Does anyone have hypermobility or ehlers-danlos syndrome?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
SenjiMom
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Joined: Thu May 26, 2011 6:44 pm
Location: Maryland

Does anyone have hypermobility or ehlers-danlos syndrome?

Post by SenjiMom » Tue Jun 21, 2011 8:15 pm

I'm just trying to get an understanding around my UARS. I'm one of those people who must know why things are the way they are. I've been told by Physical Therapists that I'm "hypermobile". I can see this in some of my joints as well. I don't think that I have Ehlers-danlos syndrome, but I do wonder if there is a relation in these type of syndromes to UARS & OSA. could it be that excess collagen leads to having floppy airways?

please share if you have one of these 2 diagnoses....thanks!

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MtnDews

Re: Does anyone have hypermobility or ehlers-danlos syndrome?

Post by MtnDews » Tue Jun 21, 2011 8:26 pm

I have Ehlers Danlos Syndrome. I never reached REM sleep during my sleep studies. I think that is mostly due to the pain and subluxations/dislocations during the night. Hope this helps some. A genetic doctor could tell you for sure whether or not you have EDS.

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Catnapper
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Re: Does anyone have hypermobility or ehlers-danlos syndrome?

Post by Catnapper » Wed Jun 22, 2011 6:09 am

I have Ehlers-Danlos syndrome, which is a genetic connective tissue disorder. There are several types, some much worse than others. There is also a range of hypermobility a person might experience. It is pretty freaky to see someone intentionally (or accidentally) dislocate major joints - knees, hips, shoulders. Some of us have been told we should be in the circus as contortionists.

There are some dental issues such as having a small mouth or overly large tongue that could have an impact on OSA. Certainly the looseness of connective tissue would allow the throat to relax and close, particularly when lying on your back.

Catnapper - Joanie