Question about Raising Pressure

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Re: Question about Raising Pressure

Post by Pugsy » Wed Aug 08, 2012 8:05 pm

DoriC wrote:Pugsy, I know you put a lot of heart into your response, probably one of your best efforts so far to help us understand. I really, really get it this time!! I'm going to pick a setting and stay with it and don't panic over "alien" variations. Can I throw 2 more questions at you? If cpap and apap give similar results and all things being equal, are there any reasons to use one or the other except for the comfort factor? Would there be the same variations? Also, a math question, when you throw Hrs Used into the mix, how does that impact the data? Mike usually sleeps about 9 hrs so with both having similar data how would that compare to someone who only sleeps 6hrs? Am I confusing you?
Mike almost always has his "worst" reports in the wee hours of the morning within a couple or 3 hours of getting up doesn't he? You report that you have checked on him in the wee hours of the morning and you find that he is a lot more restless at that time. Maybe the longer he lays in bed his comfort level decreases maybe he is having some pain from not moving much. It just plain old hurts sometimes to stay in bed. Pain is my main reason (unless the dogs are acting up) for my nights with shorter hours of sleep. I think in this situation that longer hours may causes "restless" sleep and thus increase the chance of having those tossing and turning centrals and such.
From my own experience the longer I am in bed the higher my AHI. More hours of sleep...more chances for time in REM sleep where I am worse...more changes of my back deciding it doesn't want to lay in bed anymore and give me those "restless" events that aren't real that I am pretty darn sure I have within the last 2 hours of sleep. It's rare that I ever have very much show up on my reports the first 4 to 5 hours of my sleep. Most of the time if I have anything really ugly show up it at the end of the night the last 2 hours in bed.

I don't know if there is any huge glaring reasons to use cpap over apap or apap over cpap unless someone actually has times where significant higher pressures are needed for relatively short periods of time like my 18 cm for maybe 30 minutes maybe 3 times a week. I do it to cover those times. If the pressure variations bothered me I wouldn't do it. I would limit the max and just let those events maybe happen if they are going to. You already use a relatively small APAP range anyway with Mike because you think that the variations are disturbing. It's no where near a wide range.
The comfort of the lower pressures for the bulk of the night is sure sweet though. Of course if someone is particularly sensitive to any changes in pressure no matter how tiny then they should use cpap.

Let me ask you this...going on how you perceive his nights..sleeping and resting and whatever....if you couldn't see the reports...can't cheat and look at the data....can you tell any difference in how he seems to feel? Could you just make note of how he feels or acts for a week and not look at the reports and then go change it maybe to cpap mode...give it another week and only evaluate how he seems to feel (don't cheat and look at the reports)? Then go back and look at your notes and then look at the reports to see if you see a pattern? Would you go into data withdrawal?

I am sorry that I can't really give you a clear cut answer. I did try straight cpap on the ResMed machine. I had to use a pressure of 13 to get my AHI down to where I saw it with APAP. I initially tried cpap at 9 cm. Had a truck load of events show up and I felt them. Using APAP at 10 min was a whole lot easier than cpap at 13 even with EPR helping me out.
It's my preference though. I can't transfer it to Mike. I don't know what he is feeling and you don't either because really can't express it. Really makes it tough to try to figure out what makes him more comfortable. How about a compromise? A really tight pressure range? Not quite CPAP mode but close. Have you ever tried that?

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Starlette
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Re: Question about Raising Pressure

Post by Starlette » Wed Aug 08, 2012 9:52 pm

Good evening SleepyToo2.

NOTE TO DORI AND PUGSY: I'm going to politely bypass the both of you and speak to SleepyToo2.

No dear, you haven't highjacked my thread. I have one one suggestion for you. 1) As you "experiment" with your data, may I suggest that you keep a sleep journal so you have concrete data to help you to decide where to tweak. Unless you have a bionic memory. I don't and rely heavily on my sleep journal. I've created my own sleep journal that I created about 2 years ago and tweak it here and there with what information I want to see at that moment (first for cpap 2011, then for Apap 2012). If you wish, in PM send me your email address and I'll email you a copy of my sleep journal and you can change and tweak for the data that works for you. 2) If you haven't already, download to your computer SleepyHead. That will give you AWESOME information that will assist you in interpreting your data. Look again at Pugsy's post, she has included the SH link in her signature part. You can PM her if you have any questions. Pugsy, you da woman of this program. *high 5* I use SH and transfer that data directly to my journal. I love the program, the only problem with it for me is that it doesn't give me the data in a spreadsheet form so I can better analyze and interpret what the relationship is between my body and the apap. Hence, the sleep journal.

Starlette

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Starlette
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Re: Question about Raising Pressure

Post by Starlette » Thu Aug 09, 2012 10:40 am

@DoriC - I have a sampling of how lowering the pressure has worked for me in less than 48 hours. The one from the other night I think was still making the pressure adjustment. This is the pattern I’m used to seeing when the pressure had previously been 9.5 – 12.5. As you can see its a lot smoother and more rhythmic as far as the pressure is concerned. I’ll leave the pressure here for a week. Then the following week, I begin to lower my pressure weekly .5 til I reach my “sweet spot” once again.

Now, I’m going to interpret how I think Pugsy would. Starting from the beginning. The first three blips in the pressure and leaks pretty much match so I’ll file that under the “leak issue” category. The fourth blip was during a pressure pulse and flagged an event at the same time. The first part of my sleep there were no events just mask leaks. Therefore, no changes on the AHI side. The last part of the night where the hill is located I think somehow part of the vent holes were covered up (lower pressure) which caused more events causing the potty break. LinkC and ChicagoGranny posted about these two issues. Lastly, I provided the Zeo part just a matter of showing my sleep cycle.

LinkC created a post “Leak Line”6/22/2012
viewtopic.php?f=1&t=80147&p=729425&hilit=LinkC#p729425
ChicagoGranny created a post “Getting to Pee Several Times Per Night” 7/09/2012
viewtopic.php?f=1&t=79746&p=725516&hili ... ne#p725516

SUMMARY: 1) Lowering the pressure for me shows a better report. 2) Possibly I’m getting better at interpreting my data *shrugs*

Starlette

NOTE: This data shows only two hours of data. I went for a pee break, came back to bed snuggling next to hubby and I was out like a light. NOTE TO SELF: Go take a potty break with the mask on and hose up when I return to bed.

Image
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Last edited by Starlette on Thu Aug 09, 2012 12:19 pm, edited 1 time in total.

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Pugsy
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Re: Question about Raising Pressure

Post by Pugsy » Thu Aug 09, 2012 11:41 am

You know it might be that the lower pressures is just more comfortable for your body..it is obviously sufficient enough to keep the apneas warded off. Maybe your body just "likes" it better. Less restlessness so less chance of excess tossing and turning and all the stuff that comes with restlessness.
If your Zeo is accurate (and we know it is fairly reliable) that last bit of stuff could maybe be awake or semi wake clutter that may not be real but the machine thinks it is.

While I don't want Dori's Mike to have to add wearing a Zeo to his routine and give Dori more stuff to worry about
I have often wondered if the ZEO would show that during those times when Mike has those clusters of stuff, if the bulk of them are also awake/semi awake restlessness stuff getting flagged. While it wouldn't really help Mike any because there really wouldn't be anything we could do about it anyway short of trying what Dori has already tried to make him as comfortable as possible (different bed pillows and such) it might ease Dori's mind to know that if those are indeed stuff flagged during light sleep or awake times that there is a good chance they aren't real (in the sense that in a sleep lab they would be tossed out) and thus not really anything she could do one way or the other to make them go away.

Maybe one of these days I will yield to the Zeo temptation and buy one and do a few experiments of my own.
Been toying with the idea but I am afraid that it will end up like the pulse ox I got... all it did was confirm what I already suspected that my O2 levels were really stable during the night and it is quietly residing in its little tin can and unlikely not to be used again. The Zeo is pretty pricey for just a couple nights of experiments and I just don't know if I would learn anything that would really make me do anything different. I don't have a burning desire to see how much REM I get or whatever.
I go to sleep now, maybe remember waking up turning over in bed once or twice and sometimes don't remember anything, wake up feeling pretty decent for this old body, rarely have the need to nap in late afternoon anymore (since I got the bilevel machine) and I am pretty content with things. Now if the Zeo was maybe $50.....

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Starlette
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Re: Question about Raising Pressure

Post by Starlette » Thu Aug 09, 2012 12:27 pm

Pugsy, did I interpret my data pretty good regarding the blips and and low pressure and stuff? *crossing fingers I did*

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Pugsy
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Re: Question about Raising Pressure

Post by Pugsy » Thu Aug 09, 2012 1:06 pm

Starlette wrote:Pugsy, did I interpret my data pretty good regarding the blips and and low pressure and stuff? *crossing fingers I did*
Yep. Looks like you have a good handle on it. I was only offering another thought in addition to yours about the last little group of events at the end of the session after I saw the Zeo report. I don't normally get to add in possibilities that come to mind from the additional information that the Zeo offers.

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Starlette
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Re: Question about Raising Pressure

Post by Starlette » Thu Aug 09, 2012 1:35 pm

Pugsy,

A much heart felt thank you thank you. Agreed, I think I do now too. Now I can get on with living
You know what that means for me right? I haven't done this in a long time....

Image

You know what this means for you right? I don't remember the beer you like to drink. So, I'm giving you a case of mine. You've definitely earned it!!!

Image

As for me, I consider this the end of my thread. NOTE TO SELF: Bookmark and add to my favorite threads I've posted.

Again, thank you VERY much for your patience and for you posts.

XXX
OOO

Starlette

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