Just Diagnosed with Severe Sleep Apnea
- Sheriff Buford
- Posts: 4109
- Joined: Mon Aug 09, 2010 8:01 am
- Location: Kingwood, Texas
Re: Just Diagnosed with Severe Sleep Apnea
While waiting for your machine, educate yourself here first. It will make your adjustment easier.
Sheriff
Sheriff
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Machine: AirSense 11 Autoset |
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Re: Just Diagnosed with Severe Sleep Apnea
Sheriff,Sheriff Buford wrote:While waiting for your machine, educate yourself here first. It will make your adjustment easier.
Sheriff
Shouldn't you now sign your posts with:
Sheriff, Ret.
I hope you were able to retire on time. Earl
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Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
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- WorriedDaddy
- Posts: 15
- Joined: Wed Jul 16, 2014 2:21 pm
Re: Just Diagnosed with Severe Sleep Apnea
UPDATE. - I have OSA
Picked up my ResMed S9 Autoset yesterday and learned mostly everything about the machine. It was set on CPAP mode so I figured I would try that out. It is set at 12.
We also went over my sleep study results. In one hour, they have my AHI at:
101.2 without CPAP.
5.6 AHI with CPAP (low pressure)
0.8 AHI with CPAP (12 pressure)
My O2 dips were:
81% without CPAP
90% with CPAP (low pressure)
93% with CPAP (12 pressure)
My EKG levels were normal with the CPAP and I do not have high blood pressure or anything like that.
So last night I used my full mask (I WILL BE SWITCHING TO PILLOWS) and slept fairly well. I got 6 hours of sleep and my AHI was 1.5 an hour
My only complaint is that I get a lot of air in my stomach from the full mask/CPAP. I woke up at 2AM burping and feeling ill. After I got the air out I felt fine. Definitely coming out of both ends which sucks. I slept flat as directed and then I tried laying at a slant. Both times I still had air in my gut.
Picked up my ResMed S9 Autoset yesterday and learned mostly everything about the machine. It was set on CPAP mode so I figured I would try that out. It is set at 12.
We also went over my sleep study results. In one hour, they have my AHI at:
101.2 without CPAP.
5.6 AHI with CPAP (low pressure)
0.8 AHI with CPAP (12 pressure)
My O2 dips were:
81% without CPAP
90% with CPAP (low pressure)
93% with CPAP (12 pressure)
My EKG levels were normal with the CPAP and I do not have high blood pressure or anything like that.
So last night I used my full mask (I WILL BE SWITCHING TO PILLOWS) and slept fairly well. I got 6 hours of sleep and my AHI was 1.5 an hour
My only complaint is that I get a lot of air in my stomach from the full mask/CPAP. I woke up at 2AM burping and feeling ill. After I got the air out I felt fine. Definitely coming out of both ends which sucks. I slept flat as directed and then I tried laying at a slant. Both times I still had air in my gut.
Last edited by WorriedDaddy on Fri Jul 18, 2014 6:34 am, edited 1 time in total.
- WorriedDaddy
- Posts: 15
- Joined: Wed Jul 16, 2014 2:21 pm
Re: Just Diagnosed with Severe Sleep Apnea
Seriously thanks for everything!!! I owe you and a few others dinnerJulie wrote:![]()
Re: Just Diagnosed with Severe Sleep Apnea
"Slept fairly well for 6 hours"....that's really good for a first night. Heck, it took me about 3 months to get more than 4 or 5 hours when I first started. Good job.
The air in the gut thing...aerophagia...can be more than just annoying. It can make a person physically ill. Been there myself on rare occasion.
Are you using EPR exhale relief? If so at what setting? If not using EPR you might consider adding it as it may help with the aerophagia if it persists with the change in masks.
The air in the gut thing...aerophagia...can be more than just annoying. It can make a person physically ill. Been there myself on rare occasion.
Are you using EPR exhale relief? If so at what setting? If not using EPR you might consider adding it as it may help with the aerophagia if it persists with the change in masks.
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- WorriedDaddy
- Posts: 15
- Joined: Wed Jul 16, 2014 2:21 pm
Re: Just Diagnosed with Severe Sleep Apnea
I will look into the Expiratory Pressure Relief to see if it is enabled. Is this something I can do?Pugsy wrote:"Slept fairly well for 6 hours"....that's really good for a first night. Heck, it took me about 3 months to get more than 4 or 5 hours when I first started. Good job.
The air in the gut thing...aerophagia...can be more than just annoying. It can make a person physically ill. Been there myself on rare occasion.
Are you using EPR exhale relief? If so at what setting? If not using EPR you might consider adding it as it may help with the aerophagia if it persists with the change in masks.
Yeah the aerophagia nearly makes me want to throw up. I had it the night of the sleep study and last night. I am hoping nasal pillows will relieve that...
Re: Just Diagnosed with Severe Sleep Apnea
Yes, EPR usage and at whatever is comfortable setting..is considered something that the patient has control over and it is easy to adjust.WorriedDaddy wrote: I will look into the Expiratory Pressure Relief to see if it is enabled. Is this something I can do?
If not enabled...turn it on and try it at setting of 2 or 3. If it is already enabled hopefully it isn't already set at 3.
EPR reduces the pressure on exhale 1 cm per setting...so setting of 3 will reduce the pressure 3 cm upon exhale.
Sometimes this reduction helps prevent the air from entering the gut.
I don't know if using the nasal pillow mask will give you the relief that you need or not. It might and might not.
Worth trying though.
Sometimes using EPR affects AHI due to reduction in pressure upon exhale...let's cross that bridge only if we need to.
APAP mode may be something to consider also....might be able to use lower pressure for the bulk of the night and only use the 12 cm for part of the night and thus lessen the chance of aerophagia rearing its ugly head.
Should you go to APAP mode...for sure don't have the maximum wide open...you are going to want to use a limited maximum.
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Last edited by Pugsy on Fri Jul 18, 2014 7:00 am, edited 1 time in total.
I may have to RISE but I refuse to SHINE.
- WorriedDaddy
- Posts: 15
- Joined: Wed Jul 16, 2014 2:21 pm
Re: Just Diagnosed with Severe Sleep Apnea
Okay cool. Where can I locate the EPR settings?Pugsy wrote:Yes, EPR use and at whatever is comfortable setting..is considered something that the patient has control over and it is easy to adjust.WorriedDaddy wrote: I will look into the Expiratory Pressure Relief to see if it is enabled. Is this something I can do?
If not enabled...turn it on and try it at setting of 2 or 3. If it is already enabled hopefully it isn't already set at 3.
EPR reduces the pressure on exhale 1 cm per setting...so setting of 3 will reduce the pressure 3 cm upon exhale.
Sometimes this reduction helps prevent the air from entering the gut.
I don't know if using the nasal pillow mask will give you the relief that you need or not. It might and might not.
Worth trying though.
Re: Just Diagnosed with Severe Sleep Apnea
http://www.apneuvereniging.nl/forum/pdf ... manual.pdf
Provider/clinical manual will explain how to get to the clinical setup menu where you can access EPR if you don't have access already. Also explains a bunch of other stuff.
Video here might also help if you haven't seen it.
http://www.cpaplibrary.com/machines.html
Do you have the software yet? SleepyHead will show the settings.
Provider/clinical manual will explain how to get to the clinical setup menu where you can access EPR if you don't have access already. Also explains a bunch of other stuff.
Video here might also help if you haven't seen it.
http://www.cpaplibrary.com/machines.html
Do you have the software yet? SleepyHead will show the settings.
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Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
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I may have to RISE but I refuse to SHINE.
- Drowsy Dancer
- Posts: 1271
- Joined: Mon Feb 28, 2011 9:35 am
- Location: here
Re: Just Diagnosed with Severe Sleep Apnea
When you said you tried sleeping on a slant, do you mean you have a wedge pillow? Or you elevated one end of the bed?
I have one of these bad boys (didn't get it from amazon.com), and it helps: http://www.amazon.com/InteVision-Wedge- ... dge+pillow
I have one of these bad boys (didn't get it from amazon.com), and it helps: http://www.amazon.com/InteVision-Wedge- ... dge+pillow
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Machine: PR System One REMStar 60 Series Auto CPAP Machine |
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How we squander our hours of pain. -- Rilke
- WorriedDaddy
- Posts: 15
- Joined: Wed Jul 16, 2014 2:21 pm
Re: Just Diagnosed with Severe Sleep Apnea
Cool I watched the videos and now know how to locate/change some stuff.Pugsy wrote:http://www.apneuvereniging.nl/forum/pdf ... manual.pdf
Provider/clinical manual will explain how to get to the clinical setup menu where you can access EPR if you don't have access already. Also explains a bunch of other stuff.
Video here might also help if you haven't seen it.
http://www.cpaplibrary.com/machines.html
Do you have the software yet? SleepyHead will show the settings.
Currently my EPR settings are:
EPR = OFF
EPR LEVEL = OFF.
I will switch to:
EPR = FULL TIME
EPR LEVEL = 2.
Hope this helps my air gut issues.
Not to rub it in or anything but I feel like a million bucks this morning . I am actually...functional
- BlackSpinner
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Re: Just Diagnosed with Severe Sleep Apnea
Congratulations!WorriedDaddy wrote:
Not to rub it in or anything but I feel like a million bucks this morning . I am actually...functional
I don't think a different mask is what will make the difference. If you were mouth breathing with the FFM then a nasal mask can be a problem, opening your mouth with a nasal mask means you let the therapy air out. For me laying on my left side helps a lot, hang the mask over the edge of the pillow.
You may also want to switch to auto after trying cpap 12 for a few days - that way it only goes up to the problem pressure when it needs to.
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- WorriedDaddy
- Posts: 15
- Joined: Wed Jul 16, 2014 2:21 pm
Re: Just Diagnosed with Severe Sleep Apnea
Still having that nasty air pocket. Ahhhhhh. Trying to deburp currently
Re: Just Diagnosed with Severe Sleep Apnea
Some of us have raised the head of the bed by (no more than) 4-6" on blocks - it supposedly helps with aerophagia and GERD (if that could be an issue, sometimes 'silent' when asleep).