BiPap...VPAP....heated hose..Experiments

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Re: BiPap...VPAP....heated hose..Experiments

Post by Pugsy » Tue Mar 27, 2012 4:43 pm

Someone asked me some questions about how I came to use APAP vs CPAP...rather than muddy up someone else's thread with my own report images I am bring those images and discussion over here to a thread of mine.

So here is that discussion....and I will go try to find some report examples in my old files.
Papit wrote:Also, you might explain how the Autoset is useful, and why you need it, for "variable pressures" in REM. What was it in the printouts you brought in that showed that the Autoset set for Auto was beneficial for your needs?
Copies of my daily detailed reports. Documentation of clusters of events requiring higher pressures than usual. Higher pressures unrelated to leaks that might drive the pressure up.
I might have some old images somewhere I will look later. Rather than hijack this thread I will point you to the in one of my threads or put some of those images in one of my threads.
Bear in mind that I am documented worse in REM sleep..pretty significantly.
Diagnostic sleep study my non REM AHI was a mere 12 but in REM sleep I had a 53 AHI with desats to 73%. No apparent different in sleeping position though.

While the machines don't/can't really tell us sleep stage...it is fairly easy to see the pattern of clusters and compare those clusters with typical times of REM stage sleep from normal hypnograms.

For the bulk of the night my minimum of 10 APAP would maybe go to 12 or so but sometimes, especially in the wee hours of the morning when REM sleep is longer and more frequent, I would need 16 to 18 cm of pressure. It was reports showing these ups and downs along with my REM history that easily convinced the doctor that APAP was appropriate for me. I did well on APAP. I never knew those 18 cm pressures were happening till I saw the reports..so pressure changes never disturbed my sleep.
While it is common to have more events in REM sleep than in other sleep stages not everyone happens to need a higher pressure with some of those events.

Why did some events in REM require higher pressures and not all REM events? I have no idea.
I do know that I spent 2 months sleeping exclusively on my side to see if supine sleeping was a factor but it did not seem to matter.

Why from APAP to CPAP? For some reason any pressure changes in APAP mode can be disturbing to a person and actually wake them up. Anything that disturbs sleep is unwanted. If someone is prone to centrals APAP with a wide range is not advisable.

Why go from CPAP to APAP? Maybe someone does need more pressure on their back and they don't want to or can't sleep exclusively on their side. In my case REM super duper strong events. I could use CPAP....I would need much higher constant pressure to address those super duper events. I don't want to use 16 or 18 all night long when I might only need those pressures for maybe an hour or less here and there. Using those higher pressures all the time increase chance for aerophagia, maybe centrals and for sure is like sleeping in a wind tunnel. Comfort......hugely important in quality of sleep. If I chose to use less pressure in CPAP mode and just let those super duper REM events happen....I could do that but with a history of desats to 73% I don't really want that risk.

So for me...APAP worked well. I am now using bilevel in auto mode and yes...I still see some increases in pressure above my normals that probably are REM staged increases.
Does it work this way for everyone? Of course not. We are all individuals and have our own quirks and needs and as such we each have to find the path that best suits our own individual needs. Just because I happen to need and/or use auto adjusting pressures doesn't mean that everyone else should.

Finally, one last comment about APAP vs CPAP. With this therapy the mind is a powerful drug.
If someone really is curious about APAP and they read remarkable success stories...the APAP bug bites because everyone wants the "best" and if they don't think they have the "best" their mind can play tricks with them. So I think that if someone wants to try APAP and they have no medical reasons to contradict its use..I don't see the harm and it might let the mind work its powerful magic and they feel better because they are using the "best". In reality...best is only what works for the individual. APAP is no more better than CPAP for some people. It is nice to have it available though...just so that particular itch is scratched.

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Last edited by Pugsy on Tue Mar 27, 2012 7:15 pm, edited 1 time in total.
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Pugsy
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Re: BiPap...VPAP....heated hose..Experiments

Post by Pugsy » Tue Mar 27, 2012 4:51 pm

Here are some of my APAP reports.
Image

Image

Image

And finally VPAP in auto mode showing the increases. So far 16 is as high as I have reached.
Image

If anyone wonders about normal hypnograms and when REM is likely to be presenting itself.
Image

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portiemom
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Re: BiPap...VPAP....heated hose..Experiments

Post by portiemom » Tue Mar 27, 2012 7:17 pm

So Pugsey, I am curious, if you could only have one machine, which would you choose, S9 Vpap or Respironics Bipap, and why?
Thanks

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Pugsy
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Re: BiPap...VPAP....heated hose..Experiments

Post by Pugsy » Tue Mar 27, 2012 7:58 pm

portiemom wrote:So Pugsey, I am curious, if you could only have one machine, which would you choose, S9 Vpap or Respironics Bipap, and why?
Thanks
Easy. The S9 VPAP Auto. And the only reason is for what I perceive as "comfort" while awake.
It's documented that I probably do a little better in auto mode. Might not need it every night but I need it enough to make the choice to use it for those few times in REM where I seem to need a little more pressure.
Both brands to a great job. Both brands are extremely comfortable and easy for me to use. I feel the same with either brand the next day.

In straight bilevel mode....either brand works beautifully and feels wonderful.
EPAP of 9 and IPAP of 13 is awesome easy to breathe with.
Please note that the "feels wonderful" pertains to awake feelings. When asleep I felt no difference.
In Auto mode on the BiPap the default pressure support is 2 cm and EPAP and IPAP don't go up until events drive the up. So while awake I get 9 EPAP and 11 IPAP...it just doesn't feel as good...the breathing while awake thing. I like the 4 cm difference.
The VPAP in auto mode lets me start out the night at 9 EPAP and 13 IPAP and will go up to 18 (my max IPAP setting) so the VPAP feels better while awake and waiting for sleep to come.

That is the only reason..for something that I only perceive while awake. Probably a rather silly reason some people might think. You know me...I don't really care much what other people think.
I figure if I am going to have to use this stuff for the rest of my life I am damn well going to make it as much to my liking as possible. I don't "settle" well.

It is kinda fun having both machines available though. There are some very minor differences and I expect that when the BiPap is released in the 60 series with the heated humidifier and all..my urge to experiment again will likely drive me to find one to try. If I didn't see the increases in pressure in auto mode...I would be happy using straight bilevel. Using Auto mode has reduced my AHI over what I had in straight bilevel but they are not huge reductions because my AHI was really quite acceptable to start with. I don't chase numbers..I shrug my shoulders when things happen and I have a bad night.

I rarely feel the need to nap during the afternoon. Even if I have had a rather bad night from pain or cats or storms. I don't know why it works...only that it does work and I am so thankful that I stumbled on this. If I ever come up with any plausible ideas on why it works...I will share. It bugs be that I don't know why it works and I finally have the "miracle".

BTW...any newbies wondering about the crazy woman to who tries stuff on her own and even changes types of machines. I am comfortable with my experiments. I have done a tremendous amount of research and I have 30 plus years experience and education in the medical field to fall back on.
My doctor is good with me handling things because I showed them that I had a decent grasp of my situation and what to look for and common sense to manage things.

I don't advocate someone else doing it though.
Besides..how can I argue with this?
Image

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Re: BiPap...VPAP....heated hose..Experiments

Post by Papit » Wed Mar 28, 2012 9:56 pm

Oh, that's one sweet, sweet chart! You simply must print and frame it. Nice. Thanks for the discussion.

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