Bragging rights thread. Accomplishments.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
BernieRay
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Re: Bragging rights thread. Accomplishments.

Post by BernieRay » Thu Apr 28, 2011 4:30 pm

This has to be my most surprising night:

Image

One hypopnea, followed 2 hours later with 2.5 hours of leaks ranging from 25+ to 63.6 and not a single event during those massive leaks! I'd love to know how I got through that period with no events. The air blowing on my face eventually woke me up and it was too late to go back to sleep.

I have had one perfect night:

Image

Out of 157 nights using the S9, I've had 32 where either my AHI = 0 and/or my max leak = 0. Seven of those were near perfect (such as AHI = 0 and max leak < 2 or AHI = 0.1 and max leak = 0). Here's my full 157 day summary. It would be very hard to have this without those 32 great nights:

Image

As long as my AHI is low, I really don't care how much it leaks or doesn't leak - except when the air blowing against me wakes me up. Like gvz said, the real measure of success is how we feel on a regular basis. As long as I get enough sleep, I feel great. If I don't get enough sleep, that's my own darn fault (or Mother Nature's).
Ray
Diagnosed in 1997

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6PtStar
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Re: Bragging rights thread. Accomplishments.

Post by 6PtStar » Thu Apr 28, 2011 5:25 pm

Leaks, what are leaks?

Jerry

Image

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carbonman
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Re: Bragging rights thread. Accomplishments.

Post by carbonman » Thu Apr 28, 2011 5:54 pm

Pugsy wrote:I wanted to give people a chance to just brag about any small achievement.
Doesn't have to be life changing overall improvement.
Small achievements lead to
life changing improvements.

It's all good.

gvz wrote: Hey carbonman, was it you who said, "my biological clock is now running backwards" ?
Loved that line.
Yes, I did.
Yes it is.
I do too.
"If your therapy is improving your health but you're not doing anything
to see or feel those changes, you'll never know what you're capable of."
I said that.

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Pugsy
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Re: Bragging rights thread. Accomplishments.

Post by Pugsy » Thu Apr 28, 2011 6:42 pm

6PtStar wrote:Leaks, what are leaks?

Jerry
Hey Jerry,

I finally got one that looks like your leak line. Did you see my April 22 report? Only took me 23 months.....Guess I don't have to come to your house and poke holes in your hose with a pin now. I am sure you will rest easier

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6PtStar
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Re: Bragging rights thread. Accomplishments.

Post by 6PtStar » Thu Apr 28, 2011 7:44 pm

Pugsy wrote:
6PtStar wrote:Leaks, what are leaks?

Jerry
Hey Jerry,

I finally got one that looks like your leak line. Did you see my April 22 report? Only took me 23 months.....Guess I don't have to come to your house and poke holes in your hose with a pin now. I am sure you will rest easier
I will sleep a lot easier tonight knowing that!!!!!!!!! I will hang my extra hose by my bed just in case you change your mind!!!!

Jerry

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Bright Choice
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Re: Bragging rights thread. Accomplishments.

Post by Bright Choice » Thu Apr 28, 2011 8:25 pm

... One night I slept for 9 hours without waking up other than to turn over ...

Try to beat that one!!

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Pugsy
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Re: Bragging rights thread. Accomplishments.

Post by Pugsy » Thu Apr 28, 2011 8:31 pm

Bright Choice wrote:. One night I slept for 9 hours without waking up other than to turn over ...

Try to beat that one!!
I am green with envy. I just can't lay in bed that long. Back hurts, or dog is jumping around because the cats are after him and he is terrified of the cats, or the cat is slapping at my mask trying to get me up. I do really good to get 8 hours, most of the time it is 7 hrs.

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Starlette
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Re: Bragging rights thread. Accomplishments.

Post by Starlette » Fri Apr 29, 2011 11:53 pm

SNOOPY DANNNNNNCE!!!! This was with my Swift FX for Her mask. Now, if I can JUST REPEAT this moment for the rest of my life, life would be AMAZING!!! Raising the pressure from 8 to 8.5 helped!

Starlette

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robysue
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Re: Bragging rights thread. Accomplishments.

Post by robysue » Sat Apr 30, 2011 1:25 pm

Like SnozzyQ, I wish I felt as if I had something positive to contribute to this thread. It's been a long and often dark (mis)adventure and too much of this last month has been one step forward and two steps backward in terms of the insomnia, the AHI, the PR's reports of how much I'm snoring (but not my hubby's), and the overall "How do I feel?" I have my next follow-up with the PA on Wednesday. Maybe she will have some insight into why I'm feeling so much worse now than I did at the end of March.

And a comment on 6PtStar's sig that reads: Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out, shouting: "Wow what a ride!"
I wish my doc's focus on insisting that I use this machine were on quality of life, but alas, my quality of life has seriously deteriorated and the rationale used for explaining why I must, absolutely MUST use this machine is sounding increasingly like "So you can arrive at the grave safely in a well preserved body."

Sorry for the cynicism. But it's been another rough night and another bad day on a day that SHOULD be good since it is sunny and warm outside, but I feel lousy with a headache, aches, pains, and a general overall sense of not getting any decent quality sleep last night in spite of "oversleeping" by not getting out of bed until 7:50 this morning.

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lars4life
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Post by lars4life » Wed May 11, 2011 7:05 pm

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Pugsy
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Re: Bragging rights thread. Accomplishments.

Post by Pugsy » Wed May 11, 2011 7:14 pm

lars4life wrote:Pugsy,
I say your graph of data and at the bottom, it listed "Daily Events Per Hour".
I'm using Encore Pro 2.4 and my reports look like yours but mine do not list the daily events.
How does this work for you?
Hmm. Wonder if it is Bipap thing?

I have always had the Daily Events thing. With my M series PAP machine, this PR S1 APAP Encore Viewer 1.0, EP 1.8 and now EP 2.4. Sometimes that Daily Events thing comes up with some really weird stuff so Wulfman a long time ago suggested chalking it up to Respironics math (which sucks) and I never paid any more attention to that set of data and that is why I always cut off that part.

Been helping someone using PR S1 Pro CPAP and she has that daily events log also. Guess we need to go find someone else using BiPap and see if they have that part.

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Re: Bragging rights thread. Accomplishments.

Post by robysue » Wed May 11, 2011 8:28 pm

Pugsy wrote:
lars4life wrote:Pugsy,
I say your graph of data and at the bottom, it listed "Daily Events Per Hour".
I'm using Encore Pro 2.4 and my reports look like yours but mine do not list the daily events.
How does this work for you?
Hmm. Wonder if it is Bipap thing?

I have always had the Daily Events thing. With my M series PAP machine, this PR S1 APAP Encore Viewer 1.0, EP 1.8 and now EP 2.4. Sometimes that Daily Events thing comes up with some really weird stuff so Wulfman a long time ago suggested chalking it up to Respironics math (which sucks) and I never paid any more attention to that set of data and that is why I always cut off that part.

Been helping someone using PR S1 Pro CPAP and she has that daily events log also. Guess we need to go find someone else using BiPap and see if they have that part.
Pugsy, you sure about your friend's machine and reports?

Because when I was running my PR S1 BiPAP Auto in FIXED BiPAP mode, there was no such chart. But as soon as I switched over to AUTO BiPAP mode, the chart appeared.

And the name Daily Events per Hour is clearly a very BAD and misleading name for this table since it summarizes data by pressure setting not by time as you might expect given it's name. Or at least that's what this table is for my BiPAP Auto when it's running in AUTO mode. In other words, the Daily Events per Hour chart simply includes the break down of the data for each pressure setting that was used during the night, but the "events" data is all converted into (largely meaningless) indices that represent the average number of "events per hour" at that pressure setting. For example, if the (OAI index for EPAP = 5) is listed as 4 and the (MAP for EPAP = 5) is listed as 15, that means:
  • (1) the total time spent at EPAP = 5 was 15 minutes, which equals 0.25 hours, and
    (2) 4 = (# of OAs that happened at EPAP=5)/(time in hours spent at EPAP=5)
Putting these two facts together, we can conclude that:

4 = (# of OAs that happened at EPAP=5)/0.25
4*(0.25) = # of OAs that happened at EPAP=5
1 = # of OAs that happened at EPAP = 5

And that funky, weird stuff that "Wulfman a long time ago suggested chalking it up to Respironics math (which sucks)"? It's all due to round-off errors propagating additional errors in all future calculations: If you use 1.3 to approximate 4/3 (because you don't carry anything out beyond one decimal place), you create additional errors any time you do anything with that 4/3. And even though I haven't sat down and done a formal analysis of the numbers, I've got enough number sense to see that's exactly what's happening when the "Total AHI" from the "Daily Events per Hour" table and the "Total AHI" from the "Respiratory Events table" don't agree.

Now it makes sense to me to omit this table altogether if the machine is running in FIXED mode: all the data should for the night should wind up being included in exactly one column (CPAP mode) or two columns (FIXED BiPAP mode) and the numbers in that column should be exactly equal to the data shown in the tables higher up on the page. So what's the point of including a redundant table with no new information?

Lars4life---your machine is a PR S1 BiPAP PRO so it only runs in FIXED mode. Hence I'd expect it to be just like my machine running in FIXED mode. I bet you never, ever see a tick mark on the Flow Limitation line either---do you? Those never appeared in my data until I switched to Auto mode. And do you have EncorePro? If you do, do the Snores show up in the wave form? They didn't when I was running in FIXED BiPAP mode.

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Re: Bragging rights thread. Accomplishments.

Post by Pugsy » Wed May 11, 2011 8:50 pm

robysue wrote:Pugsy, you sure about your friend's machine and reports?
Oops, I looked at APAP report with tight range. Simulating CPAP. My mistake. Going on barely 4 hours of sleep last night that was fragmented due to the animals. So sorry.

Sometimes those numbers do seem to "add up" properly but I remember early on in therapy I had some really off the wall ones where it showed something like 60 events at one certain pressure but time spent in that pressure was relatively short as in maybe 15 minutes. Physical impossibility. For probably the same reasons you mention.

Since I felt no need to dissect that area of the data any further realizing I could have data that was physically impossible and made no difference in my overall therapy or how I felt, I simply chose to ignore that area then and now.

Now if anyone wants to try to make sense out of that area of data, I will be happy to post some examples but I don't want to even start. I spent 3 days 2 years ago on it. That was enough for me.

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Post by lars4life » Wed May 11, 2011 9:53 pm

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Re: Bragging rights thread. Accomplishments.

Post by robysue » Wed May 11, 2011 10:29 pm

Pugsy wrote: Sometimes those numbers do seem to "add up" properly but I remember early on in therapy I had some really off the wall ones where it showed something like 60 events at one certain pressure but time spent in that pressure was relatively short as in maybe 15 minutes. Physical impossibility. For probably the same reasons you mention.
I can top this for impossible looking numbers: Last night's table had 633 in the box for VS at EPAP=5 for me. And of course, MaP for EPAP=5 was really short---something like 3 minutes or so.

Those kinds of numbers tease a mathematician right into the question "How can anybody possibly have 633 anythings occur in 3 minutes?"

But the answer is also obvious to the mathematician who knows everything in sleep apnea data gets converted to indices: The number in the box is NOT the number of events that occurred at that pressure. It's the somewhat artificial index for the events---i.e. it's the average number of events expected to happen in one FULL HOUR of being at that pressure based on the actual data gathered in the limited amount of time at that pressure. So
  • (x snores)/(three minutes) = 633 snores per hour and we need to convert the minutes to hours before we can continue with the arithmetic. Since 3 minutes = 1/20 hours, we get:

    x/(1/20) = 633 where x

    So x = 633/20 = 31.65 snores in 3 minutes

    So that's about 10 snores per minute.
Since my respiration rate is about 12-16 breaths per minute, it's no wonder the pressure didn't stay at EPAP=5 for very long: I most likely STARTED snoring at the end of a very long (an uneventful) period with EPAP=4. So the machine raised the pressure up to EPAP=5 to see if that would help. But I continued snoring intensely enough for the machine to detect it on almost every breath and so it correctly continued to raise pressure on up to EPAP=6, where the snoring essentially stopped. So the VS numbers for both EPAP=4 and EPAP=6 were "normal" looking numbers---particularly when compared to their MaP numbers.

And so your "60 events" at "15 minutes at a certain pressure" doesn't mean 60 events. It means you had about 15 events in those 15 minutes at that pressure---about one per minute. Still excessive---particularly if the events are OAs or Hypops---but not at all impossible.

But I'll be honest: I'm be happy to agree that the numbers in the Daily Events per Hour table are largely unnecessary data. But as a mathematician I do think OSA patients need to understand what those AHI numbers on our diagnostic PSGs really mean. And that requires understanding how REM AHI's are computed when there's mighty little REM sleep during the PSG. And the mathematics for understanding meaning the REM AHI is exactly the same as the mathematics needed to understand the meaning of the numbers in the Daily Events per Hour table since the total REM time on a PSG is so often a (small) fraction of an hour.

Questions for the day: Suppose Mr. Sleepyhead has his PSG done. He sleeps for a total of 5 hours and 45 minutes. He gets 25 minutes of REM sleep. And his REM AHI = 72.0 and his NON-REM AHI = 37.5. What's his overall AHI for the night? And did Mr. Sleepyhead actually have more apneas and hypopneas in REM than NON-REM during the night? Why? As a hint, you might want to consider these questions instead: How many apneas and hypopneas did Mr. Sleepyhead actually have in REM? What about NREM? And note: None of these answers requires any more mathematics than basic arithmetic, the ability to convert time measured in minutes to hours, and an understanding of fractions to answer.

And I'll also be honest about this: My main interest in the "Daily Events per Hour" table is the break down of how much time I spent at each pressure. That's really all I look at unless something ridiculous jumps out at me like that 633 VSI today.

And final comment about all this for now: That table's name really needs a set of Parenthesis in it. It's written as Daily Events per Hour and it's clear from many people's comments in trying to make sense of this data that they think the table is supposed to tell them something about (Daily events) per hour---a break down of the data hour-by-hour in the night perhaps or they ignore the per hour part of the title altogether and decide that it's a table showing (Daily Events) per pressure setting and that the numbers represent the number of events that happened at each pressure setting. But the mathematical meaning of the numbers in the table indicates its title should be Daily (Events per Hour) to make it clear that the numbers in the boxes are the overnight data converted into Events per Hour Indices for each pressure level and not the actual number of events that took place at that pressure.

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