Patient or User?
Re: Patient or User?
Not to offend anybody.
I've never had anybody "blame" me for my OSA with those insidious "well if you'd only lose some weight" comments that are both cruel and unnecessary. I've never had those comments because I'm 5-foot 1-inch tall and my weight has never been above 115 except when I was 7+ months pregnant. At the time I was diagnosed my weight was about 105-110 pounds. At that weight, you don't get people saying you need to lose weight.
Indeed, I think part of why so many of my family and friends reacted in horror when I first started having to use a machine for OSA was the very fact that I am so far removed from anything that resembles the stereotype of an OSA patient as far as weight and neck size are concerned. I think it never dawned on some of these people that OSA was something that could affect folks who were not morbidly obese.
I've never had anybody "blame" me for my OSA with those insidious "well if you'd only lose some weight" comments that are both cruel and unnecessary. I've never had those comments because I'm 5-foot 1-inch tall and my weight has never been above 115 except when I was 7+ months pregnant. At the time I was diagnosed my weight was about 105-110 pounds. At that weight, you don't get people saying you need to lose weight.
Indeed, I think part of why so many of my family and friends reacted in horror when I first started having to use a machine for OSA was the very fact that I am so far removed from anything that resembles the stereotype of an OSA patient as far as weight and neck size are concerned. I think it never dawned on some of these people that OSA was something that could affect folks who were not morbidly obese.
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Machine: DreamStation BiPAP® Auto Machine |
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5 |
- jlmoorekcmo
- Posts: 86
- Joined: Tue Apr 03, 2012 7:47 am
Re: Patient or User?
I prefer to refer to us as "Brothers & Sisters of the Hose".
Re: Patient or User?
jlmoorekcmo wrote:I prefer to refer to us as "Brothers & Sisters of the Hose".
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Machine: DreamStation BiPAP® Auto Machine |
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5 |
- BlackSpinner
- Posts: 9742
- Joined: Sat Apr 25, 2009 5:44 pm
- Location: Edmonton Alberta
- Contact:
Re: Patient or User?
And the term "Hosers" has a long and dishonourable tradition in Canada - the term meaning something similar to ornery redneck with beer.jlmoorekcmo wrote:I prefer to refer to us as "Brothers & Sisters of the Hose".
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Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
- Stormynights
- Posts: 2273
- Joined: Wed Mar 10, 2010 7:01 pm
- Location: Oklahoma
Re: Patient or User?
I have been told I was a hypochondriac and that sleep apnea is a scam. I don't mention it much anymore. I bet they don't believe me about the back pain either but I know it is real.
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Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
Re: Patient or User?
Sooo..... we're a cult!?!jlmoorekcmo wrote:I prefer to refer to us as "Brothers & Sisters of the Hose".
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Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle |
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura |
Re: Patient or User?
Stormynights wrote:I have been told I was a hypochondriac and that sleep apnea is a scam. I don't mention it much anymore. I bet they don't believe me about the back pain either but I know it is real.
Well you know you can chalk that up to ignorance. Sounds like that person has issues...
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Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Sleepyhead software, Pressure 9-14, EPRx1, Pad-a-cheek barrel cozy, Resmed hose cover |
Re: Patient or User?
Ignorance? maybe. Or maybe it's just denial ...oak wrote:Stormynights wrote:I have been told I was a hypochondriac and that sleep apnea is a scam. I don't mention it much anymore. I bet they don't believe me about the back pain either but I know it is real.
Well you know you can chalk that up to ignorance. Sounds like that person has issues...
_________________
Machine: DreamStation BiPAP® Auto Machine |
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5 |
Re: Patient or User?
It has always inferred that if I lose weight, all my problems will miraculously disappear. I just don't bother telling most people anything health wise. The only people I do tell are my bosses at work if a particular health matter may cause problems at work. I have told a few people I stop breathing when I sleep, and one said to me "Oh that will explain why you look so tired all the time". The other one said she'd wished that she hadn't of poked her ex when he stopped breathing at night