I give up!!

[Wulfman...]

No improvement after 2 weeks of Apap therpay. none. not even an ounce. I feel even more tired for some reason because of all the adjustmets I have to make to get used to cpap mask. I am going to return this Apap and maybe ask my doctor to prescribe a mandibular device.

As others have said.......that's not surprising if your therapy settings aren't optimized. How long do you think you've had OSA? You don't repay your "sleep debt" overnight.......ESPECIALLY with non-optimal settings.

And, what makes you think losing weight will diminish your sleep apnea. Your sleep apnea probably CAUSED your weight gain.

If you think your whiny post announcing you're quitting is going to evoke sympathy........think again. We've all been through this in various ways. It's no picnic, but it's worth it.

Grow up!!!


Den

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[robysue]

No improvement after 2 weeks of Apap therpay. none. not even an ounce. I feel even more tired for some reason because of all the adjustmets I have to make to get used to cpap mask. I am going to return this Apap and maybe ask my doctor to prescribe a mandibular device.

As others have asked: What's your purpose for posting to this cpap forum?

If you want help learning how to make this crazy therapy work, then you've come to the right place. But you're going to have to tell us what specific things you need help mastering.

If you want someone to tell you: "Yes, go ahead and give up because CPAP sucks", you've come to the wrong forum. While there are "sleep apnea" websites that are full of horror stories about how bad CPAP therapy is, this is NOT one of those sites. (And almost all of those sites with CPAP horror stories are pushing snake oil solutions that are known to NOT be effective for folks with moderate to severe OSA.) This site is a cpap users support site. Almost all of the longtime posters here are committed, long term PAP users, and we see our job as helping new CPAPers through the difficult first few weeks and months when CPAP adjustment problems are everywhere and the new PAPer often feels far worse than before they started PAPing. And many of us took far more than 2 weeks to learning how to sleep with our machines. But we did NOT just give up after 2 weeks.

If you just want to whine about how hard PAP is, you've done that. A lot of us have been there and done that too. So now that the rant about how hard everything is, it's time to face the facts and make some decisions: If you want help making CPAP work for you, stick around and start asking questions about how to make this therapy work. If you want to quit CPAP and you don't want to be nagged about how bad of a decision that is in the long run, then you'll probably want to find an alternate place to go to talk about your problems with apnea.

[Madalot]

many of us took far more than 2 weeks to learning how to sleep with our machines. But we did NOT just give up after 2 weeks.

If you just want to whine about how hard PAP is, you've done that. A lot of us have been there and done that too. So now that the rant about how hard everything is, it's time to face the facts and make some decisions: If you want help making CPAP work for you, stick around and start asking questions about how to make this therapy work. If you want to quit CPAP and you don't want to be nagged about how bad of a decision that is in the long run, then you'll probably want to find an alternate place to go to talk about your problems with apnea.

Robysue is correct. It took me 3 MONTHS to get the right machine, then, I don't know, over a year or more to get the settings tweaked.

If you want help tweaking your settings, you'll find TONS of help here. If you really just want to give up and quit, I, like a few others, am not sure why you posted. Perhaps deep down, you WANT us to talk you out of quitting. Hopefully, we've been successful and now you can work on getting things optimized. I know there are several people just waiting to hear "help me" so they can begin evaluating your situation and coming up with solutions!!

[library lady]

I agree with all of the other posters. I add that many people have tried many masks to find the ONE mask that works for them, so you may not have the mask that's right for you. I had trouble at first, wondered how on earth I would ever manage to do this therapy, and came to this forum. The constant face farts from leaking kept me awake, and then I learned about mask liners as a solution. Liners do two things; they absorb the facial oils that prevent a good seal, and minimize the leaks. For me, that was a game changer because even though I had been washing my face well each night, I continued to experience leaks. Now, I am never bothered by leaks. While I rarely get into large leak territory, when large leaks do occur, they almost never wake me up.

Pad-A-Cheek liners are used by many forum members, go here: http://www.padacheek.com to order. Another liner that's available is RemZzzs, available from the sponsors of this forum, https://www.cpap.com, or from many DMEs. Both are excellent products. I tried both, and like the RemZzzs fabric better so that is what I use now along with liners I make out of old t-shirts based on the RemZzzs design.

[ChicagoGranny]

No improvement after 2 weeks of Apap therpay. none. not even an ounce. I feel even more tired for some reason because of all the adjustmets I have to make to get used to cpap mask. I am going to return this Apap and maybe ask my doctor to prescribe a mandibular device.

Interesting (to forum rats) that little buddy chefmate is trying to post undercover over here - viewtopic.php?f=1&t=48377&st=0&sk=t&sd=a

Caught you chefmate! What are you up to?

[chefmate]

No improvement after 2 weeks of Apap therpay. none. not even an ounce. I feel even more tired for some reason because of all the adjustmets I have to make to get used to cpap mask. I am going to return this Apap and maybe ask my doctor to prescribe a mandibular device.

Interesting (to forum rats) that little buddy chefmate is trying to post undercover over here - viewtopic.php?f=1&t=48377&st=0&sk=t&sd=a

Caught you chefmate! What are you up to?

Yes you caught me. Pardon my ignorance but caught me doing what?

[Sleeprider]

Yes you caught me. Pardon my ignorance but caught me doing what?

Resurrecting zombie threads.

[Captain_Midnight]

I have to say that the posts in response to Chefmate's decision to quit are some of the best one can find.

In my case, I caught the flu the same day that I received my cpap.

I stuck with it.

The prescribed pressure was about half of what I needed.

I stuck with it.

I got a re-titration, and a better Rx pressure.

Still with it.

I then got an APAP, and (with my Dr's approval) optimized my pressure range, and my AHI dropped to typically 0.4 or less.

Some results were short term (blood values, dream friendliness, general feeling of wellness), and others were longer term.

Was this all worth it?

I'm still with it, and I re-appear hereabouts on occasion in order to encourage folks to .... stick with it.

.

[chunkyfrog]

Do not be surprised to find that this site has many regulars who have been using cpap for years,
--often due to no small amount of effort and determination. Some have found this journey to be quite difficult.
But they have persevered, and most reap the benefits.
Therefore, you may expect to meet with a fair amount of scorn if you have chosen to be a QUITTER!

[bucksnort]

I've been on CPAP for 2 weeks also. 49 per hour reduced to .o4-.08 per hour. No headaches from day one. Quit? no way!

[chefmate]

I've been on CPAP for 2 weeks also. 49 per hour reduced to .o4-.08 per hour. No headaches from day one. Quit? no way!

My diagnosed AHI of 51 is down to .3-1.7. I am glad to hear that your headaches are gone. My overwhelming fatigue remains..

I am going to set the APAP in CPAP mode at a single pressure setting of 12.8(my 95 percentile pressure is 12.96). I have a feeling that arousals related to sudden fluctuations in pressure might be the root cause of my sub-optimal therapy.

[robysue]

I've been on CPAP for 2 weeks also. 49 per hour reduced to .o4-.08 per hour. No headaches from day one. Quit? no way!

My diagnosed AHI of 51 is down to .3-1.7. I am glad to hear that your headaches are gone. My overwhelming fatigue remains..

I am going to set the APAP in CPAP mode at a single pressure setting of 12.8(my 95 percentile pressure is 12.96). I have a feeling that arousals related to sudden fluctuations in pressure might be the root cause of my sub-optimal therapy.

Your hypothesis that the sudden, fluctuations in pressure may be disturbing your sleep is a GOOD starting assumption. Some people do much better on fixed pressure than on APAP. Since your 95% is 12.96cm, it is reasonable to try CPAP at 12.8cm.

Keep your EPR setting at what you're used to and stick with the fixed pressure setting for at least a week before changing anything else.

And congratulations on making a positive decision to continue trying to make this crazy therapy work for you! And best of luck tonight with the new settings.

[Wulfman...]

I've been on CPAP for 2 weeks also. 49 per hour reduced to .o4-.08 per hour. No headaches from day one. Quit? no way!

My diagnosed AHI of 51 is down to .3-1.7. I am glad to hear that your headaches are gone. My overwhelming fatigue remains..

I am going to set the APAP in CPAP mode at a single pressure setting of 12.8(my 95 percentile pressure is 12.96). I have a feeling that arousals related to sudden fluctuations in pressure might be the root cause of my sub-optimal therapy.

Good suspicion and good plan!


Den

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[ChicagoGranny]

Good suspicion and good plan!

Your hypothesis that the sudden, fluctuations in pressure may be disturbing your sleep is a GOOD starting assumption. Some people do much better on fixed pressure than on APAP. Since your 95% is 12.96cm, it is reasonable to try CPAP at 12.8cm.

I think this is presumptuous without seeing two or three days of details. Has he posted them in another thread?

As has been repeated on here many times, the 95% statistics is often meaningless. For all we know, the machine ran steadily at 7.0 most of the night.

Keep your EPR setting at what you're used to and stick with the fixed pressure setting

It strikes me as odd to think that he cannot tolerate a few pressure changes per night on an Auto setting, but could tolerate and possibly even benefit from a pressure change on every breath.

And what about this ->

No improvement after 2 weeks of Apap therpay. none. not even an ounce. I feel even more tired for some reason because of all the adjustmets I have to make to get used to cpap mask.

?

He reports problems with adjusting the mask and somehow he gets advice on changing the pressure???? WT???

[Wulfman...]

Good suspicion and good plan!

Your hypothesis that the sudden, fluctuations in pressure may be disturbing your sleep is a GOOD starting assumption. Some people do much better on fixed pressure than on APAP. Since your 95% is 12.96cm, it is reasonable to try CPAP at 12.8cm.

I think this is presumptuous without seeing two or three days of details. Has he posted them in another thread?

As has been repeated on here many times, the 95% statistics is often meaningless. For all we know, the machine ran steadily at 7.0 most of the night.

Keep your EPR setting at what you're used to and stick with the fixed pressure setting

It strikes me as odd to think that he cannot tolerate a few pressure changes per night on an Auto setting, but could tolerate and possibly even benefit from a pressure change on every breath.

And what about this ->

No improvement after 2 weeks of Apap therpay. none. not even an ounce. I feel even more tired for some reason because of all the adjustmets I have to make to get used to cpap mask.

?

He reports problems with adjusting the mask and somehow he gets advice on changing the pressure???? WT???

Absolutely!

Rat cheer! ("Right here" for you city folk. )

viewtopic.php?f=1&t=104893&p=990474#p990474


Den

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