Periodic Limb Movememt Disorder (PLMD)

Guest · Post by **Guest** » Fri Mar 31, 2006 12:50 pm

Does anyone have PLMD?
I'd like to hear from anyone with this ___disorder. My last sleep study indicated that I had multiple occurrences during REM. Just another wrench in the works. I already take .5 Mirapex for this, and they want to increase it during the day; Neuro I know, but who has not yet read my history said "NO" to that. Anyone who can provide info on this added distraction would be most welcomed. Thank you! Offerocker/Kathleen

Guest · Post by **Guest** » Fri Mar 31, 2006 1:10 pm

Use the cpaptalk search function located at the top of the page and for keyword enter:
PLMD

Lots of previous threads on this topic with good info.

Guest · Post by **Guest** » Fri Mar 31, 2006 6:50 pm

Here's a good link you can click on:

An Introduction to Periodic Limb Movement Disorder

Guest · Post by **Guest** » Fri Mar 31, 2006 7:11 pm

Thanks for the link.

Sleepless on LI · Post by **Sleepless on LI** » Fri Mar 31, 2006 10:12 pm

At my PSG, I was diagnosed with PLMD, 14+ per hour. At the titration study, they seemed to be eliminated with CPAP. However, I do take Requip now, which is for RLS, and don't seem to be bothered by it at all. Perhaps you can ask your doctor about it.

Guest · Post by **Guest** » Fri Mar 31, 2006 11:05 pm

deltadave wrote: <snip>

PLMs and OSA are not related. For a snapshot of a PLM take a look here:
PLMS
Limb movements that occur following respiratory events are called exactly that, LMs. And if all the LMs disappear with CPAP, then you KNOW they weren't PLMs. If anything, PLMs get much worse as the CPAP allows you continuous sleep and the PLMs are allowed to come to full fruition. You treat PLMs with drugs.
And actually, PLMs themselves are harmless, unless they cause an arousal, so look for your PLMAI. If it's >5.0 and you have EDS, think about treating the PLMs.
Did you see that subtle difference? Arousals don't cause PLMs, PLMs (may) cause arousals.

kteague · Post by **kteague** » Tue Apr 04, 2006 3:33 pm

I was diagnosed about 8 years ago, but had symptoms for years. I have taken Sinemet, currently on Mirapex. Occasionally get 5 hours sleep. In a videotape of me sleeping, when my leg flung out at an odd angle I moaned and cried out "Oouuch!" I had wondered why sometimes my knees would hurt unexplainably. I would forego sleep at all if meant sleeping without the meds. Can't go back to that misery. Treatment really helped the chronic joint and muscle pain, and improved my cognitive abilities. Within 2-3 of weeks of starting to take medication my joints and muscles were almost normal again. There are other medications being used, and I may switch if I hear enough strong recommendations. Hope you find what works well for you.

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RobbyRobert · Post by **RobbyRobert** » Thu Apr 06, 2006 12:00 am

I was diagnosed with PLMD in 1999. I have taken Sinemet since then. I take one short acting (25/100) and one long acting (50/200). It works well. If I find that I am not sleeping well, I will occasionaly take 1 day off. Then the next day it works great. I have never tried Mirapex. I have been very happy with Sinemet.

kteague · Post by **kteague** » Thu Apr 06, 2006 8:52 am

About the Sinemet vs Mirapex - When I went to see a neurologist about something else and he found out I was on Sinemet and had been for years, he was not very pleased. He said that Sinemet should be reserved for when other options are not working. Reasons: A) There's a limit to how long Sinemet is effective, especially at a moderate dose that would involve minimal side effects. Increasing the dose helps for a while. B) Sinemet is a replacement drug, Mirapex is an agonist, so it makes sense to save the replacement for when the agonist no longer works. (It's a similar concept as with diabetes - it is preferable to take a pill that results in adequate insulin as long as possible before replacing the insulin through shots.)

That said, your doc may have you on Sinemet for a reason. Even within the medical community they are not all on the same page. Sometime in the next few days I'll try to post some information I compiled while on Sinemet that enabled me to reduce my dosage without compromising effectiveness. Because these meds were designed primarily for Parkinson's patients, the Parkinson Foundation and similar sites hold a wealth of information about the meds, just translate the info as relates to your sleep disorder.

I wish you well on your journey.
Kathy

Periodic Limb Movememt Disorder (PLMD)

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PLMD and Sinemet vs Mirapex