understand how our machines work.....????
Sorry to disagree with you, but the "user" (policyholder) is the one that is paying the premiums....the insurance provider is the distributor of the payments when services are rendered to the policyholder. Yes, they have "rules" and deductibles, etc., etc.....but they work for YOU (the policyholder). DME does NOT rule. They are only a recipient of payments for services rendered, just like doctors, sleep labs, etc......who are ALL being paid to work FOR you.
If a tree falls on your car and totals it (comprehensive), does your insurance agent or the company he represents pick out a different car for you?.....NO! Does the automobile dealership pick out your car?......NO!

There is a choice.

Den

(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

ozij
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Post by ozij » Tue Jun 13, 2006 10:20 pm

Anonymous wrote:Again, nobody from their side (Resp) ever claimed there was any "harm" in showing the info to patients or whomever---they simply didn't want the stuff outside of its intended distribution area. What's so hard to understand here???
The "intended distribution area" and the fact the Mr. Paul insists on this limited distribution area, are what is so hard to understand.

According to Mr. Paul's letter (I am quoting once again

The software attached is proprietary and was intended to be used by our sales force for demonstration purposes only.

I always though demonstrations were meant to get customers interested in the demonstrated wares.

We are customers or potential customer who would love to know more about the equipment Mr. Paul's company sells - and instead of jumping at the opportunity to disseminate his info to an appreciative audience, Mr. Paul insists on stopping it. Which is absurd. Clearly, Mr. Paul does not consider the "general public", or even a group of cpap users his clients. Does that make any sense to you?

Mr. Paul has every right in the world to insist on his policies. That does not make the policy right, or smart, or valuable to his company. Other companies pay for ads. Mr. Paul was given a free ad opportunity, and seems not to want it.
W. Edwards Deming wrote:Profit in business comes from repeat customers, customers that boast about your project or service, and that bring friends with them.
Friedrich Schiller wrote: Against stupidity the gods themselves contend in vain.
Mr. Paul's right to insist on his policy is not questioned. It is his wisdom that is questionable.

Or maybe Mr. Paul is afraid he'll have to pay the person who wrote this "proprietary software" much more than he did because of its wider dissemination.

O.


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Snoredog
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Post by Snoredog » Wed Jun 14, 2006 12:32 am

I think they "planted" this conspiracy theory.... afterall they are releasing that new autopap this month anyway.

At least it's two wheel tuesday


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neversleeps
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Post by neversleeps » Wed Jun 14, 2006 2:15 pm

from another thread:
mikemoran wrote:The DMEs clearly aren't financially incentivized to issue APAPs.
harikarishimari wrote: This may sound overly simple, but the issue will never change until there are separate billing codes for CPAP and APAP.

This is yet another case of accountants practicing medicine. In their eyes an APAP is just a luxury edition of a basic medical device, the CPAP. As long as that is their perception there is no hope for "incentivising" the DMEs, or even the physicians. As long as third-party payers and DMEs control the distribution of CPAPs and APAPs, they will continue to re-write the prescriptions to maximize their profit, and beg and whine and make a long list of "honest mistakes" (*cough*) and do almost ANYTHING to prevent the end user from having the most appropriate equipment if that equipment happens to be an APAP.

Mr. Zack Paul should not waste his time schmoozing with DMEs and trying to convince them of anything. He should be making his case with the insurance companies to split the codes to reflect the present reality. The technology has changed. Insurance providers haven't. Until there are two separate cost-based reimbursement schedules, issuing better equipment translates directly into reduced profits. The online business model of our gracious sponsor works (no questions, no hassle, just tell us what you want) ONLY because you can see the cost-based price list, and you pay for what you get. Imagine if cpap.com put all their CPAP/APAP/BiPAP/xPAP models in one big picture, but with one pricetag (any model, same low price). How long would they stay in business? Either the price would reflect the most expensive equipment and no sensible person would order the low end products. Or the price would be rock-bottom, and the inventory at the top would just disappear until there were only CHEAP CHEAP models to choose from. In reality the latter is EXACTLY what has happened with the DME/Insurance distribution model, and that is why the system is seriously BROKEN. What will it take to change it? Splitting the codes would be a good first step, and setting the reimbursement schedules to match, and to reflect reality.

There may in fact be some incentive for respironics to keep the information out of the public eye. If we buy an inferior product that is inadequate and doesn't meet minimum standards, then maybe they can sell us TWO xPAP machines, the second being out-of-pocket, retail. That will be offset with a large population that simply give up therapy altogether because it isn't working, and sell their equipment at an auction. That's gotta eventually cut into their sales.

DME_Guy did a good thing, I hope he is not punished in any way. Respironics should be pushing their APAP technology to "the people", the docs, the patients, the insurance providers, MediCare, congress, and whoever will listen. Mr. Z.P. should be taking the lead getting those informational materials out to all the above, and anyone else who truly needs to be educated. Having a sales rep for "Sleep Therapy Auto Titration" that deals (as we have just learned) exclusively with DMEs seems like a complete waste of a job description.

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dsm
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Post by dsm » Wed Jun 14, 2006 2:35 pm

Snoredog wrote:I think they "planted" this conspiracy theory.... afterall they are releasing that new autopap this month anyway.

At least it's two wheel tuesday


That seems to have more legs to it than some of the other theories

DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)