AWAKE SUPPORT GROUPS

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Sha D
Posts: 3
Joined: Sun Oct 10, 2010 8:32 am
Location: farmingdale NY

AWAKE SUPPORT GROUPS

Post by Sha D » Mon Apr 04, 2011 4:17 pm

Is anyone looking for a support group to attend to pickup information or to help others with CPAP issues? If so we are have our next meeting at Stonybrook Sleep Disorder center at 240 middle country rd in Smithtown NY on Saturday April 10th from 10-12... It is free please bring your machine and mask for professional assistance. for more information call 631 987 0275
Top
User avatar
robysue
Posts: 7520
Joined: Sat Sep 18, 2010 2:30 pm
Location: Buffalo, NY
Contact:
Contact robysue

Re: AWAKE SUPPORT GROUPS

Post by robysue » Mon Apr 04, 2011 10:20 pm

All I can say is that I really wish there was an AWAKE support group somewhere close to Buffalo. I really wish I could meet with other hose heads in person. It's been frustrating dealing with even the quality support I get from the sleep doctor's PA (who is not a hose head) and the uneven support from the rest of my doctors, PAs, and dentist.

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5
Top
JDS74
Posts: 3397
Joined: Sun Jan 23, 2011 2:57 pm
Location: South Carolina

Re: AWAKE SUPPORT GROUPS

Post by JDS74 » Tue Apr 05, 2011 4:46 am

Sha D wrote:Is anyone looking for a support group to attend to pickup information or to help others with CPAP issues?
http://www.sleepapnea.org/awake/index.html is the online index for AWAKE support groups.

_________________
Mask: Oracle HC452 Oral CPAP Mask
Humidifier: DreamStation Heated Humidifier
Additional Comments: EverFlo Q 3.0 Liters O2 PR DSX900 ASV
Oracle 452 Lessons Learned Updated
DSX900 AutoSV with HC150 extra humidifier and Hibernite heated hose
Settings: EPAP Min-10.0, EPAP Max-17, PS Min-3, PS Max-10, Max Pressure-20, Rate-Auto, Biflex-1.
Sleepyhead and Encore Pro 2.21.
Top
User avatar
DreamDiver
Posts: 3082
Joined: Thu Oct 04, 2007 11:19 am

Re: AWAKE SUPPORT GROUPS

Post by DreamDiver » Tue Apr 05, 2011 7:29 am

There is a new AWAKE group starting in Atlanta sometime in the next month or so, affiliated with the Emory Sleep Center. That's a definite connection I'd try to take advantage of. Competition for Atlanta CPAP Users Group? Maybe not. We've invited the gentleman starting the group to our next meeting at Einstein Bros on April 16 to learn more about it.

_________________
Mask: ResMed AirFit™ F20 Mask with Headgear + 2 Replacement Cushions
Additional Comments: Pressure: APAP 10.4 | 11.8 | Also Quattro FX FF, Simplus FF
Top
nanwilson
Posts: 3463
Joined: Tue Apr 13, 2010 10:35 am
Location: Southern Alberta

Re: AWAKE SUPPORT GROUPS

Post by nanwilson » Tue Apr 05, 2011 7:43 am

If you don't have a group in your area, can you not start one yourself. That's how groups get started, someone sees a need and gets going. Post flyers all over your town, find a meeting place......and youv'e got it started.
Good luck
Nan

_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Started cpap in 2010.. still at it with great results.
Top
katyscarlett57

Re: AWAKE SUPPORT GROUPS

Post by katyscarlett57 » Wed Apr 13, 2011 11:45 pm

Hi, RobySue,

I am in the Buffalo area and have had no success in finding an apnea support group. Have you found one? Or started one?

Katyscarlett
Top
User avatar
robysue
Posts: 7520
Joined: Sat Sep 18, 2010 2:30 pm
Location: Buffalo, NY
Contact:
Contact robysue

Re: AWAKE SUPPORT GROUPS

Post by robysue » Thu Apr 14, 2011 8:33 am

katyscarlett57 wrote:Hi, RobySue,

I am in the Buffalo area and have had no success in finding an apnea support group. Have you found one? Or started one?

Katyscarlett
Short answers:

1) Have had NO success in finding a support group in the Buffalo area.

2) Greatly interested in starting one, but don't have the time nor energy to do it solo.

Any interest helping try to start one? Or interest in at least starting small by meeting in person somewhere occasionally? If so, PM me.

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5
Top


Return to “CPAP and Sleep Apnea Message Board”