I still hate my cpap machine but....

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Alshain
Posts: 424
Joined: Thu Jan 13, 2011 4:27 pm
Location: East Texas

Re: I still hate my cpap machine but....

Post by Alshain » Fri Oct 28, 2011 5:29 pm

The good news is... it only gets BETTER from here.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: ClimateLine, 6cm H2O
But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. - Isaiah 40:31 (KJV)

greg-g
Posts: 219
Joined: Sun Dec 20, 2009 1:07 am
Location: Tasmania Australia

Re: I still hate my cpap machine but....

Post by greg-g » Fri Oct 28, 2011 5:33 pm

CPAP, the ultimate in love hate relationships!!!!
I wish I didn't love it but I do.

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: CMS-50F, Night Vision camera, Hose hanger, ResScan 3.16, Modified Swift FX with head band and air diffuser.

User avatar
Pugsy
Posts: 65112
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: I still hate my cpap machine but....

Post by Pugsy » Fri Oct 28, 2011 5:47 pm

Back when I first started treatment I remember reading people saying they "loved" their machine and mask.
Wondered if I would ever get to that point because I really didn't like it.

2 1/2 years later, do I love it? Nope. Do I like it? Nope. I accept that this is simply something I have to use to maintain good health and hopefully prevent any number of serious health problems.
Do I hate it? No, I suppose I don't hate it but I was lucky and my adjustment to the machine was not particularly difficult and the pressures I need aren't nearly as high as some people must use.

I would rather not use it but I have no choice. Desats to 73% scared the crap out of me and that alone is enough to keep me faithfully chugging along this road. To do without it really isn't a wise choice so here I am. I don't like having to use it but since I do, I am thankful that this therapy is available and not any more difficult than it is. There are much worse things in life to have to deal with than this little machine and the mask being stuck to my face.

I have always thought that the mind is the most powerful drug of all. If we look for negatives...guess what we will find in abundance? Yep, negatives but if we look for positives we can also find those. Positives are so much healthier for mind and body. They are just sometimes harder to see but they are there.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

User avatar
cnew
Posts: 39
Joined: Tue Sep 13, 2011 8:15 am

Re: I still hate my cpap machine but....

Post by cnew » Fri Oct 28, 2011 6:44 pm

archangle wrote:
Isn't it a sad comment on the state of the medical mafia in this country that you have to go to a free website to get help instead of getting useful help from the people who are raking in obscene amounts of money for providing the equipment to you?
It sure is! But I'm very happy to have found this group, and I'm happy for you, Kat! It really sounds like you have turned a corner.

_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Started 9/15/2011, Using Sleepyhead open source software, PR Premium Chinstrap.
Last edited by cnew on Fri Oct 28, 2011 6:52 pm, edited 1 time in total.
The little cutie I use for my avatar is orphan squirrel I had in rehab. Some day, when my OSA is under control, I will be bright-eyed and bushy-tailed, too. :-)

ems
Posts: 2757
Joined: Fri Jul 29, 2011 12:46 am

Re: I still hate my cpap machine but....

Post by ems » Fri Oct 28, 2011 6:49 pm

So happy to read that things are getting better for you! I'm kind of a newbie also... started this past July. It really does get easier and automatic... like brushing your teeth... sort of.
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~

User avatar
xenablue
Posts: 1358
Joined: Tue Sep 07, 2010 12:52 pm
Location: Aussie living in balmy Wisconsin

Re: I still hate my cpap machine but....

Post by xenablue » Fri Oct 28, 2011 8:42 pm

WOO HOOOO!!

I'm so happy you've had such a huge change in your sleep in such a short time, Kat!

It makes all the tough love you get from this bunch so worth while...

Hugs,
xena

_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Dx 10/14/10. Also a T2 diabetic. High night/fasting numbers prompted a sleep study and here I am :-)

ThirdOutOfFive
Posts: 294
Joined: Fri Jul 29, 2011 8:03 pm
Location: St. Louis, MO

Re: I still hate my cpap machine but....

Post by ThirdOutOfFive » Fri Oct 28, 2011 8:51 pm

So happy for you! I still am not the biggest fan of sleeping with a hose, but I am doing it, anyway. I am really beginning to feel alert in the morning. Sure beats waking up feeling like a zombie!
Keep us posted, please.

User avatar
Starlette
Posts: 1728
Joined: Mon Feb 08, 2010 9:30 pm
Location: Denver, CO

Re: I still hate my cpap machine but....

Post by Starlette » Fri Oct 28, 2011 8:53 pm

*high 5 Kat!*, in fact make that *high 10 Kat!*

_________________
MachineMask
Additional Comments: Silent Nite Dental Appliance

User avatar
SleepyT
Posts: 775
Joined: Wed Jul 08, 2009 10:50 am

Re: I still hate my cpap machine but....

Post by SleepyT » Sat Oct 29, 2011 6:22 pm

Kat,

I missed your other thread...then I caught a glimpse of it....but wasn't about to slog thru all those pages....still.... I gather it was a doozey! Sometimes we go kicking and screaming! Well, I'll say this about using CPAP. Dori (and Yoda) have it right. There is no try...only do or do not.

I deliver for FedEx. I popped into a coffee shop on my break the other day...the owner asked me how it was going...and I mentioned the rain outside...and he said...you know, you can work in it or not. Either one has consequences. Simple as that. CPAP is that way. If you choose to let it help you...get on board....all the way on board. Kicking and screaming is allowed at first...after that...might as well embrace it, you know? Or don't do it. Your choice. I am a MUCH better person all the way around today than 2 years ago when I started this journey. Like Pugsy, I'd rather not have to use CPAP....but I do have to.. if I want to keep my physical and mental health. I'm grateful for CPAP...Simple as that.

Good luck to you!
"Knowledge is power."

User avatar
peterg
Posts: 191
Joined: Fri Aug 05, 2011 11:01 pm

Re: I still hate my cpap machine but....

Post by peterg » Sat Oct 29, 2011 10:57 pm

ozze_dollar wrote:Sometimes in the morning I just dont want to get out of bed. Its just so nice with the treated air being pumped into you and I cant even feel the mask on my face.Very relaxing.
yes, I am becoming a bit of an addict myself. my mind and body knows I sleep better, feel fresher, happier, all good stuff. its an addiction I can live with (as long as the power supply holds out)

I'll modify the OT's title

I still hate my cpap machine but I love the mask,
we suck face ALL night EVERY night and also during daytime siestas.

the mask is your friend
the mask is your friend
the mask is your friend
the mask is your friend

User avatar
Ldrakekat
Posts: 11
Joined: Thu Oct 27, 2011 1:15 pm
Location: Pennsylvania

Re: I still hate my cpap machine but....

Post by Ldrakekat » Sun Oct 30, 2011 9:31 am

I"m with you Pugsy. I can't imagine ever liking this let alone loving it. But I do love my sleep. I guess it's going to take me awhile to get use to having a mask clamped to my face every night. Still doing some kicking and screaming mentally. And I still resent having to do it. But I got a lot of work done these past few days which is more than I felt capable of in the past few weeks so hallalujah for the great suggestions on this board!

User avatar
Madalot
Posts: 4285
Joined: Sat Jan 30, 2010 7:47 am

Re: I still hate my cpap machine but....

Post by Madalot » Sun Oct 30, 2011 9:59 am

Ldrakekat wrote:I"m with you Pugsy. I can't imagine ever liking this let alone loving it. But I do love my sleep. I guess it's going to take me awhile to get use to having a mask clamped to my face every night. Still doing some kicking and screaming mentally. And I still resent having to do it. But I got a lot of work done these past few days which is more than I felt capable of in the past few weeks so hallalujah for the great suggestions on this board!
If it helps at all - and I'm being 100% truthful here...

Sometimes when I wake up, I have to reach up with my hand to FEEL my mask on my face to make sure it's still on. I've gotten that used to having it on my face that I don't always feel it there.

I never in a million years would have believed that when I first started all of this...

_________________
Mask: FlexiFit HC431 Full Face CPAP Mask with Headgear
Humidifier: HC150 Heated Humidifier With Hose, 2 Chambers and Stand
Additional Comments: Trilogy 100. S/T AVAPS, IPAP 18-23, EPAP 10, BPM 7

User avatar
Resister
Posts: 265
Joined: Sat Jun 25, 2011 5:55 pm

Re: I still hate my cpap machine but....

Post by Resister » Sun Oct 30, 2011 10:21 am

Ldrakekat wrote:I"m with you Pugsy. I can't imagine ever liking this let alone loving it. But I do love my sleep. I guess it's going to take me awhile to get use to having a mask clamped to my face every night. Still doing some kicking and screaming mentally. And I still resent having to do it. But I got a lot of work done these past few days which is more than I felt capable of in the past few weeks so hallalujah for the great suggestions on this board!
I think it makes most a while to get used to it. I'm about 4 months in and not loving it--BUT--sleeping without it feels wrong because I KNOW the damage it's doing. My dad is about a year ahead of me, and still making the adjustment, trying to learn to sleep through the entire night.

It's a journey, but worth it when you stop to consider the consequences. At this point, I'm thankful to have found out while I'm young enough to keep from doing more damage, and to enjoy more life fully rested.

Congratulations on 4 hours! That's a great start
~Mama is happy when she sleeps with Pap-py~

User avatar
Ldrakekat
Posts: 11
Joined: Thu Oct 27, 2011 1:15 pm
Location: Pennsylvania

Re: I still hate my cpap machine but....

Post by Ldrakekat » Sun Oct 30, 2011 8:31 pm

i know it sounds crazy but the thought of getting use to this makes me nervous. I have no idea why.

ems
Posts: 2757
Joined: Fri Jul 29, 2011 12:46 am

Re: I still hate my cpap machine but....

Post by ems » Sun Oct 30, 2011 9:01 pm

Ldrakekat wrote:i know it sounds crazy but the thought of getting use to this makes me nervous. I have no idea why.
It doesn't sound crazy to me... I remember feeling the exact same way. What got me past it was knowing the alternative. I remember looking at myself in the mirror and starting to freak out, and had to calm myself down. In my mind I looked like someone in the hospital with tubes coming out. Not a wonderful sight.

I can only tell you that after a few months, I started to settle down. When I look in the mirror now, I see someone with a CPAP mask on... and it's okay. It's been around four months now, and I sleep so much deeper and feel a lot better during the day. Of course, I'm still looking for more improvement and think that will happen.

Just keep keeping on... the nervousness will be replaced with starting to feel better, and that will make all the difference.
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~