my continuing saga./.........

pharmwoman · Post by **pharmwoman** » Wed Apr 19, 2006 7:29 am

thank you in advance for those who read my whining.........I am over emotional as I am having minor surgery on friday and am nervous.
summary: 1)I love the breeze but Im a mouth breather--with my mouth taped, the breeze is flung off several times a nite. I could live with the breeze, as I love it but my hubby cannot deal with the sound of my mouth dropping open.
2) tried the comfort full mask, which was ok, not stellar, but it has a huge front port and hubby hated that too. LOL.
3) the fisher paykel--that is a very very nice mask--doesnt really have any issues so far except perhaps I sleep too well, in the last few nites I get up to go to the bthroom and twice forgot to rehook it and basically huby woke up with the machine going full steam and me laying there unhooked.
Last nite, for whatever reason, I felt a bit claustrophobic in the FP mask and switched to the breeze and ended up so frustrated I really got no sleep.

huby feels a sound machine will not mask the sound of the machine when its unhooked for me to go to the bathroom, Im thinking I should just turn the machine off when i get up and turn it back on when I get back--
Unfortunately, CPAP has not cured me of waking up several tiems a nite to go potty.

any thoughts?? I am really really frustrated beyond belief. Apparently my nsnoring was never that much of an issue as he would nudge me, i would stop--but the cpap is too noisy for him. Am I destined for separarte bedrooms?? GRRRRR.
Thanks for listening:)

NightHawkeye · Post by **NightHawkeye** » Wed Apr 19, 2006 8:01 am

pharmwoman wrote: . . . the fisher paykel--that is a very very nice mask--doesnt really have any issues so far except perhaps I sleep too well, in the last few nites I get up to go to the bthroom and twice forgot to rehook it and basically huby woke up with the machine going full steam and me laying there unhooked.

. . . Im thinking I should just turn the machine off when i get up and turn it back on when I get back--

Pharmwoman, it sounds to me like you've already found the right equipment. You've got equipment that works well for you - that's the hard part. Congratulations, that part's done!

Now the easy part - adjust your routine to accommodate your equipment.
1) When you get up at night . . . take the mask OFF, turn machine OFF.
2) When you come back to bed, put mask ON, turn machine ON.

That's what I do, anyway. I just don't feel right without the mask on at night anymore, so when I get up, even if I lie back down without it on, it doesn't feel right and so then I put the mask on. I'm not familiar with the F&P, but all my masks go on and off pretty easily without readjustments.

Sounds like you've got everything else under control. I wish you the best.

Regards,
Bill

jcobb607 · Post by **jcobb607** » Wed Apr 19, 2006 8:21 am

Try taking a tablespoon of honey before bedtime to cure nightly bathroom trips. When my son was having trouble getting through the night without wetting the bed we ran across this information and it worked well for him.

Barnaby · Post by **Barnaby** » Wed Apr 19, 2006 8:37 am

Have you cut back on intake of fluids after about 8 PM?? that might cut out the potty routine. Yes, I do touch the off button before stepping out of bed and after getting back into bed i tur nit back on when comnected up.

tater pie · Post by **tater pie** » Wed Apr 19, 2006 8:50 am

I'm gonna try the tablespoon of honey before going to bed. Will any type of honey work or does it have to be raw honey? I've never really cured the going to the bathroom at least once and sometimes twice a night even though I don't drink anything after 7:00 p.m.

Bellcrest · Post by **Bellcrest** » Wed Apr 19, 2006 11:58 am

None of this is easy for us or for our spouses. Sounds like your spouse if a little difficult to please.

Each morning my DH asks how I slept. I tell him how many events I had after reading the data and he jokingly says well, I only had 2 windstorms last night so it was a good night.

I am still in the trial and error phase as are you, and finding a mask that works and is 'acceptable' to the other half is not an easy task.

While he may not have had much issue with your snoring, you now know that this is your health at risk.

I turn the machine off and take mask off for trip to the bathroom.

Guest · Post by **Guest** » Wed Apr 19, 2006 2:30 pm

Can I presume that your minor upcoming surgery will not entail anesthesia and therefore no need to bring along the cpap?

pharmwoman · Post by **pharmwoman** » Wed Apr 19, 2006 2:53 pm

thanks for the nice replies--no i do not need my cpap for the procedure, i checked. Im going to keep trying the FP because i want the full benefit of cpap and I know with the breeze Im not.Thanks again!!

jcobb607 · Post by **jcobb607** » Wed Apr 19, 2006 3:19 pm

Im assuming any type of honey will work. We bought it at the grocery store.

RestInSeattle · Post by **RestInSeattle** » Wed Apr 19, 2006 5:15 pm

pharmwoman wrote:1)I love the breeze but Im a mouth breather--with my mouth taped, the breeze is flung off several times a nite. I could live with the breeze, as I love it but my hubby cannot deal with the sound of my mouth dropping open.

3) the fisher paykel--that is a very very nice mask--doesnt really have any issues so far except perhaps I sleep too well, in the last few nites I get up to go to the bthroom and twice forgot to rehook it and basically huby woke up with the machine going full steam and me laying there unhooked.
Last nite, for whatever reason, I felt a bit claustrophobic in the FP mask and switched to the breeze and ended up so frustrated I really got no sleep.

As to #1, I use both a chin strap and then some tape to keep air leaks from happening between my lips. Without the chinstrap for extra support the tape would not hold. So you may be a canidate for a chinstrap to assist with the mouth breathing.

#3, changing habits to always turn of the machine before unhooking the mask I use (Mirage Swift nasal pillows, another favorite besides the breeze) keeps me from waking my spouse. Sometimes this is unavoidable if arms are wrapped around me. Of course a good blast from the mask is good when you don't want nocturnal groping

pharmwoman · Post by **pharmwoman** » Wed Apr 19, 2006 5:27 pm

I had a really long conversation with my DME today and asked him about everything--he remembers giving me the FP mask and he was so nice to talk to-he feels that if I can get used to the FP mask, to stick with it, as i will get full benefit form C-pap--he also suggested turning machine off then i get up at nite--he also echoed what many of you have expressed here that it is a long process and frustrating--but he said to try and avoid switching between masks from nite to nite and try to stick with the same thing. he also mentioned how great the humidification is for folks with allergies:):)

roster · Post by **roster** » Wed Apr 19, 2006 5:32 pm

IMHO, raw honey is too much danger of food poisoning, so I would only use the pastuerized type. I doubt honey will help, but try it anyway.

Going to the bathroom, I turn the machine off so it doesn't disturb my honey. I wrap the hose around my neck and leave the mask on for the bathroom trip. Then I can get quickly back to bed with the least amount of fuss. The more fuss you make, the more awake you get, and the longer it will take to get back to sleep.

Once the cpap therapy kicked in, there was much less urge to "go" during the night.

I drink a lot of fluids during the day and finish up with 16 ounces of water at 4:00 p.m. Later than 4:00, I will only drink a few ounces with dinner.

P.S. Carefully wrap the hose around your neck. You don't want the machine end of the hose dipping in the commode. LOL

RestInSeattle · Post by **RestInSeattle** » Wed Apr 19, 2006 5:47 pm

rooster wrote: P.S. Carefully wrap the hose around your neck. You don't want the machine end of the hose dipping in the commode. LOL

Before the Mirage Swift nasal pillows, I disconnected the hose from the mask so that it was easier to breath without pressure. With the Mirage, I can slip it off like a baseball cap (phrase used from the instructions). Leaving the hose on sounds like it'd be noisy as it rubbing together is what frequently wakes my spouse.

As to the bathroom issue, I also had reduction after a while on therapy and also getting treatment for an inflamation of the pelvic muscle under the bladder (kinda like a PID, but no infection). Made it feel like I had to go so I'd wake up. After treatment, this was resolved. So if this continues, you may want to follow up on this with your physician.

jcobb607 · Post by **jcobb607** » Wed Apr 19, 2006 5:49 pm

Why would you not think the honey would work? Is it something that works only on kids or am I missing something? Inquiring minds want to know!

sleepyinsunnyvale · Post by **sleepyinsunnyvale** » Wed Apr 19, 2006 6:18 pm

Why would you think it should work? Your experience not withstanding.
I wonder if a sugar pill would have the same effect?
Just out of curiosity....Was this something a doctor suggested?

my continuing saga./.........

my continuing saga./.........

Re: my continuing saga./.........

difficult

minor surgery

Re: my continuing saga./.........