Sleapy head what ???????????

[this-sucks]

ok like in posts im not a data guy or checker

but for the heck of seeing what that sd card is for and doing i did the sleepy head soft it was a pain to find out how to make it read my card but got it finally

im very sorry i tried to do the tutorial post im adhd and it overwhelming

i amd just curious

the main ones are snore and the events im not really worried or care but just want to have a lil help knowing whats what and whats on the high end so if there is out of wack i can get it checked thanks allot

(wow allot of confusing crap on there no wonder its a sleep therapist or docs job)

[123.Shawn T.W.]

Leaks!

Then check ahi for the night, how is it broken down? (Pie chart on left)

Preasure?

[this-sucks]

where in my post did i say or care about leaks leaks to me are a joke and dont matter unless a blow out the machine adjusts for those

i clearly asked for the main one events snore all that crap the rest i said dont matter i am just wondering what all the important ones mean

but thanks for trying

[BlackSpinner]

where in my post did i say or care about leaks leaks to me are a joke and dont matter unless a blow out the machine adjusts for those

i clearly asked for the main one events snore all that crap the rest i said dont matter i am just wondering what all the important ones mean

but thanks for trying

You are wrong. Leaks cause all sorts of trouble. Always check your leak line first.

And a little courtesy goes a long way when asking for help/

[robysue]

where in my post did i say or care about leaks leaks to me are a joke and dont matter unless a blow out the machine adjusts for those

Unless the leaks are under control, the rest of the data is unreliable. So that's why you've been told three times (counting me) that leaks are important.

i clearly asked for the main one events snore all that crap the rest i said dont matter i am just wondering what all the important ones mean

If the leaks are under control, then the secon thing to look at is your AHI. Is it less than 5?

The third thing to look at is the distribution of the events in the events table. Are they spread evenly through the night or are there nasty clusters of events at certain times of the night?

Snores are much, much farther down the list.

To reiterate: The top three things to look at in your data:

1. Leak line.
2. Overall AHI.
3. Are there clusters of events?

[this-sucks]

well sorry i my manners slipped i have never looked or cared so even though 2003 till now this part im new at and until now dint care or know there was free soft to check

and in my ignorance (or my doc and the list of people) never informed me of it being important or matter back in 2003 they checked 3 or so and never since never said anything about leaks even my sleep lab didnt say about leaks may to the doc but not me

so i have not considered and also told machine would adjust pressure and bring levels back to norm despite leaks i use bipap rem something like in my info so if im wrong sorry never informed or taught right

Channel Min Med 95% Max
EPAPExpiratory Pressure (cmH20)
W-Avg: 12.00 12.00 12.00 12.00 12.00
IPAPInspiratory Pressure (cmH20)
W-Avg: 18.50 18.50 18.50 18.50 18.50
PSPressure Support (cmH20)
W-Avg: 6.50 6.50 6.50 6.50 6.50
Minute Vent.Minute Ventilation (L/min)
W-Avg: 10.89 0.12 8.62 24.50 38.00
Resp. RateRespiratory Rate (breaths/min)
W-Avg: 13.64 8.91 12.20 21.80 25.40
LeaksLeak Rate (L/min)
W-Avg: 2.48 0.00 0.00 9.00 39.00
Total LeaksTotal Leak Rate (L/min)
W-Avg: 48.60 0.00 50.00 57.00 76.00
SnoreSnore (unknown)
W-Avg: 1.01 0.00 0.00 7.00 11.00
Insp TimeInspiratory Time (seconds)
W-Avg: 2.01 0.46 1.92 2.72 4.06
Exp TimeExpiratory Time (seconds)
W-Avg: 2.67 0.20 2.86 4.06 4.52
Tidal VolumeTidal Volume (ml)
W-Avg: 797.47 13.33 740.00 1500.00 2260.00

there is one of the sleepy areas not sure if all the info is there

i have sever unreversable osa my lab it seem no other and hasnt been heard of had a scale 1to 5 said im a 3 just rest no rem no regn nothing i can interact and hear all around me while dreaming and dont know what you call it not reall sleep

i have arthritis fibro destroyed lower back migraines the works thrown at me i feel worse in the morn than when i laid down just no sore burning eyes and other crap you get when tired

so its allot of fun 2 sleep studies 2 doc auth pressure increases doc wont do sleep lab anymore because of my condition and that i have 10 or more other disorders problems and 20 or more meds including one to keep me awake during the day or i have what ever you want to call it episode sittin doing something next i know im wakeing or whatever also a little energy and alert enough to safely drive and other stuff

so sorry i get a lil testy i seem to be lifes joke and yes i know and have talked to worse off but all this s piled on you and being 100 over my normal weight and all i can do is keep it steady from meds disorders breaks your back and patience

also forgive my whinny sob story thanks for caring and helping

[this-sucks]

Details Most Recent Last 7 Days Last 30 Days Last 6 months Last Year
AHI 14.91 4.48 5.94 7.50 10.57
RERA Index 0.00 0.00 0.00 0.00 0.00
Hours per Night 06:10 08:16 07:09 07:25 07:36
Min EPAP 12.00 12.00 4.00 0.00 0.00
95% EPAP 12.00 12.00 12.00 12.00 12.00
Max IPAP 18.50 18.50 20.00 20.00 20.00
95% IPAP 18.50 18.50 20.00 20.00 20.00
Average Total Leaks 48.60 41.33 46.14 11.47 9.01
95% Total Leaks 57.00 55.00 88.00 88.00 88.00

[JohnBFisher]

Details Most Recent Last 7 Days Last 30 Days Last 6 months Last Year
Average Total Leaks 48.60 41.33 46.14 11.47 9.01
95% Total Leaks 57.00 55.00 88.00 88.00 88.00

The average being so close to the 95% mark tells me that most of those first three (most recent, last 7 days, and last 30 days) you had a lot of leaking. Too much, in all likelihood. (It might indicate a mask that needs to be replaced). And by not having the leaks under control you probably had poorer sleep that you would like. By the way, poor sleep tends to only amplify pain. So, if you want to better manage your pain you might want to pay attention to the data. But if you don't give a damn and just want to complain about the pain, then I sure won't stop you. But I'm betting that you would much rather live without the pain.

[this-sucks]

wow talk about lousy manners thats worse than my ass post i dont bitch if i bitched i would sit on my ass and let it go to hell screw you

i apologized and omg oops i forgot you dont open up or tell your story on dam forums

screw all the i said this crab want whine and bitch im adhd i dont always read or get everything

and leaks check my fucking info you illiterate i said i was never told until hear i said the dam idiots told me machine would do it

and rest and pain i was diagnosed at 18 i think i know what the hell causes pain by know i think after 3 years i know what my sleep disorder is and how it affects me

yest it may make a dam difference but my diagnoses at a lab with a mask and machine they control everything leaks the works told me im screwed it will never be nice like most and feel better

new mask im medicare just got one a couple weeks ago

my mask is tight you can go all around and feel no leaks it already gives me a headache and straps are close to max

i have a shit humidifier door i have a shit machine fixed 2 times already needs a 3rd but all the places are fucking with me cant get it repaired

forum admins ban me im done holding my tong im done being courteous im dont with all the bull shit i have to put up with on forums because im different not fucking stupid not fucking trying

im a old enough age and enough forum bans to know i cant find a way to fucking change troubles getting it out right grammatical English bullshit skills and troubles with mem and reading it right and also remembering hearing or reading

so screw this polite shit look at all my posts manners apologize if wrong or out of line im so sick of this bullshit holding my rage problems in for hot button points of my life so post screams ban im done

i fucking apologized explained and told to dam much and now you have the balls to say
[By the way, poor sleep tends to only amplify pain. So, if you want to better manage your pain you might want to pay attention to the data. But if you don't give a damn and just want to complain about the pain, then I sure won't stop you. But I'm betting that you would much rather live without the pain.]

asshole i live with more pain than any of you can imagine o yes i love it o yeas i want it worse hell yea i want to live and wallow in it you want that bullshit go to fibro and pain forums where assholes do live wallow and just lay down i dont wallow i fight i walk i use a chiro i refuse to just sit around like most

so screw the hell off you have no clue about my life my pain or other disorders and how the fuck i deal with them i live with the hospitals joke scale a 10 is a dam good day so pick your proctologist and pull it out

[robysue]

this-sucks,

The short version of this post is: The data you've posted shows your therapy is not working as well as it should.

To help you figure out what the issues might be, we need to know some more basic information.

What kind of a machine are you using?

I can tell that you are using a bilevel machine of some sort. Is it a PR BiPAP or is it a Resmed VPAP?

That information will help me better help you with your data. It looks like you are using a PR BiPAP. So that's what I assume in the rest of this post.

You write:

"this-sucks"]im wrong sorry never informed or taught right

No need to apologize. Lots of people are never taught anything at all about OSA or their machines by their docs. It's sad.

You write:

LeaksLeak Rate (L/min)
W-Avg: 2.48 0.00 0.00 9.00 39.00
Total LeaksTotal Leak Rate (L/min)
W-Avg: 48.60 0.00 50.00 57.00 76.00

First a few of important definitions.

• Leak rate measures your unintentional leaks. Unintentional leaks are the bad kind.
• Total leak rate measures both your intentional leak rate AND your unintentional leak rate.
• The intentional leak rate is the rate built into the mask to prevent you from rebreathing CO2. As pressure goes up, the intentional leak rate goes up. When you feel air coming out of the vents in the mask you are feeling the air in the intentional leak rate.
• Leaks are measured in L/min, which stands for "Liters per minute." A liter of air is roughly the volume of air in a quart-sized bottle. A leak rate of 10 L/min means that you are losing 10 quart-sized bottles of air each minute above and beyond what the mask is supposed to lose through the vent holes.

Next: There are two problems when the unintentional leaks become too large. First, the machine can have problems maintaining enough pressure to prevent your apneas and so you can have more apneas than you should be having. Second, the machine has trouble tracking your breathing and so it may not properly flag all the events that occur during a large leak.

So how large does a leak need to be before it is large enough to cause problems? That depends on the machine you are using.

To interpret your numbers, I need a bit more information, but I can take a guess. It looks like you are using a PR System One BiPAP. On the PR System One, long unintentional leaks that are about 35-40 L/min are big enough to cause problems for most people.

Your minimum unintentional leak rate is 0.0 L/min. Minimum unintentional leak rate is not very meaningful.

Your median unintentional leak rate is 0.0 L/min. That means that for at least 50% of the night, the machine could detect no unintentional leaking. That's good.

Your 95th percentile unintentional leak rate is 9.00 L/min. That means that for 95% of the night, the machine was detecting an unintentional leak rate that was LESS THAN or EQUAL TO 9.00 L/min. That number is very good. It means that the rest of your data is reliable. In general if your 90th or 95th percentile unintentional leak rate is less than 20-25 L/min, you can assume that you have no leak problems and that the rest of your data is reliable.

Your maximum unintentional leak rate is 39.00 L/min. That means that at some point during the night your unintentional leak rate got as high as 39 L/min. Because your 90th percentile leak rate is only 9.0 L/min, we know that your largest leak was not very long. You can ignore the maximum unintentional leak rate if the 90th leak rate is much smaller than the maximum one.

For now you can ignore the Total Leak Rate numbers. They are typically are much higher than the unintentional Leak numbers. I can tell that the expected leak rate for your mask and at your pressures is somewhere around 50 L/min.

You also write:

Details Most Recent Last 7 Days Last 30 Days Last 6 months Last Year
<some data omitted>
95% Total Leaks 57.00 55.00 88.00 88.00 88.00

Your 95% Total Leak rates for last night (57 L/min) and last 7 days (55 L/min) are close enough to the expected leak rate of 50 L/min. The data gathered in the last 7 days is reliable and you have not been dealing with bad leaks during this time.

The 95% Total Leak rate for the last 30 days is 88.00 L/min. That's close to 40 L/min above your masks expected leak rate of 50 L/min. That number is large enough to say that leaks may have been a serious problem on some (perhaps many) of the days in the last 30 days.

The 95% Total Leak rater for the last 6 months is 88.00 L/min. That's close to 40 L/min above your masks expected leak rate of 50 L/min. That number is large enough to say that leaks may have been a serious problem on some (perhaps many) of the days in the last six months.

The 95% Total Leak rater for the last year is 88.00 L/min. That's close to 40 L/min above your masks expected leak rate of 50 L/min. That number is large enough to say that leaks may have been a serious problem on some (perhaps many) of the days in the last year.

My interpretation of your leak data: Your last week has been good, but there is evidence that you are battling some serious leaks at least some of the time. You need to learn to look at the leak graph in the daily data each day as well as the numbers. You want to look for large hills in the leak graph. The leak graph may be confusing because there will be two graphs---one for Leak and one for Total Leak. For now focus on the bottom graph. If its tallest hills and peaks are below 25 L/min, you don't need to worry about leaks. But if you have long periods of time where your unintentional Leak graph is above 30 or 40 L/min, then you had some problems with leaking during the night.

You also write:

Details Most Recent Last 7 Days Last 30 Days Last 6 months Last Year
AHI 14.91 4.48 5.94 7.50 10.57
RERA Index 0.00 0.00 0.00 0.00 0.00
Hours per Night 06:10 08:16 07:09 07:25 07:36

The usage numbers are decent---particularly if you are using the mask all night every night.

But the AHI numbers are not where we want them to be. You want all the AHI numbers to be less than 5.0. If the machine brings your AHI down to less than 5.0 every night, then therapy is said to be effective---the machine is doing its job. But if the AHI often above 5.0, that's a concern.

Last night you had a (treated) AHI = 14.91 AND your leaks were under control. That says that way too many events got through the machine's protection last night. But more troubling is the fact that your long term AHI numbers are also too high: In the last year your AHI averaged about 10.6 and that's twice as high as we want it to be. And there's some evidence that you have had some problems with potentially large leaks. That means that the yearly AHI = 10.57 may underestimate the true number of events. This could mean your doctor needs to adjust your pressure. Or it could be that you have had some leak problems that are causing your therapy to not be effective. And if leaks are the problem, then the AHI might be higher than the reported 10.57

In other words: Your therapy is not working as well as it should.

[DreamDiver]

I'm actually kind of amazed that you're having such large leaks with a total-face mask. But I've not used one of these, so I don't know how well they fit. I wonder if your straps are too loose or too tight. Either way, if this is normal for you, have you considered trying a new mask?

I'm pretty partial to the Mirage Quattro FX Full-face currently.
Here's a list of the top five best-rated full face masks on cpap.com. I've tried them all except for the flexifit, and I find them each to be pretty decent. (Listed below for forum posterity.)

The first two are fairly tried-and-true. Most people who like full-face masks can use these without problems.
The last two are my current favorites for different reasons. I like the ZZZ because you can scratch your nose with the mask on. I like the Quattro FX because it solves a lot of the nose-bridge/forehead problems many people have with the first two on the list.

• Mirage Quattro™ Full Face
• Ultra Mirage™ Full Face
• FlexiFit HC431 Full Face
• Zzz-Mask Full Face
• Quattro™ FX Full Face

[robysue]

and in my ignorance (or my doc and the list of people) never informed me of it being important or matter back in 2003 they checked 3 or so and never since never said anything about leaks even my sleep lab didnt say about leaks may to the doc but not me

Sleep docs and DMEs are notorious around here for not educating OSA patients about their condition, their prescribed therapy, or their machines.

But you've found us, so start working on learning some stuff. I know you're not feeling well and that there's a lot to digest, but you can take your time and read and re-read the material you need to understand.

i have sever unreversable osa my lab it seem no other and hasnt been heard of had a scale 1to 5 said im a 3 just rest no rem no regn nothing i can interact and hear all around me while dreaming and dont know what you call it not reall sleep

We're lost here. In the US, the severity of OSA is measured by the AHI on the diagnostic sleep test. The usual cut offs are:

AHI >= 30 means severe OSA
15 <= AHI < 30 means moderate OSA
5 <= AHI < 15 means mild OSA

And AHI is the apnea-hypopnea index. It's the number of times you stop breathing in one hour of sleep (on average).

We don't know what you are talking about when you mention this 1-5 scale.

Other things to consider:

• OSA is unreversable for all of us; but we manage it by using PAP machines
• Many of us on this board had no REM in our diagnostic study; once therapy is working correctly we do get into REM
• If you can " interact and hear all around me while dreaming" you may have more than one sleep disorder. But only a sleep doc can properly evaluate you to see if there's something else going on with your sleep in addition to the OSA.

i have arthritis fibro destroyed lower back migraines the works thrown at me i feel worse in the morn than when i laid down just no sore burning eyes and other crap you get when tired

so its allot of fun 2 sleep studies 2 doc auth pressure increases doc wont do sleep lab anymore because of my condition and that i have 10 or more other disorders problems and 20 or more meds including one to keep me awake during the day or i have what ever you want to call it episode sittin doing something next i know im wakeing or whatever also a little energy and alert enough to safely drive and other stuff

We get it: You are in serious pain. And you're tired all the time. And you've got a complex medical history. And it sounds as though you've been prescribed Novigil or Provigil to keep you awake during the daytime.

But in order for us (or your docs) to help you, we need to have a clear idea of what's going on. For example, you say you have "10 or more other disorders and problems" and you've named a few of them. But what we (and your medical team) need in order to help is a list with four columns like this one that I've started with what I can gather from your posts:

Medical condition Prescribed therapy/drugs How is the therapy/drugs tracked? How well is the therapy/drugs working?
arthritis ???? ???? still in pain---when? how bad?
fibromyaglia ???? ???? still in pain
lower back problems ???? ???? still in pain---when? how bad?
migraines ???? ???? not under control--how many per month?
OSA BiPAP at 18.5/12 data is not looked at by docs AHI > 5.0 on many nights
excess daytime sleepiness Novigil?Provigil? ????? ????

So instead of lashing out at us, why not help us help you?

[robysue]

wow talk about lousy manners thats worse than my ass post i dont bitch if i bitched i would sit on my ass and let it go to hell screw you

You are the only one using this kind of language in this thread.

screw all the i said this crab want whine and bitch im adhd i dont always read or get everything

HUH???? I've read and re-read every word you've written. It's difficult to understand what you are saying. If you are saying you have ADHD and you don't always read everything, then maybe you should NOT start cussing people out before you've actually read what they've said when they're trying to help you.

and leaks check my fucking info you illiterate i said i was never told until hear i said the dam idiots told me machine would do it

Several of us politely but firmly pointed out the need to look at the leak data precisely because it was clear that your sleep doc and the DME had NOT bothered to point out to you the fact that you need to worry about leaks. It is NOT our fault that your doctor and DME never told you about leaks. It is NOT our fault that your doctor and DME just told you to go use the d*ang machine.

And, contrary to what you seem to think, we DO know that doctors and DMEs are stupid or careless enough to not mention leaks. Many of the posters here started with stories like yours. But they listened when we said: "Look at the leaks." And they read our posts when we tried to provide some real insight and help. And they decided to learn something about OSA.

yest it may make a dam difference but my diagnoses at a lab with a mask and machine they control everything leaks the works told me im screwed it will never be nice like most and feel better

Again. We get it. No-one ever at the lab ever bothered to tell you about leaks.

But you are NOT "screwed" unless you allow yourself to be screwed. You can make the decision that it will never be nice and that you'll never feel any better. Or you can decide to take charge of your health, learn about your conditions, fire the docs who are not helping and replace them with ones that are willing to work with you and educate you about your conditions and their prescriptions to treat those conditions.

my mask is tight you can go all around and feel no leaks it already gives me a headache and straps are close to max

Sounds like your DME also didn't bother to teach you the proper way to fit your mask. Most masks are NOT supposed to be tight. Overtightening a mask can cause leaks, but the average DME just keeps telling folks to "tighten the mask".

Seriously, loosen the straps on the headgear. Depending on the particular mask you are using, the headgear may need to be snug, but not tight. Or it could be that the headgear actually needs to be on the loose side.

i have a shit humidifier door i have a shit machine fixed 2 times already needs a 3rd but all the places are fucking with me cant get it repaired

Report this problem to Medicare and find a new DME.

forum admins ban me im done holding my tong im done being courteous im dont with all the bull shit i have to put up with on forums because im different not fucking stupid not fucking trying

You'll have to do more than this to get banned around here

Seriously though: Given your writing style I can see why a heavily moderated forum (unlike this one) would have moderators who would ban you.

On cpaptalk.com, however, the moderators have only banned one individual that I'm aware of in the time I've been posting. He was banned because:

You can not tell CPAPtalk that you are affiliated with organizations when in fact you are not. Perhaps calist worked there at one time, perhaps there are other nuances at play but these are between calist and NJH. I've got a letter from National Jewish health saying he's not employed by them. A corporation sends that letter in one and only one case - when they aren't employing the person in question. This false representation has resulted in the ban.

(For the whole post banning calist see viewtopic.php?f=1&t=56555&p=530733&#p530710)

im a old enough age and enough forum bans to know i cant find a way to fucking change troubles getting it out right grammatical English bullshit skills and troubles with mem and reading it right and also remembering hearing or reading

You won't get banned on this forum for this kind of language. But you will soon be ignored by a lot of people who could provide you with high quality help if you learn to allow them to help you.

so screw this polite shit look at all my posts manners apologize if wrong or out of line im so sick of this bullshit holding my rage problems in for hot button points of my life so post screams ban im done

Rage solves nothing.

That said. I hope you're not done with cpaptalk because you are in obvious pain. And you are NOT getting the help you need from the doctors treating you. And there's a lot we can teach you---if you are willing to learn

asshole i live with more pain than any of you can imagine o yes i love it o yeas i want it worse hell yea i want to live and wallow in it you want that bullshit go to fibro and pain forums where assholes do live wallow and just lay down i dont wallow i fight i walk i use a chiro i refuse to just sit around like most

Unfortunately, you are coming across as someone who wants to wallow in their pain and ignorance. We tell you "look at leaks" because in our experience, problems with leaks lead to significant problems with every aspect of CPAP therapy, and you tell us "I don't need to look at leaks because my docs and dmes said the machine takes care of everything."

so screw the hell off you have no clue about my life my pain or other disorders and how the fuck i deal with them i live with the hospitals joke scale a 10 is a dam good day so pick your proctologist and pull it out

And same to you. I've tried to help. Or perhaps a better way to put it is I've spent all afternoon reading your posts and writing thoughtful, polite, and informative replies because you seem like you are someone who is in deep trouble with regards to PAP. I don't expect a thank you. But I also don't expect to be told to go f*ck myself for making some pointed suggestions about what you need to do to take charge of your own health when it comes to managing your OSA

[kteague]

Hi. Being physically miserable for many years can certainly take its toll. Hate to even think of how having so many issues must feel. And with this stuff there can be a lot to learn, but you don't have to master everything at once. I came here knowing nothing about this treatment, remember asking in an early post what AHI meant. Had to learn it in bits and pieces as my comprehension was pretty much absent. I just want to encourage you that this step of seeking to optimize your treatment may very well be a turning point for you. Getting this right is a cornerstone of finding what our personal best health can be. CPAP won't magically fix everything that's wrong with you, but it's amazing what healthy sleep and oxygen can do to give your body and brain what it needs to experience some healing. Some (including me) have found over time the need for medications changes. I have been able to get off several and reduce the doses of the ones I still need. I certainly don't miss those side effects! While being "well" may not be in the cards for me, being better and not so utterly miserable is enough of an improvement to make life more than just tolerable. I do hope you can find all the little ways improvement is in the cards for you and find your way to a better existence.

[this-sucks]