Sorry I've been MIA!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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SleepyonMagnoliaSt
Posts: 358
Joined: Sat May 04, 2013 8:56 pm
Location: Indiana

Re: Sorry I've been MIA!

Post by SleepyonMagnoliaSt » Fri Jun 28, 2013 6:24 pm

jdm2857 wrote:I have a 6' green SnuggleHose that came with the BiPAP I purchased from a forum member. I don't use it.
Looks like new.

If you'd like it, its yours.
PM coming

_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4

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SleepyonMagnoliaSt
Posts: 358
Joined: Sat May 04, 2013 8:56 pm
Location: Indiana

Re: Sorry I've been MIA!

Post by SleepyonMagnoliaSt » Fri Jun 28, 2013 6:25 pm

SleepingUgly wrote:Looking good! What pressure is she on? Is she able to keep her mouth shut all night?
Yup she's a 100% nose breather (unless she's sick)

She starts on 4 and it goes up to 6. Not high but for kids it's what they really 'start' them on. If in a month or two her AHI is high they'll adjust as needed

_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4

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SleepyonMagnoliaSt
Posts: 358
Joined: Sat May 04, 2013 8:56 pm
Location: Indiana

Re: Sorry I've been MIA!

Post by SleepyonMagnoliaSt » Fri Jun 28, 2013 6:46 pm

JohnO wrote:What a cute kid! I'm so glad to hear the CPAP therapy seems to be working for her. One of the things that made CPAP seems less "medical" for me was getting a fleece hose cover. It looks good, and when the hose rubs my wooden heard board, it does not make a gratings sound.

Here is one example: https://www.cpap.com/productpage/snuggl ... cover.html

I have that one. I ended up sewing my own shorty for the small diameter hose on the mask itself. If I had an actual sewing machine, I would just make the whole 6 foot one myself.

Again, congratulations!
I hear that John! Her hose is help up with a wrought iron plant holder. It makes a horrible nose when her hose drags across it.

_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4

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SleepyonMagnoliaSt
Posts: 358
Joined: Sat May 04, 2013 8:56 pm
Location: Indiana

Re: Sorry I've been MIA!

Post by SleepyonMagnoliaSt » Fri Jun 28, 2013 6:49 pm

Here's how things are laid out and it's working amazingly right now

Image

The top of her bed is raised up a bit since she seems to breathe easier that way

_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4

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OutaSync
Posts: 2048
Joined: Sun Sep 23, 2007 8:49 am
Location: Virginia

Re: Sorry I've been MIA!

Post by OutaSync » Sat Jun 29, 2013 9:43 am

Her sleeping that first night with her little mask is about the cutest thing I've ever seen. Enough to bring tears to this grandma's eyes.
Diagnosed 9/4/07
Sleep Study Titrated to 19 cm H2O
Rotating between Activa and Softgel
11/2/07 RemStar M Series Auto with AFlex 14-17
10/17/08 BiPAP Auto SV 13/13-23, BPM Auto, AHI avg <1

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SleepingUgly
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Joined: Sat Nov 28, 2009 9:32 pm

Re: Sorry I've been MIA!

Post by SleepingUgly » Sat Jun 29, 2013 11:12 am

SleepyonMagnoliaSt wrote:She starts on 4 and it goes up to 6.
I assume that's a ramp, and not an Auto-PAP range? Is she on CPAP or APAP?
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly

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SleepyonMagnoliaSt
Posts: 358
Joined: Sat May 04, 2013 8:56 pm
Location: Indiana

Re: Sorry I've been MIA!

Post by SleepyonMagnoliaSt » Sat Jun 29, 2013 1:35 pm

SleepingUgly wrote:
SleepyonMagnoliaSt wrote:She starts on 4 and it goes up to 6.
I assume that's a ramp, and not an Auto-PAP range? Is she on CPAP or APAP?
That's a ramp. She's on CPAP not Auto

_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4

User avatar
SleepyonMagnoliaSt
Posts: 358
Joined: Sat May 04, 2013 8:56 pm
Location: Indiana

Re: Sorry I've been MIA!

Post by SleepyonMagnoliaSt » Sat Jun 29, 2013 1:38 pm

OutaSync wrote:Her sleeping that first night with her little mask is about the cutest thing I've ever seen. Enough to bring tears to this grandma's eyes.
For some reason I find her sleeping with her mask THE most adorable thing in the world I have another pic LOL

Image

THat's her build a bear kitty. He wears her mask when she isn't lol

_________________
Mask: Wisp Pediatric Nasal CPAP Mask with Headgear - Fit Pack
Additional Comments: Equipment information is for my daughter, not myself. Pressure is 8 with a ramp at 4

ems
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Joined: Fri Jul 29, 2011 12:46 am

Re: Sorry I've been MIA!

Post by ems » Sat Jun 29, 2013 2:09 pm

How peaceful she looks~ however, this grandma thinks you should move the teddy bear away from her little face a bit. I know... I know... it obviously isn't bothering her, but it's bothering me.
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~